Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Welcome Becky...please share with us your experience and how you are doing after surgery! Us, pre-ops and wannabes live for those posts!! Holly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Hello Becky, I wanted to welcome you to the list and let you know that you have some littermates on the 19th of July. T., , Kim and me and then on the 20th is L. and a. Where do you live?? Can't wait to meet you. Joyce in KY MGB July 19, 2000 In a message dated 7/14/00 7:09:07 PM Central Daylight Time, beckyandgreg@... writes: << Hi I am new to the group, I have my mgb on the 19th of July, I enjoy all the messages. Thanks Becky >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 In a message dated 7/14/00 5:09:18 PM Pacific Daylight Time, beckyandgreg@... writes: << Hi I am new to the group, I have my mgb on the 19th of July, I enjoy all the messages. Thanks Becky >> Congrats, Becky! Nice to have you aboard. Hope all goes well for you on the 19th! Regards, Debbie in IL Cigna approved on 3rd appeal for daughter (BMI 45) Counting on Cigna for Debbie (BMI 40) ins letter sent 7/14 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Welcome Becky, Good luck on the 19th - we'll be cheering for 'ya. Please keep us posted! Bern TX MGB 7/24/00 > Hi I am new to the group, I have my mgb on the 19th of July, I enjoy > all the messages. > Thanks > Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 Becky , Welcome. My name is Kim and I will be having surgery the same day with Joyce, T. and now you. We have adopted the girls from the 20th too L , a and I think Carol. There are also 2 people having the surgery on Monday Margaret from Memphis and Suzanne. Sounds like Dr.R. will have a busy week. My husband and I are staying at the Fairfield Inn We will be arriving Sun July 16th through Sun July 24th. I am coming from ville,Fl. Hope to see you soon. Getting a little anxious here but Durham bound in 2 days, Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2003 Report Share Posted February 5, 2003 In a message dated 2/5/2003 10:20:26 PM Central Standard Time, lisa36njmom@... writes: > Hi my name is . I just joined this group. I have two sons. Eddie > is 8 and Greg is 6. Both have CF. > Hi , I have 3 daughters and two of them have CF they are 10 w/CF, 8 wo/cf and 5 w/CF. We are so glad you have joined the group!! This is a great group with lots and lots of support which we all need. Hope to hear from you soon. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Hi , Welcome! I have 2 sons also. is 12 (no cf) and is 6 (cf). How are your boys doing? Are you from NJ? I am, too, but I live in Colroado now. Hope to hear more from you! Lenora >Hi my name is . I just joined this group. I have two sons. Eddie >is 8 and Greg is 6. Both have CF. > >Looking forward to talking to everyone. > -- http://www.lenoradegen.com Give a gift of art...Charming renderings of a home or establishment...Original, one-of-a-kind pen & ink or watercolor http://www.cfawareness.org ....in memory...in hope...dispelling the darkness...Learn more about Cystic Fibrosis and the special people who cope with it every day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2003 Report Share Posted February 6, 2003 Hi , Welcome! I have 2 sons also. is 12 (no cf) and is 6 (cf). How are your boys doing? Are you from NJ? I am, too, but I live in Colroado now. Hope to hear more from you! Lenora >Hi my name is . I just joined this group. I have two sons. Eddie >is 8 and Greg is 6. Both have CF. > >Looking forward to talking to everyone. > -- http://www.lenoradegen.com Give a gift of art...Charming renderings of a home or establishment...Original, one-of-a-kind pen & ink or watercolor http://www.cfawareness.org ....in memory...in hope...dispelling the darkness...Learn more about Cystic Fibrosis and the special people who cope with it every day Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2003 Report Share Posted February 7, 2003 Welcome . We have a few s on here. I'm M, there are 3 more s. I have 2 kids, Nick is 20 w/o cf and is 19 w/cf. She's doing great (and so is Nick). She just started college last month. I hope you enjoy the group! love, M new Hi my name is . I just joined this group. I have two sons. Eddie is 8 and Greg is 6. Both have CF. Looking forward to talking to everyone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2003 Report Share Posted February 8, 2003 Shann, Welcome. My grandaughter is only one year old wcf, but I know what you mean about fear of the future. I just hope that we will have a cure in the VERY NEAR future. This is a great list and reading it really helps. Gale > Hi, I am new to this list , Sounds like a good list, I have 2 children 14w/ cf and 9w/o bolth girls,Been through some hard years,Krys has been sick alot, Having alot of fears about her future , she graduates 8th grade next week, and its a scary feeling, even though we are vry positve family, it is difficult at times, anyone else feeling this? best to all there, Shann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 Your gandaughter (?) and my daughter are the same age (14). A very difficult age