Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 ,I don't really know much about eczema, and I am no doctor or medical expert, but I do a lot of reading. I did read somewhere that when taking steroids, they are synthetic, meaning that they are not bio-identical hormones only mimicking the body's natural cortisol. It can not be processed by the body in exactly the same way as natural cortisol (and the other natural steriods). Because of cortisol's inflammation fighting ability and your response of inflammation (eczema), it might be that your adrenal system is struggling to recover from being on synthetic steroids. I would suggest asking about having your adrenal system evaluated (like checking your cortisol surge times 6 am & 11 am, and 6 & 11 pm). Have your outbreaks been during more stressful times? A doctor once told my husband that it takes the body at least as long to recover it's normal function after stopping the prednisone as one was actually on the prednisone. So if you were on an 8 week tapered dose, it would take approximately 8 weeks after finishing the course before the body was back to normal. I could also be that your body is reacting to something, don't know if it is stress or topical, but whatever it is it might be manifesting itself as eczema. Also, you say that you are on a truly hypoallergenic regime, but are you looking at your face and hair products really closely? I have read that the sulfates (sodium laurel/laureth sulfate and ammonium laurel/larueth sulfate) are in most hair and beauty cleansing products (degreasers). They are considered small molecule compounds that easily pass through the skin to cause irritation--just a thought.The only other thought is that maybe after 4 years on SCD, you are finally healing from any remaining dormant bacteria/yeast and it is just part of the healing process--in massive die off.Best of luck in getting it sorted with a proactive, caring, doctor!Amelia. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 I looked in the archives and saw that someone posted about it a while ago but I wanted to follow up a little. I've been on SCD for several years and I've been having problems recently with eczema. Really, really bad eczema. As in...it starts on my head and under eyebrows and then starts spreading down my face and neck. Originally I thought this was an allergic reaction to a new shampoo so I switched. Then a while later it started again. So I went to my dermatologist, did a patch test and have since been put on a *truly* hypoallergenic regimen. So it's been almost 6 weeks on this course but it's starting up again making me think that it's not an allergy. I do know that this problem has only been happening since being on SCD. And I'm something like 4 years into doing it strictly. I did recently have the worst flare of my life - doc and I still don't know what caused it. Has anyone else had that problem? What can I do for it? I honestly expect to wake up one morning and have my face look like it's peeling off. I've also been losing hair. A lot of hair. It's coming out in clumps. I keep checking for bald spots, it's that bad. GP checked my blood for nutritional deficiencies and checked my thyroid. All that was fine. I talked to my GI doc and he said he thinks it's residual side effects from the prednisone in my system. It was a month or so after I'd gotten off of it. It's now been almost 2 months and I've probably lost about 50% of the hair and it's still coming out. I don't really know what to do. Help? Stacey STacey, I can't help you about the hair loss. But I started SCD about four months ago. My eczema, which I've had very little trouble with in the last couple of decades, has come back. This with no changes in foods or my soaps or shampoos etc (which I am very careful about having no perfume, colorings or secret ingredients in). My scalp crud is worse, too, and behind my ears. I really think this is die-off. After all, the skin serves as another means to get rid of toxic stuff. Since you've been on SCD for longer, I don't know. I would think in six weeks you should have been able to clear anything from the shampoo but it's also possible for some people to be allergic to something supposedly hypoallergenic. That just means it's better, not that it's foolproof for everyone. I don't know about coming off prednisone. Could you have picked up some candida? My niece had nasty rash a few years ago from that, including on her face. Good luck, these things are no fun at all, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2009 Report Share Posted November 13, 2009 Are you getting enough protein and oils in your diet? These can affect hair growth and skin health. My son, on a gluten-free diet for celiac, was still having flares of eczema. He finds that taking primrose oil helps both the eczema and the dark circles around the eyes. Just one person's experience. I hope you can find some answers. ShirleyB > > I looked in the archives and saw that someone posted about it a while ago but I wanted to follow up a little. I've been on SCD for several years and I've been having problems recently with eczema. Really, really bad eczema. As in...it starts on my head and under eyebrows and then starts spreading down my face and neck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 > I looked in the archives and saw that someone posted about it a while ago but I wanted to follow up a little. I've been on SCD for several years and I've been having problems recently with eczema. Really, really bad eczema. As in...it starts on my head and under eyebrows and then starts spreading down my face and neck. Eczema does respond to fatty acids. We all had dreadful eczema when I was growing up and I now think a lot of it was that my mother had us all on a no-fat-at-all diet for my father's heart. You can use evening primrose oil, borage oil, or black current oil (there may be others). My doctor told me, the mistake people make here is to think 1 or 2 caps a day will do it. For most people it requires about 8 at least for a long period to get it cleared. Maybe less later for maintenance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 I was on the pred (this time) for about 15 