Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 My son just got finished with his colonoscopy, and is now in the recovery room. His doctor says that his colon is so healed that if she was diagnosing him today she'd say he does not have ulcerative colitis! I am so thankful I found SCD. I know it would have been a different outcome today if he had not been on the diet for almost 3 years. Thank you to everyone for your expert advice. I so appreciate it! Cathy 15 yo son w. uc (but not really anymore!) SCD Jan. 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Cathy.. Amazing.. Thank you for sharing this.. You guys did all of the work. My hugs and big big kudos! Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 That's so great! Do you have any tips for a teenaged boy who's just starting out? (Not yet 3 months in?) What medications did your son use? Any foods he found necessary to avoid, even though they were " legal " ? Thanks, Liz > > My son just got finished with his colonoscopy, and is now in the recovery room. His doctor says that his colon is so healed that if she was diagnosing him today she'd say he does not have ulcerative colitis! I am so thankful I found SCD. I know it would have been a different outcome today if he had not been on the diet for almost 3 years. Thank you to everyone for your expert advice. I so appreciate it! > Cathy > 15 yo son w. uc (but not really anymore!) > SCD Jan. 2007 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 His doctor says that his colon is so healed that if she was diagnosing him today she'd say he does not have ulcerative colitis! Woohoo!!!!!! Congrats =) Peace =)Alyssa 15 yoUC April 2008, dx Sept 2008SCD June 2009 (restarted)No meds! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Cathy, That is wonderful news! That gives us all hope that we, too, can heal on the SCD. Thanks for a bright spot in my day. Carol CD 21 yrs SCD 5 yrs From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of cathyrdewitt My son just got finished with his colonoscopy, and is now in the recovery room. His doctor says that his colon is so healed that if she was diagnosing him today she'd say he does not have ulcerative colitis! I am so thankful I found SCD. I know it would have been a different outcome today if he had not been on the diet for almost 3 years. Thank you to everyone for your expert advice. I so appreciate it! Cathy 15 yo son w. uc (but not really anymore!) SCD Jan. 2007 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Thanks so much for this bright spot. I'm only 6 months on SCD and praying for the day when I will also write those same words!! Congratulations!! PJ > > Cathy, > > That is wonderful news! That gives us all hope that we, too, can heal on the > SCD. Thanks for a bright spot in my day. > > Carol > > CD 21 yrs SCD 5 yrs > > > > From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf > Of cathyrdewitt > > My son just got finished with his colonoscopy, and is now in the recovery > room. His doctor says that his colon is so healed that if she was diagnosing > him today she'd say he does not have ulcerative colitis! I am so thankful I > found SCD. I know it would have been a different outcome today if he had not > been on the diet for almost 3 years. Thank you to everyone for your expert > advice. I so appreciate it! > Cathy > 15 yo son w. uc (but not really anymore!) > SCD Jan. 2007 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 There were lots of ups and downs, but I could tell almost immediately that the diet was helping him. He became a believer quickly too, so that helped him to keep at it when there were so many temptations. When we started, I didn't know about the pecanbread stages, so he ate anything on the legal list. Then later, when he saw that the food wasn't so bad, we started over with the stages. We were probably 6-8 months into it at that point. I had just started reading this listserv, and realized some things I thought were legal, weren't really. So we just started over basically. His goal has always been that if he goes a full year without a flare, then he can try adding other foods back in. That has helped him to see that light at the end of the tunnel. Plus, the bonus of not having to worry about running to the bathroom in the middle of class has helped! As we added foods one at a time, I realized that we needed to drip the yogurt. He reacted to it when it wasn't dripped. Then we kept going very slowly. He would have flares, sometimes end up back in the hospital, going on and off prednisone, etc. for the first 2 years on the diet, so we stayed on stage 2 a long time. Finally went to stage 3 foods maybe a year ago, and stayed there for awhile as he still had slight flares here and there. I think we finally started stage 4 foods last summer, which he has relished. Now after this colonoscopy, we'll probably speed up stage 4 & into 5, but still keeping