Will be at Mayo May 17th and 18th

[Guest guest]

I am just checking to see if anyone will be at Mayo Rochester on May 17th or 18th. we are taking Gentry back to see Dr. Whiteman and Dr. O'Leary to have her checked. She is now at the age that Aspyn was when we found out she was sick. I have had a few concerns about her weight gain, and it will just be reassuring to have her checked out. If anyone will be there we would love to meet up with you.

Hope everyone is doing well, you are always in my prayers!!

Wayne and BlockMommy and Daddy of ~Gentry Hope~ Healthy & ~Aspyn Remar~ Unknown Mitochondrial Disease, Lactic Acidosis, and CardiomyopothyNovember 14, 2001 to July 15, 2002Please visit Aspyn at www.aspynblock.com or http://www.amandabowden.pwp.blueyonder.co.uk/aspyn.htm

[Guest guest]

Sorry, I won't be at Mayo until the 26th of May but wish we were

going at the same time! Just wanted to let you know I have been

thinking about you and wondering how Gentry has been doing. What

concerns do you have, if you want to share. How old is she now?

Zipporrah is almost 7 months old and starting to look much more

healthy and act healthy since her g-tube placement. I am amazed how

much she has changed in the past week. Learning so much and almost

back to normal again. She is more left handed still since the last

SLE, but her right is getting better all the time. She seems so much

more alert and energetic than before. I hated to place the g-tube

but knew it was the best for her. Now we know how much is truly is

helping her! Hopefully Gentry is just a slow gainer for you and will

pick up for you soon. Please let us know how Mayo goes.

Darla

-- In Mito , " Block " wrote:

> I am just checking to see if anyone will be at Mayo Rochester on

May 17th or 18th. we are taking Gentry back to see Dr. Whiteman and

Dr. O'Leary to have her checked. She is now at the age that Aspyn

was when we found out she was sick. I have had a few concerns about

her weight gain, and it will just be reassuring to have her checked

out. If anyone will be there we would love to meet up with you.

>

> Hope everyone is doing well, you are always in my prayers!!

>

> Wayne and Block

> Mommy and Daddy of

> ~Gentry Hope~ Healthy &

> ~Aspyn Remar~ Unknown Mitochondrial Disease, Lactic Acidosis, and

Cardiomyopothy

> November 14, 2001 to July 15, 2002

> Please visit Aspyn at www.aspynblock.com or

http://www.amandabowden.pwp.blueyonder.co.uk/aspyn.htm