Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Hi, My name is and I have a 11 month old daughter, Kira, tentatively diagnosed with Leigh's Disease. I have been reading most of the posts for the past 3 months, but have yet to share my family's story. Part of the reason for this is that the doctors did not believe Kira would live this long. Anyways, I wanted to introduce myself and thank you all for the support you have given through your words. I could relate to a lot of your experiences and find it comforting to be part of this community. As my daughter has defied the odds, we are now facing decisions that I know many of you can offer your wisdom about. We are in the process of arranging a fundraiser for our local hospital and have created a website about Kira and her story. If you are interested in reading more about Kira, and her struggle with Mitochondrial disease, please check out her website at http://members.shaw.ca/kirasday/ Thanks again, Bekker Quote Link to comment Share on other sites More sharing options...
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