it to one food introduced every 4 days. If he's getting ready for exams or something, we'll probably hold off until the stress is off. The last slight flare he had was last summer (only lasted a day or two) so we're thinking next summer we could try introducing some non-SCD foods and see how that goes. Probably gluten free items to start. His system is still fragile, so we'll continue slowly. As far as medicines, he tried various ones before we found the diet. He started Remicade infusions as a last resort about a year before SCD. I never felt that was doing anything for him, but the doctor was wary of taking him off of it since once you stop taking it, you develop antibodies to it and can't go back on it. We continued that reluctantly, until just the last couple months when his doctor decided to do this colonoscopy to see where he's at, and maybe think about discontinuing the remicade. He's also on colazal, and takes 4 mg. of methylprednisilone every other day, because that seemed to help prevent flare-ups in other patients on remicade. Our goal now is to discontinue the remicade, and slowly wean off this last bit of methylprednisilone. I don't know what his doctor will think about weaning off the colazal, but we'll just take it a little at a time and watch carefully. She will probably be wary of taking him off the colazal because the teenage years are such a roller coaster ride of stresses that can wreak havoc on their systems. But we'll work on that after we get through with cutting out these other medicines. I mentioned once again to the doctor that maybe low dose naltrexone could be our back-up once he's off remicade, if needed. She agreed to look into it again. I don't think we'll start LDN unless he has some sort of major relapse, but it's good to have a plan. Oh, and the rowasa enemas. The last couple years, if he had any blood, he'd do one of those at bedtime and it would clear it right up. When they were bigger flares, he had to take it for a month or two. But with the slight flares, sometimes he'd only take it once and that was it. Those enemas are really not as bad as they sound. He didn't mind them. And it went directly to the source without having to take more steroids, so that was a good thing! So I guess my advice in all of this is to take small steps, take it slowly. For teenager favorites -- my son likes the SCD muffins, brownies and cakes a lot, but I don't make them near as much as I used to. He eats a lot of the dripped yogurt with honey, legal vanilla, and cinnamon, fruit smoothies, fresh fruit now that he's stage 4, meat & steamed vegetables. I get LaCroix sparkling water for him as a treat. Cheddar cheese sticks. Diet Coke maybe once a week. We try not to eat too many illegal foods in front of him, but he has gotten used to that. One time he cheated and ate pizza & cereal and ended up back in the hospital, so he's mostly over the temptations. (He may have coincidentally gotten a stomach virus that landed him in the hospital, but he's convinced it was because of cheating on the diet!) Good luck! Cathy On Wednesday, November 4, 2009, at 01:50 PM, caralycalnikmom wrote: > That's so great! Do you have any tips for a teenaged boy who's just > starting out? (Not yet 3 months in?) What medications did your son > use? Any foods he found necessary to avoid, even though they were > " legal " ? > > Thanks, > Liz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 At 01:20 PM 11/4/2009, you wrote: His doctor says that his colon is so healed that if she was diagnosing him today she'd say he does not have ulcerative colitis! I am so thankful I found SCD. Cathy, Hurrah, hurrah! That is GREAT news! I know you and he are probably pretty thrilled! — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 > I'm trying not to jump up and down I'm so thrilled! My son on the other hand is still lying on the sofa recovering from the colonoscopy, not feeling so well, and wishing for food he can't have until tomorrow after he's more recovered from the procedure. It hasn't quite sunk in with him yet! Cathy > > Hurrah, hurrah! That is GREAT news! I know you and he are probably > pretty thrilled! > > € ’· Marilyn > € Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 AWESOME!!! so psyched for you both!!! eileen 21 months scd > > My son just got finished with his colonoscopy, and is now in the recovery room. His doctor says that his colon is so healed that if she was diagnosing him today she'd say he does not have ulcerative colitis! I am so thankful I found SCD. I know it would have been a different outcome today if he had not been on the diet for almost 3 years. Thank you to everyone for your expert advice. I so appreciate it! > Cathy > 15 yo son w. uc (but not really anymore!) > SCD Jan. 2007 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 First of all - BIG CONGRATS!!!! Your son is very strong person!! I will put your post on my son's