even without CF. If you'd like it would be great if they could e-mail each other if they want to. G mom of sam 14 w/cf, bobby & matt no/cf Re: new > Shann, > > Welcome. My grandaughter is only one year old wcf, but I know what > you mean about fear of the future. I just hope that we will have a > cure in the VERY NEAR future. This is a great list and reading it > really helps. > > Gale > > > > Hi, I am new to this list , Sounds like a good list, I have 2 > children 14w/ cf and 9w/o bolth girls,Been through some hard > years,Krys has been sick alot, Having alot of fears about her > future , she graduates 8th grade next week, and its a scary feeling, > even though we are vry positve family, it is difficult at times, > anyone else feeling this? best to all there, Shann > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2003 Report Share Posted February 9, 2003 ---, she is my daughter and yes that would be nice if they could. send me your E-mail and I will give it to Amber. She has her own addy on Yahoo, and even has messenger, if you do they could chat back and forth. Margo, mother of Amber 14 w/cf In cfparents , " Germann " <mjg@d...> wrote: > Your gandaughter (?) and my daughter are the same age (14). A very > difficult age even without CF. If you'd like it would be great if they > could e-mail each other if they want to. > G > mom of sam 14 w/cf, bobby & matt no/cf > > Re: new > > > > Shann, > > > > Welcome. My grandaughter is only one year old wcf, but I know what > > you mean about fear of the future. I just hope that we will have a > > cure in the VERY NEAR future. This is a great list and reading it > > really helps. > > > > Gale > > > > > > > Hi, I am new to this list , Sounds like a good list, I have 2 > > children 14w/ cf and 9w/o bolth girls,Been through some hard > > years,Krys has been sick alot, Having alot of fears about her > > future , she graduates 8th grade next week, and its a scary feeling, > > even though we are vry positve family, it is difficult at times, > > anyone else feeling this? best to all there, Shann > > > > > > ------------------------------------------- > > The opinions and information exchanged on this list should IN NO WAY > > be construed as medical advice. > > > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR > TREATMENTS. > > > > ------------------------------------ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 welcome . The best way to get information is to ask for it. Let us hear from you. Lori Owen - Denton, Texas CHF 4/14/01 479 lbs. SRVG 7/16/01 401 lbs. Current Weight 335 Dr. Ritter/Dr. Bryce On Tue, 08 Apr 2003 01:04:49 -0000 " " writes: > Hi everyone, I have had my surgery October 11, 2001. Lost 135lbs > woohoo! Im so glad that their is a group for us that have had the > surgery. Alot of times they have the support group meetings when Im > > working. I havent been to one since day one. So im hoping this has > alot of information for me. God bless > > > > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 welcome . The best way to get information is to ask for it. Let us hear from you. Lori Owen - Denton, Texas CHF 4/14/01 479 lbs. SRVG 7/16/01 401 lbs. Current Weight 335 Dr. Ritter/Dr. Bryce On Tue, 08 Apr 2003 01:04:49 -0000 " " writes: > Hi everyone, I have had my surgery October 11, 2001. Lost 135lbs > woohoo! Im so glad that their is a group for us that have had the > surgery. Alot of times they have the support group meetings when Im > > working. I havent been to one since day one. So im hoping this has > alot of information for me. God bless > > > > > Homepage: http://groups.yahoo.com/group/Graduate-OSSG > > Unsubscribe: mailto:Graduate-OSSG-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 Hi Mike, Welcome to the group. My cf daughter is 19. Is your daughter looking to talk or is it you? Either ways good. How old was she when she was diagnosed? Did you go through a lot before hand? My daughter () was diagnosed at 8 months, she was sick for about 3 months before she was diagnosed which I guess isn't too bad compared to some of the horror stories I've heard. She was diagnosed due to dehydration that kept occuring, and her electrolytes kept going low, and they couldn't figure out why, turned out it was she was sweating alot of salt out, plus vomiting. She was also loosing weight, had developed a cough, and had the classic BM's although I never really thought much about that, as a lot of babies have messy BM's. Well this is probably more than you wanted to know. She is doing very well now and is in college, and it has been over 3 1/2 years since her last hospitalization. So now feel free to tell us anything you'd feel like about your daughter and we'll always be here to listen and help in anyway we can. Sure am glad you found us, I hope you enjoy it. love and hugs, M (there are 4 's on here) new > hi my name is mike i have a daughter she is 15 with cf looking to > talk to any body that i can about things > > > > > ------------------------------------------- > The opinions and information exchanged on this list should IN NO WAY > be construed as medical