Re: - eye issue/possible SLE ?'s

May 3, 2004

The hesitation I have with the MRI is that only the larger

strokes usually show up. Asenath has had many that do not show in

MRI's. Zipporrah's two do not show up either. Just because damage

is done does not mean they will show, in fact, most do not show. I

really think it would be a waste of time and money but am willing to

do it if Dean (hubby) wants it. The nerve testing seems more

realistic as this issue has been going o for a long time. I guess we

will have to wait to find out what all can be seen. One of the

biggest things I hate about this disorder is the things that come and

go. About when you are sick of the issue and persue help is when it

goes away, just in time for the doc appointment! This happened to me

so many times and of course MS was suspected and it did fit the

picture. Thanks for your concern and suggestions.

Darla

> Best wishes for Luke on his appointment. I think with your

family's history,

> I would still continue the testing. My oldest daughter is 7, and

had to have

> a MRI for migranes. She actually thought it was cool, and wanted

to do it

> again. I have no experience with nerve testing, but I would ask

how detailed it

> is before they do it. Maybe they can do the MRI first, and then if

they do

> not get answers, then go foward with testing. The shower thing is

very

> unusual, I would want to get that checked out. I know a family

with a son with

> sensory integration problems, could he possibly have this type of

problem? These

> types of problems can cause alot of discomfort to the individual,

where is

> soothing to a person without these issues. Best wishes for your

entire family.

>

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