wall - so he will be reminded - HE CAN DO IT TOO... You both are such an encouragement for others. > > My son just got finished with his colonoscopy, and is now in the recovery room. His doctor says that his colon is so healed that if she was diagnosing him today she'd say he does not have ulcerative colitis! I am so thankful I found SCD. I know it would have been a different outcome today if he had not been on the diet for almost 3 years. Thank you to everyone for your expert advice. I so appreciate it! > Cathy > 15 yo son w. uc (but not really anymore!) > SCD Jan. 2007 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Congrats to you! I am feeling terrible and pray for healing. My problem is so much gas. Anyone have a recommendation for getting rid of the gas. I have had it for a few days now and it doesn't seem to matter what I eat. To: BTVC-SCD From: yuliya66@...Date: Thu, 5 Nov 2009 13:07:43 +0000Subject: Re: The diet worked! First of all - BIG CONGRATS!!!! Your son is very strong person!! I will put your post on my son's wall - so he will be reminded - HE CAN DO IT TOO... You both are such an encouragement for others.>> My son just got finished with his colonoscopy, and is now in the recovery room. His doctor says that his colon is so healed that if she was diagnosing him today she'd say he does not have ulcerative colitis! I am so thankful I found SCD. I know it would have been a different outcome today if he had not been on the diet for almost 3 years. Thank you to everyone for your expert advice. I so appreciate it!> Cathy> 15 yo son w. uc (but not really anymore!)> SCD Jan. 2007> Hotmail: Trusted email with powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 , I would go back to intro diet for a few days and see if that helps. Then if it does, start stage 1 foods from the pecanbread.com website, introducing them one at a time every 4 days, to see if you find the culprit. Jodi, who posts on this list a lot, had to stay on the intro for a long time, because even stage 1 foods bothered her until she'd had some time to heal. You might want to try reposting under a different subject heading so you'll get to people with more experience with getting rid of gas, who may not click on this post. Hope you feel better soon. Cathy On Thursday, November 5, 2009, at 07:57 AM, Gramenz wrote: > > Congrats to you! I am feeling terrible and pray for healing. My > problem is so much gas. Anyone have a recommendation for getting rid > of the gas. I have had it for a few days now and it doesn't seem to > matter what I eat. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 peppermint tea my doc told me once - are you feeding yeast with fruit?? i'd go intro and give your gut a break eileen 21 months > > > > My son just got finished with his colonoscopy, and is now in the recovery room. His doctor says that his colon is so healed that if she was diagnosing him today she'd say he does not have ulcerative colitis! I am so thankful I found SCD. I know it would have been a different outcome today if he had not been on the diet for almost 3 years. Thank you to everyone for your expert advice. I so appreciate it! > > Cathy > > 15 yo son w. uc (but not really anymore!) > > SCD Jan. 2007 > > > > > > > > _________________________________________________________________ > Hotmail: Trusted email with powerful SPAM protection. > http://clk.atdmt.com/GBL/go/177141665/direct/01/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Anyone have a recommendation for getting rid of the gas.Have you tried following food combining rules? You could google 'food combining' and a lot of stuff will come up. It helps a lot of people get rid of fermentation in the gut, which causes gas. Peace =)Alyssa 15 yoUC April 2008, dx Sept 2008SCD June 2009 (restarted)No meds! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 I agree with giving your gut a rest with intro foods, specifically lots of bone broth soup, cut down on sugars and starches. It would be my bet that the dried bananas set you off. Hopefully things will calm down. PJ > > > Anyone have a recommendation for getting rid of the gas. > > > Have you tried following food combining rules? You could google 'food > combining' and a lot of stuff will come up. It helps a lot of people > get rid of fermentation in the gut, which causes gas. > > Peace =) > Alyssa 15 yo > UC April 2008, dx Sept 2008 > SCD June 2009 (restarted) > No meds! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 At 07:57 AM 11/5/2009, you wrote: Congrats to you! I am feeling terrible and pray for healing. My problem is so much gas. Anyone have a recommendation for getting rid of the gas. I have had it for a few days now and it doesn't seem to matter what I eat. Are you keeping a food diary? Sometimes the clues are more subtle that we realize. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
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