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never going home

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I am beginning to feel so frustrated, the drs have said maybe saturday we can go home, and if its not saturday than it will be a step down to a peds nursing home.

i just want to check her out and take her home, she has kittens that she hasnt even seen yet. We have been in for three weeks, and we were only home for 5 days from our last discharge before we came back.

i am having a pity party, this month has been so long, i no longer have a job, yet i still have a house and bills and no time to even look for a job, so im a little down

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Oh

thats so hard...I hope you know you can lean on us here because you have to be strong when you are with Hailee.

Have you talked to the social worker about your job and money situatino...

am praying for you guys

deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 3 with very very mild Cerebral Palsy.www.HeartLiftersGallery.comwww.LifeofLoveProject.org

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Big hugs to you and Hailee. I am praying that just the right job will be there at just the right time.

Speedy recovery for Hailee and rest for you. God has a great sense of humor and sometimes things look really bleak but he has all in control right down to the perfect job so when in doubt and down look up! Big hugs and super blessings to you!

Horsley

never going home

I am beginning to feel so frustrated, the drs have said maybe saturday we can go home, and if its not saturday than it will be a step down to a peds nursing home. i just want to check her out and take her home, she has kittens that she hasnt even seen yet. We have been in for three weeks, and we were only home for 5 days from our last discharge before we came back. i am having a pity party, this month has been so long, i no longer have a job, yet i still have a house and bills and no time to even look for a job, so im a little down Please contact mito-owner with any problems or questions.

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> ,

It is sooo hard being in the hospital to begin with but to have

everything else on your shoulders had got to be near impossible! Our

thoughts and prayers are with you and Hailee. Is there someone at

the hospital that can give you some guidence? Some financial

assistance?

Hang in and we are here for you! Dawn

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,

My heart goes out to u. I will pray for u that u all go home. I am

also sorry to hear about your job. Some people just don't understand

our lives. Take care of yourself.

(caeden 2 1/2 mito myop)

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Dear : I just want to offer my support, I am so sorry for all

that you and Hailey are going through. My heart breaks for you. I

will pray for you and just know that we care...

Cindy (mom to Seth and Ben, both kids with mito)

> I am beginning to feel so frustrated, the drs have said maybe

saturday we can

> go home, and if its not saturday than it will be a step down to a

peds

> nursing home.

>

> i just want to check her out and take her home, she has kittens

that she

> hasnt even seen yet. We have been in for three weeks, and we were

only home for 5

> days from our last discharge before we came back.

>

> i am having a pity party, this month has been so long, i no longer

have a

> job, yet i still have a house and bills and no time to even look

for a job, so im

> a little down

>

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,

Hang in there girl! I know what you are going through. Try to keep your thoughts in the positive mode. And Vent when you need to! I am praying for your both!

O

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