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We got a diagnosis

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Hi guys,

Just got the report from Shoffner. Asher has mitochondrial disease. Complex III and possible Complex I defect.

I'm shaking. A bit numb. I'd suspected it and am glad to finally after 3 years to have a name for it. Now I have to learn about the complexes.

Anne R

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To anyone outside of this group this would probably sound weird, but

CONGRATULATIONS. I've been watching your story closely because

hopefully in the next couple of weeks we'll be on our way to Atlanta

also.

SArah

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Anne,

It sounds so weird to say congratulations on Asher having mito, but

it is just so nice having that name! 3yrs. is a long to to just not

know! I hope it helps you in your journey.

Dawn

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