Re: - mitochondrial brown outs?

[Guest guest]

That makes sense. I have had many times where I became very

exhausted, weak, barely able to walk, very clumsy, dizzy, feel

weighed down, just feeling like all the energy has been drained from

my body and then have to " veg " on the couch for weeks at a time until

I start getting more energy again. This has not happened for over

three years now and I have been so grateful to God for holding me

together for my kids. Isometimes was weaker on one side than the

other, but many more times I was just totally drained ALL over.

Along with these symptoms I had swallowing problems, speech

difficulties, a paralyzed eye, lots of migraines, dizziness, shaking,

nausea, etc. It sometimes took several months to a year before

everything came back. I still have a few things not totally back but

most has always seemed to come back for me. I think you described

the difference between SLE's and brown outs well and it really helps

me to understand why I have had different symptoms than Asenath and

Zipporrah. Thanks!!!

I hope your daughter starts feeling better quickly.

Darla

> The " brown out " sounds very similar to your daughters experiences

with the

> SLE's but from what Dr.Cohen said they can be caused from more than

just

> viruses, and she never had a decline on only one side (it was equal

delays on both

> sides.) He said overheating, not eating, viruses or any other

major stress can

> bring one on. I was told they happen when there is just no energy

left to

> work on, therefore shutting down to only the basic necessities for

life

> (heartbeat, breathing, ect.) He also said some people with mito

never have one, some

> only once, but usually if you have one you are higer risk to have

more. With

> Gracies experience from this one, she had a drop in her gross motor

skills

> (became very clumbsy, and fell alot), she also had a drop in her

oral control

> (alot of choking and swallowing issues), her speech had a noticable

decline

> (although normally very below age level) and her GI system has

drastically declined.

> I started noticing changes soon after she started having migranes,

in late

> Feb. and have just started to notice improvement within the past

two weeks.

> He gave me another situation of someone else, who had one from

overheating.

> He said that it was only about 80 and this individual was at a

picnic, took a

> nap in the shade, and ended up in coma for almost a week. He said

that it

> took almost a year for her to walk again. I guess he wanted me to

be very aware

> of the danger of heat, because Gracie already has serious heat

issues.

> He is going to do a MRI to check for any permanant damage. He said

that it

> will show up in the white matter of her brain, if there is

permanant damage.

> He also told me to let him know if she starts getting clumbsy

again, I guess

> this is the first symptom of this. I do not know if there is any

treatment if

> they do happen. I hope this clears this up. I, too, was pretty

unaware of

> this term. I did think it sounded like many of the stories of

children in this

> group. I am still shocked how long it took to see improvement, but

we still

> cannot pinpoint what brought it on.

>