advice. > > PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. > > ------------------------------------ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 In a message dated 5/2/2003 1:13:04 AM Central Daylight Time, ms5ms@... writes: > hi my name is mike i have a daughter she is 15 with cf looking to > talk to any body that i can about things Hi Mike you have found the right place there are lots and lots of people on here that you can talk to about CF. I have two daughters with CF. Where do you live? Deb A Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Welcome Angie, Here is a great starting point for you: <A HREF= " http://www.mediboard.com/ubb/ultimatebb.php?ubb=get_topic;f=1;t=004549 " >ht\ tp://www.mediboard.com/ubb/ultimatebb.php?ubb=get_topic;f=1;t=004549</A> God bless, <A HREF= " http://hometown.aol.com/lisareynolds64/myhomepage/personal.html " >http://ho\ metown.aol.com/lisareynolds64/myhomepage/personal.html</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Welcome Angie, Here is a great starting point for you: <A HREF= " http://www.mediboard.com/ubb/ultimatebb.php?ubb=get_topic;f=1;t=004549 " >ht\ tp://www.mediboard.com/ubb/ultimatebb.php?ubb=get_topic;f=1;t=004549</A> God bless, <A HREF= " http://hometown.aol.com/lisareynolds64/myhomepage/personal.html " >http://ho\ metown.aol.com/lisareynolds64/myhomepage/personal.html</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Hi Angie, Welcome! I know this is a confusing time, and glad you were able to find us. I would recommend Graves' Disease: A Practical Guide, by Elaine . Thyroid For Dummies, and The Thyroid Solution are often recommended. One caution I've heard about The Thyroid Solution is that it treats RAI as more acceptable than most of us here believe it to be. I am one who is decided that I will never have RAI -- I have read too much, and feel I know enough to know that I'm not willing to take the risks involved; I'd rather opt for surgery if I needed to do something permanent (tho I am well aware of the risks involved with that procedure), but I'm doing very well on ATDs and should be off soon. Surgery is my last resort method, and I will do everything I can to avoid that, and so far so good. Please keep reading, you will get the hang of it. There is a lot of info, but after a few weeks, you will know the deal. There is a steep learning curve in the beginning, but after a while, most of the stuff becomes familiar. Also, check out the Files section of this group's site http://groups.yahoo.com/group/graves_support/files/ , and in particular Pam Brisse's welcome letter to the newly diagnosed. At 04:59 PM 8/29/2003, you wrote: >Hey I am new to this group and this is my first time posting I just >found out that I have GD and I have been trying to do alot of >reading up on it to understand all that is going on with me. I have >been reading your post, but cant understand much. Can anyone >recommend any reading material on GD. Currently I am taking >Tapizole. I dont understand what my blood work should be etc. >I am confused and want to learn more. Any recommendations can help >Thanks ANGIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Hi Angie, Welcome! I know this is a confusing time, and glad you were able to find us. I would recommend Graves' Disease: A Practical Guide, by Elaine . Thyroid For Dummies, and The Thyroid Solution are often recommended. One caution I've heard about The Thyroid Solution is that it treats RAI as more acceptable than most of us here believe it to be. I am one who is decided that I will never have RAI -- I have read too much, and feel I know enough to know that I'm not willing to take the risks involved; I'd rather opt for surgery if I needed to do something permanent (tho I am well aware of the risks involved with that procedure), but I'm doing very well on ATDs and should be off soon. Surgery is my last resort method, and I will do everything I can to avoid that, and so far so good. Please keep reading, you will get the hang of it. There is a lot of info, but after a few weeks, you will know the deal. There is a steep learning curve in the beginning, but after a while, most of the stuff becomes familiar. Also, check out the Files section of this group's site http://groups.yahoo.com/group/graves_support/files/ , and in particular Pam Brisse's welcome letter to the newly diagnosed. At 04:59 PM 8/29/2003, you wrote: >Hey I am new to this group and this is my first time posting I just >found out that I have GD and I have been trying to do alot of >reading up on it to understand all that is going on with me. I have >been reading your post, but cant understand much. Can anyone >recommend any reading material on GD. Currently I am taking >Tapizole. I dont understand what my blood work should be etc. >I am confused and want to learn more. Any recommendations can help >Thanks ANGIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2003 Report Share Posted August 29, 2003 Hi Angie, The group may slow down for this long weekend, so don't be surprised if you get few responses right now. First of all, if you share with us the tests you have had, leading to the diagnosis of GD, and the dose of Tap you're on, it would be helpful. It's great your doctor