Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 Glad to hear that Hailee is doing better. Best wishes. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 , thank you, i too am glad that she is feeling better, 3 more days to go and than hopefully home Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 Hello, hailee is doing much better since the port has come out, she is awake and active and happy. She is having problems with her potassium and they are supplementing in her g tube and iv extra potassium. She still is very tired and a little pale, but herself for the time being. Thank you everyone for your prayers and support and Hailee _________________________________________________________________ Express yourself with the new version of MSN Messenger! Download today - it's FREE! http://messenger.msn.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2004 Report Share Posted May 2, 2004 , I don't post much here, but keep up with everyone. I have been praying for Hailee as well as you. It must be very hard for you to be alone with your little girl. I am so relieved to hear she is stronger and I will continue to pray for both of you girls. love, mary b Connor's mom - 10 years old - COX/Leigh's hailee update > Hello, hailee is doing much better since the port has come out, she is awake > and active and happy. She is having problems with her potassium and they > are supplementing in her g tube and iv extra potassium. She still is very > tired and a little pale, but herself for the time being. > > Thank you everyone for your prayers and support > and Hailee > > _________________________________________________________________ > Express yourself with the new version of MSN Messenger! Download today - > it's FREE! http://messenger.msn.com/go/onm00200471ave/direct/01/ > > > > > Please contact mito-owner with any problems or questions. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 , YEA!! I am so glad to hear Hailee is doing better! What sort of a problem is she having with her potassium? In 2002, when Chelsea was having many seizures, a blood panel showwed she was running low chloride levels, she has been supplemented with potassium chloride since then. She has been taken it off of it a couple of times and her levels drop to low normal, and she seemed to have increased seizure activity, so her ped & I decided to keep her on it for the time being. Her low levels are thought to be dietarty in nature, she does not consume any table salt. Hope Hailee continues to do well and you are home soon=) e, Chelsea's mom(nonspecific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 e, thanks hailees potassium was low at 3.1, they are supplementing her both iv and g tube, they think its one of the meds causing it. Today shes not feeling so well Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2004 Report Share Posted May 3, 2004 Glad to hear that Hailee is improving! Geri-Anne and Wyatt, complex I > Hello, hailee is doing much better since the port has come out, she is awake > and active and happy. She is having problems with her potassium and they > are supplementing in her g tube and iv extra potassium. She still is very > tired and a little pale, but herself for the time being. > > Thank you everyone for your prayers and support > and Hailee > > _________________________________________________________________ > Express yourself with the new version of MSN Messenger! Download today - > it's FREE! http://messenger.msn.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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