weeks and I've been off it for around 7 now. The GI thought the hair loss was because of the pred still in my system. I don't know that I have enough hair to last another 2 months if it is indeed the prednisone. Certainly not if it continues coming out this way. I don't think the eczema has much to do with the pred just because this has happened multiple times (exactly the same way) before the pred. I have been flaring recently though so perhaps this is some weird form of flare? I say " truly hypoallergenic " because a lot of the stuff that you can get in stores that says it's hypoallergenic isn't. One of my allergies is to fragrance but just because something says it's fragrance free doesn't actually mean it's fragrance free. It just means that the intent of the use of the ingredient that I'm allergic to isn't meant to be used as a fragrance. The things you learn, eh? Labeling laws suck in more than just food! So I have a list of very specific products that I'm allowed to use because I've been tested for every ingredient in them (patch test) to make sure I'm not allergic to anything they might contain. Buying those products put a huge dent in my wallet! Die off is certainly a possibility. I don't know how to be sure that that's what it is and it just worries me that it's spreading down my face/neck. ::laughs:: What I need is a really good diagnostician! Stacey > > , > > I don't really know much about eczema, and I am no doctor or medical expert, but I do a lot of reading.  I did read somewhere that when taking steroids, they are synthetic, meaning that they are not bio-identical hormones only mimicking the body's natural cortisol. It can not be processed by the body in exactly the same way as natural cortisol (and the other natural steriods). Because of cortisol's inflammation fighting ability and your response of inflammation (eczema), it might be that your adrenal system is struggling to recover from being on synthetic steroids. I would suggest asking about having your adrenal system evaluated (like checking your cortisol surge times 6 am & 11 am, and 6 & 11 pm). Have your outbreaks been during more stressful times? A doctor once told my husband that it takes the body at least as long to recover it's normal function after stopping the prednisone as one was actually on the prednisone. So if you were on > an 8 week tapered dose, it would take approximately 8 weeks after finishing the course before the body was back to normal. > > I could also be that your body is reacting to something, don't know if it is stress or topical, but whatever it is it might be manifesting itself as eczema. Also, you say that you are on a truly hypoallergenic regime, but are you looking at your face and hair products really closely? I have read that the sulfates (sodium laurel/laureth sulfate and ammonium laurel/larueth sulfate) are in most hair and beauty cleansing products (degreasers). They are considered small molecule compounds that easily pass through the skin to cause irritation--just a thought. > > The only other thought is that maybe after 4 years on SCD, you are finally healing from any remaining dormant bacteria/yeast and it is just part of the healing process--in massive die off. > > Best of luck in getting it sorted with a proactive, caring, doctor! > > Amelia. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 and Shirley B. You know, maybe the oils have something to do with it. The most recent flare I had (after getting off pred) made me feel like my body was reacting badly to something so I stopped taking everything (like my omega 3-6-9) and dropped back down to the starter diet. Protein is definitely not a problem though. Perhaps I'll try looking into primrose oil since two of you have suggested it. How much do you guys usually take? Stacey > > > > I looked in the archives and saw that someone posted about it a > while ago but I wanted to follow up a little. I've been on SCD for > several years and I've been having problems recently with eczema. > Really, really bad eczema. As in...it starts on my head and under > eyebrows and then starts spreading down my face and neck. > Eczema does respond to fatty acids. We all had dreadful eczema when > I was growing up and I now think a lot of it was that my mother had > us all on a no-fat-at-all diet for my father's heart. You can use > evening primrose oil, borage oil, or black current oil (there may be > others). My doctor told me, the mistake people make here is to think > 1 or 2 caps a day will do it. For most people it requires about 8 at > least for a long period to get it cleared. Maybe less later for maintenance. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 > I was on the pred (this time) for about 15 weeks and I've been off > it for around 7 now. The GI thought the hair loss was because of > the pred still in my system. I don't know that I have enough hair > to last another 2 months if it is indeed the prednisone. Certainly > not if it continues coming out this way. > > I don't think the eczema has much to do with the pred just because > this has happened multiple times (exactly the same way) before the > pred. I have been flaring recently though so perhaps this is some > weird form of flare? Yep. A few months after I first joined, a number of people were talking about hair loss and eczema and presented with the same symptoms. I had some hair loss too during my 3rd month flare - nothing that severe, but somewhat more than normal, so that I noticed it. Have you tried zinc and biotin? Also, it's possibly a Herings Law of cure stage - healing moving from the inside out and from the newest of ailments to the oldest (in layers). http://likecure.blogspot.com/2009/02/law-of-cure.html > > I say " truly hypoallergenic " because a lot of the stuff that you > can get in stores that says it's hypoallergenic isn't. One of my > allergies is to fragrance but just because something says it's > fragrance free doesn't actually mean it's fragrance free. It just > means that the intent of the use of the ingredient that I'm allergic > to isn't meant to be used as a fragrance. The things you learn, > eh? Labeling laws suck in more than just food! So I have a list of > very specific products