Glyconutrients

[Guest guest]

I tried them many years ago when I had chronic fatigue, and they did nothing

for me at the time. We have recently had two people contact us concerning

this product for our son . There must be a big marketing push on

world wide!!

If there is some credible evidence of significant positive results for a

mito patient with the use of these product, I would like to see it! I would

like to have direct access to such a person. I have seen paperwork years

ago about some pretty amazing cases with the use of this product, but it

would be good to be able to talk directly with such people first hand, to

see how true the story is. I have never spoken to anyone first hand who has

had any significant improvements for anything from the use of

glyconutrients. I have had lots of people speak to me who want to sell the

stuff to me!! Makes you wonder??

Regards,

Savage ( - 8yrs complex IV mito - Australia)

[Guest guest]

howard,

thanks for your personal experience with the glconutrients. I too

would like to speak with someone who had success using them????

we are still going to try since our mito doctor has said they are

fine to take, will not cause any harm to my daughter.

thanks,

bethany

mom to brennan 7, palmer & anna grace (leighs) 4

> I tried them many years ago when I had chronic fatigue, and they

did nothing

> for me at the time. We have recently had two people contact us

concerning

> this product for our son . There must be a big marketing

push on

> world wide!!

>

> If there is some credible evidence of significant positive results

for a

> mito patient with the use of these product, I would like to see

it! I would

> like to have direct access to such a person. I have seen

paperwork years

> ago about some pretty amazing cases with the use of this product,

but it

> would be good to be able to talk directly with such people first

hand, to

> see how true the story is. I have never spoken to anyone first

hand who has

> had any significant improvements for anything from the use of

> glyconutrients. I have had lots of people speak to me who want to

sell the

> stuff to me!! Makes you wonder??

>

> Regards,

> Savage ( - 8yrs complex IV mito - Australia)

[Guest guest]

Dear ,

Thanks for the input on the your past experience

with the glycoproteins. Leanna just started them about a month ago and so far nothing

except the aggravation of adding more supplements and shoving nasty powder in every

drink she takes, poor baby. I have a strong feeling that they won’t make a

darn difference but after Samya’s death we are desperate to try anything.

I was curious about the validity of the incredible successes people have had with

them ( and there are many supposedly) , especially when I found out how expensive

they are. I will keep everyone posted, hopefully with encouraging news. The

lady that sold them to me told me about a “miracle’ mito case still has not

put me in contact with her. I would love to actually speak to these people,

especially a mito

mom.

Suhad Haddad -- Mom to Samya (Died 12-10-02 of Leigh's Synd.) &

Leanna with same disease.

Samya's Memorial Site: www.Samya.org

Email:

Suhad1970@...

Alt Email:

Suhad@...

AiM Chat: Suhad1970

From: &

Savage

Sent: Friday, May 14, 2004 1:50 PM

To: mito

Subject: Glyconutrients

I tried them many years ago when I had chronic fatigue, and they did

nothing

for me at the time. We have recently had two

people contact us concerning

this product for our son . There must

be a big marketing push on

world wide!!

If there is some credible evidence of significant

positive results for a

mito patient with the use of these product, I would like to see

it! I would

like to have direct access to such a person.

I have seen paperwork years

ago about some pretty amazing cases with the use

of this product, but it

would be good to be able to talk directly with

such people first hand, to

see how true the story is. I have never

spoken to anyone first hand who has

had any significant improvements for anything from

the use of

glyconutrients. I have had lots of people

speak to me who want to sell the

stuff to me!! Makes you wonder??

Regards,

Savage (

- 8yrs complex IV mito - Australia)

Please

contact mito-owner with any problems or questions.