Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Dear Cyndi: I just had a lightbulb moment last night when I was thinking about the replies to my question. I was asked if it happens at night. My answer was no - because he wears the cpap, but duh! that is why he wears the cpap. While he's sleeping, he takes big gasps for more air. How is that different than what he is doing during the day! DUH! Sometimes I don't put two and two together. Obviously, I think the sleep doc (who is a pulmonologist) would want to know this. I will write up an email and fax it to her office (since I don't have her email address) and cc: the mito doctor. I think at the very least we should get some awake and active pulmonary studies. I'd really like to get a pulse ox here to at least for a while. Thanks so much for you help! Thanks everyone! Cindy -----Original Message-----From: cynthia smith Sent: Wednesday, April 28, 2004 8:12 AMTo: Mito Subject: Re: Air Hunger Hi Cindy has many issues with air hunger She is on O2 most nights and during the day at many times she always carries a tank on her chairs her sats do drop as she starts to breath more shallow though you may want to try to barrow a sat monitor from the Dr. for a few days to monitor it we can go weeks with O2 but then be on it for weeks straight it always seems to be worst during stress as in illness or such or in a growth spurt Good luck hope this helps Cyndi Quote Link to comment Share on other sites More sharing options...
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