that I'm allowed to use because I've been > tested for every ingredient in them (patch test) to make sure I'm > not allergic to anything they might contain. Buying those products > put a huge dent in my wallet! > > Die off is certainly a possibility. I don't know how to be sure > that that's what it is and it just worries me that it's spreading > down my face/neck. > ::laughs:: What I need is a really good diagnostician! Have you tried packing the eczema with either honey or sea salt or vinegar packs for a few hours? If you google natural cures for eczema those will all come up. HIH, Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2009 Report Share Posted November 14, 2009 One reason I mentioned several types of fatty acids is that I had to work through them. I started with evening primrose but after awhile had problems. I then went to borage oil for some years and then that caused a problem. The black current oil is what I've been using now for many many years. Like my doctor said, you need a slug of it for skin problems. These caps are the size of my thumb, I swear, and I take 8 a day! and Shirley B. You know, maybe the oils have something to do with it. The most recent flare I had (after getting off pred) made me feel like my body was reacting badly to something so I stopped taking everything (like my omega 3-6-9) and dropped back down to the starter diet. Protein is definitely not a problem though. Perhaps I'll try looking into primrose oil since two of you have suggested it. How much do you guys usually take? Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 I was reading Dr. Hoffman about the endocrine system today by chance, and he happens to mention that eczema and hair loss are symptoms of hypothyroidism. So you may want to have that looked at, too. Just a thought. Mara > I was on the pred (this time) for about 15 weeks and I've been off > it for around 7 now. The GI thought the hair loss was because of > the pred still in my system. I don't know that I have enough hair > to last another 2 months if it is indeed the prednisone. Certainly > not if it continues coming out this way. > > I don't think the eczema has much to do with the pred just because > this has happened multiple times (exactly the same way) before the > pred. I have been flaring recently though so perhaps this is some > weird form of flare? > > I say " truly hypoallergenic " because a lot of the stuff that you > can get in stores that says it's hypoallergenic isn't. One of my > allergies is to fragrance but just because something says it's > fragrance free doesn't actually mean it's fragrance free. It just > means that the intent of the use of the ingredient that I'm allergic > to isn't meant to be used as a fragrance. The things you learn, > eh? Labeling laws suck in more than just food! So I have a list of > very specific products that I'm allowed to use because I've been > tested for every ingredient in them (patch test) to make sure I'm > not allergic to anything they might contain. Buying those products > put a huge dent in my wallet! > > Die off is certainly a possibility. I don't know how to be sure > that that's what it is and it just worries me that it's spreading > down my face/neck. > ::laughs:: What I need is a really good diagnostician! > Stacey > > >> >> , >> >> I don't really know much about eczema, and I am no doctor or >> medical expert, but I do a lot of reading. I did read somewhere >> that when taking steroids, they are synthetic, meaning that they >> are not bio-identical hormones only mimicking the body's natural >> cortisol. It can not be processed by the body in exactly the same >> way as natural cortisol (and the other natural steriods). Because >> of cortisol's inflammation fighting ability and your response of >> inflammation (eczema), it might be that your adrenal system is >> struggling to recover from being on synthetic steroids. I would >> suggest asking about having your adrenal system evaluated (like >> checking your cortisol surge times 6 am & 11 am, and 6 & 11 pm). >> Have your outbreaks been during more stressful times? A doctor >> once told my husband that it takes the body at least as long to >> recover it's normal function after stopping the prednisone as one >> was actually on the prednisone. So if you were on >> an 8 week tapered dose, it would take approximately 8 weeks after >> finishing the course before the body was back to normal. >> >> I could also be that your body is reacting to something, don't know >> if it is stress or topical, but whatever it is it might be >> manifesting itself as eczema. Also, you say that you are on a >> truly hypoallergenic regime, but are you looking at your face and >> hair products really closely? I have read that the sulfates >> (sodium laurel/laureth sulfate and ammonium laurel/larueth sulfate) >> are in most hair and beauty cleansing products (degreasers). They >> are considered small molecule compounds that easily pass through >> the skin to cause irritation--just a thought. >> >> The only other thought is that maybe after 4 years on SCD, you are >> finally healing from any remaining dormant bacteria/yeast and it is >> just part of the healing process--in massive die off. >> >> Best of luck in getting it sorted with a proactive, caring, doctor! >> >> Amelia. >> > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 It's a good thought. My doc had the same one and checked out my thyroid. Everything was normal. So...still in the dark as to what's going on which is unbelievably frustrating. I started up my probiotics and multivitamin (both SCD legal of course) yesterday. Unfortunately my body has started reacting badly again. I'll try taking less of it today and see if that helps. I need to look for more omega (I ran out) and I guess I'll take a look at WF for evening primrose tonight. Thanks for all the help Stacey > > I was reading Dr. Hoffman about the endocrine system today by chance, > and he happens to mention that eczema and hair loss are symptoms of > hypothyroidism. So you may want to have that looked at, too. Just a > thought. > > Mara Quote Link to comment Share on other sites More sharing options...
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