is giving you ATD's (anti thyroid drugs) instead of recommending more permanent treatment (RAI, or radiation). Things to read: go to IThyroid.com and read all about your disease. This is a great site, many of the people also on this group are active there. It's a place you can get simple, straightforward answers to many of your questions. Elaine 's book, Graves Disease, a Practical Guide, is also a good one to study, as you understand more about GD. Anyway, welcome and don't worry that you understand little at this point. You're on the right track. You are on ATD's, you made it here--and I have to tell you, I remember when I didn't understand a thing, too! You will. Best to you, Terry > > Reply-To: graves_support > Date: Fri, 29 Aug 2003 20:59:09 -0000 > To: graves_support > Subject: NEW > > Hey I am new to this group and this is my first time posting I just > found out that I have GD and I have been trying to do alot of > reading up on it to understand all that is going on with me. I have > been reading your post, but cant understand much. Can anyone > recommend any reading material on GD. Currently I am taking > Tapizole. I dont understand what my blood work should be etc. > I am confused and want to learn more. Any recommendations can help > Thanks ANGIE > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list do not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > ------------------------------------------------------------------------------ > -------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2003 Report Share Posted August 30, 2003 Hi Angie. > Hey I am new to this group and this is my first time posting I just > found out that I have GD and I have been trying to do alot of > reading up on it to understand all that is going on with me. I have > been reading your post, but cant understand much. Can anyone > recommend any reading material on GD. It really takes a lot of time for it all to sink in. Read the recommended material, especially the excellent links on the homepage. You may want to take notes, or print things out and highlight major themes. But it really will fall into place eventually. Currently I am taking > Tapizole. I dont understand what my blood work should be etc. You may have already answered this question but besides the dose you're on, how many times a day do you take the Tap? Are you only on Tapazole? Most people take beta-blockers along with whatever anti-thyroid drug they take. I didn't - I went straight onto Tap and found it reduced my rapid pulse pretty soon after starting it, so if you're starting to feel better don't get too nervous about not taking beta blockers. Please feel free to keep asking questions, and please put up with the loads of questions we'll probably ask you. Unfortunately, we've all seen too much inferior medical care and all the questions are needed to be able to be sure you're getting competent treatment. take care, Fay (took Tapazole for 14 months, currently in remission for 2 years) ________________________________________________________________ The best thing to hit the internet in years - Juno SpeedBand! Surf the web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 welcome aboard, steph. couldn't access your site:-( keep posting, we'll gladly travel along w/ u! lori h. 20 grateful months out Hello, > My name is I am 30 years old and I am excited to be in this > group. > I am getting all the info I can, I really want to have this surgery done. > > Looking forward to meeting you all. > > hugs, > steph > > > God Bless, > Blair > http://www.angelfire.com/ky2/hiya/letter/kj/poem.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2004 Report Share Posted January 6, 2004 welcome aboard, steph. couldn't access your site:-( keep posting, we'll gladly travel along w/ u! lori h. 20 grateful months out Hello, > My name is I am 30 years old and I am excited to be in this > group. > I am getting all the info I can, I really want to have this surgery done. > > Looking forward to meeting you all. > > hugs, > steph > > > God Bless, > Blair > http://www.angelfire.com/ky2/hiya/letter/kj/poem.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Hello and Welcome to the group.I wish you all the best.And don't let anyone scare are worry you about having surgery as you can read if the surgery you need I think you be happy after its done and the weight just comes off.I had Surgery Aug.18,2003 in Sioux falls,South Dakota and started out weighting 379 and now so far down to 266.That 113 lbs and Willing to do it all over if I had to.The surgery is God Gift to us whom can't seem to do it before.Congraduation and hope to hear your date.Your Prayers are with me as your just starting to start a New Wonderful Life.a friend debkroll of Iowa.113 gone forever.Take one day at a time and step at a time. > > Hello, > > > My name is I am 30 years old and I am excited to be in this > group. > I am getting all the info I can, I really want to have this surgery done. > > Looking forward to meeting you all. > > hugs, > steph > > > God Bless, > Blair > http://www.angelfire.com/ky2/hiya/letter/kj/poem.html Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.