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Re: Air Hunger - and others

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Co2 levels can also signal a sign of breathing problems. Hailees were abnormal and my dr that i worked for explained her levels that shes not taking big deep breaths, or shes forgetting to breath, along with everything else that is going on. than she starts to pant and breath funny.

Also Morphine and any strong narcotics like that can cause breathing problems, the dr i work for is a pain specialist and we have to explain that if a patient has never been on morphine to start slowly and that respritory failure can be a side effect depending on doses.

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Ours when hailee starts to crash will only run a couple of points abnormal, but by the time she starts barking or breathing funny its allready much higher, the problem is the er drs dont know what to make of it if the patients sats are running fine, hailee will drop to 88 -93 every now and than much worse and intubation, but thankfully not to many times

I would find out exactly what level your dr wants it at.

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Cindy thats a good question, i know my dr said to have her practice taking deep slow breaths, but i think there is a apap machine that can be used if they get worse, its to remind them to breath its used on sleep apnea

Sorry i dont know much more, i too am just learning about all of this.

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Dear : Thank you so much for your response. Ben hasn't had fast

breathing (knock on wood). Ben's lactic acid has checked out ok in

the past (even no lactic acid spikes on the MRS). I did hear back

from the pulmonologist/sleep doctor today. She thinks it is a

benign, metabolically caused thing. She's going to contact the mito

doctor and ask him if there's anything else we should check. She

thinks his muscles are strong enough to breathe and that when he's

awake he should be able to regulate his breathing enough to keep his

oxygenation up. He was at the ped today and they checked his pulse

ox. It was 95 - 96 and of course he wasn't having the air hunger at

the time. The pulmo said that 95 - 96 is ok and that sometimes while

kids have this air hunger, their oxygenation is actually better than

usual, because they are taking deep breaths. Go figure.

I am really sorry for your situation where the breathing turned bad

in a real hurry. I have heard others say that, too, and that is why

I want to be cautious. I'm glad Tarok is doing better. Very

interesting about the morphine.

Cindy

> I don't know if this will help or even if it has anything to do

with

> your son's problem, but my son has had periods where he'd breathe

> really fast. Turned out to be caused by Lactic acidosis (or caused

by

> something else that made the breathing cause the lactic

> acidosis...they never did really set me straight on that one.) Have

> the doctors checked your son's lactic acid? When it happened to

> Tarok, he was in the i.c.u. by the end of the day on a ventilator.

It

> can get really bad quickly. He's doing ok now. At home, breathing

> just fine on his own. Good luck.

>

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Hi, Thanks for the response! With my older son, when he was

experiencing these problems, the neuro ran CO2 levels. He thought

they were high and that was causing the problem. When we took him to

a pulmo, they didn't think it was too high, so that is confusing. Is

there a way to correct this? Thanks in advance..

Cindy

> Co2 levels can also signal a sign of breathing problems. Hailees

were

> abnormal and my dr that i worked for explained her levels that shes

not taking big

> deep breaths, or shes forgetting to breath, along with everything

else that is

> going on. than she starts to pant and breath funny.

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, is there a way to fix it or is it just time that corrects it?

Cindy

> Ours when hailee starts to crash will only run a couple of points

abnormal,

> but by the time she starts barking or breathing funny its allready

much higher,

> the problem is the er drs dont know what to make of it if the

patients sats

> are running fine, hailee will drop to 88 -93 every now and than

much worse and

> intubation, but thankfully not to many times

> I would find out exactly what level your dr wants it at.

>

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