Abigail Update

[Guest guest]

We made it to DC for the skin biopsy and DNA testing this week. As

we the 6 - 8 weeks for results we will be rounding off her testing

with an MRI at months end.

There are days we just want to walk away and pretend like nothing is

wrong with her.

Then there are days we are dispare for an answer.

This week has been hard. Her gross motor skills suffered another set

back, we believe this could be related to a weekend we spent in

Virginia. It seems that Abigail does not travle well. Anything that

impacts her schedule causes her harm. We now concern ourselves over

a vacation we planned for the beach in June. The trip will last a

week and we are not sure it will be a safe adventure for Abigail.

In addition she has a mild cold that is causing her to have odd

fevers in the night. For the last three nights her temp has gone to

103. By morning it is gone, and gone it remains until 10pm the next

night.

The MRI seems very frightening. My husband and I are taking the day

before and the day after off of work. I am sure that it will be more

for our own emotional needs than for Abigail's. We worry because

Abigail has begun to have headaches.

We are pressing forward, feeling the ills of the unknown just as all

of you are. Each day thanking God for what we have, and praying that

it lasts.

Who knows what will come of the testing we have accomplished thus

far, or the testing that is to come. I only pray that whatever it is

be it the cells not growing, or a distressful result that we are

ready for it.

To all of you who have been here, and those yet to follow my heart

goes out to you. Thank you all for sharing...we know that we are not

alone and in that there is comfort.