Can't stay awake/Input Please!

[Guest guest]

I am so sorry your daughter is not feeling well. Why have they not tested for any type of failure? I know for liver, and kidneys it is a simple bloodtest (urine for kidneys). Heart testing is an echo, none of these are complex or very invasive. FYI before Grace was diagnosed with mito and started on the cocktail, she was on the verge of liver failure. The cocktail has helped her liver, but she will always be on a medication for her liver. It is called Actigal. It will not heal damage, but it thins out the bile making it easier for the liver to work better. My GI told me that it is not a cure, but at least it is a band aide. Sometimes, just putting a band aide on things helps alot. (It sure has for Grace). Best wishes for your little girl.