Re: Assistive technology help

[Guest guest]

(I want to say there is one called a Dynavox)

Yes, Kass, there is one called a Dynavox. The Dynavox is large and often mounted to a wheelchair. The ambulatory version is called a DynaMyte. There are many augmentative communication devices available. It would be great for your friend's son to have an evaluation by a SLP who is experienced in augmentative communication to recommend which device would be most appropriate for him. Sounds like the school SLP is NOT the one you want in this case! Pediatric hospitals often have evaluation clinics with expertise in this area. Perhaps you could call the one near you. Good luck!

Maggie, mom to Mamie Rose, Complex I, 1/15/93-12/23/03

[Guest guest]

i have not much help to offer but here in Wa state we have a asstively technology center where you can go in and try may of these devices out you may want to see if there is something like that in your state good luck and God Bless cyndi ours is called WATA Assistive technology help Dear Friends :-) I have a dear friend with an 8 yr old son with mito "B" is primarily neurologically affected, is MR, and none verbal. He has a few signs but is otherwise unable to communicate with others, which causes frustration and behavioral issues as would be expected. Thing is, he understands quite a bit and it appears that if he had some way to communicate he'd definatly have "something to say". My friend has the school in a sling at the moment because the ST there forged documents saying she saw "B" when there is no way she could have. She goes in this Thursday for another ARD and amongst other things, wants to ask for some kind of communication device for both school and home that "B" can learn and hopefully be able to communicate more with. The school wants to continue the use of PECS, however this does not appear to be the most effective way for him to communicate and *I* believe he should have some kind of communication box to use. I don't know which one though and was hoping someone here might have some ideas for me to share with her. So, if anyone here has used some kind of communication device (I want to say there is one called a Dynavox), please share your experiences with me to share with her ASAP. -- BIG hugs, Kass, proud mom to Chance(10-Mito), Madison(7-Mito), and Abby(6-Mito) "Life is not measured by the breaths we take, but by the moments that take our breath away" Unknown Please contact mito-owner with any problems or questions. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Hi

My son has a dynamyte, made by Dynavox. It is wonderful! Although Colby sometimes likes to verbalize and sign more. Make a Wish purchased Colby's, and I think Medicare pays for them now. His was $6,000, several years ago. There is a web site, www.dynavox.com, Colby's has 5 different users, different voices as they age, and they probably are even more sophisticated now. I looked at many different devices and went to assistive technology workshops and the dynamyte was the best hands down. Let me know if you need anymore info. They also have great tech support.

Good Luck

mom to Colby,14,COXIV,LCHAD,ACC,ADHD ,hypothroidism and osteopenia. Chad, 16, healthy, Caleb, 11, also healthy> >Reply-To: Mito >To: "Mito " <Mito > >Subject: Assistive technology help >Date: Mon, 17 May 2004 13:12:17 -0500 > >Dear Friends :-) > >I have a dear friend with an 8 yr old son with mito. "B" is primarily >neurologically affected, is MR, and none verbal. He has a few signs but >is otherwise unable to communicate with others, which causes frustration >and behavioral issues as would be expected. Thing is, he understands >quite a bit and it appears that if he had some way to communicate he'd >definatly have "something to say". > >My friend has the school in a sling at the moment because the ST there >forged documents saying she saw "B" when there is no way she could >have. She goes in this Thursday for another ARD and amongst other >things, wants to ask for some kind of communication device for both >school and home that "B" can learn and hopefully be able to communicate >more with. The school wants to continue the use of PECS, however this >does not appear to be the most effective way for him to communicate and >*I* believe he should have some kind of communication box to use. I >don't know which one though and was hoping someone here might have some >ideas for me to share with her. > >So, if anyone here has used some kind of communication device (I want to >say there is one called a Dynavox), please share your experiences with >me to share with her ASAP. > >-- BIG hugs, >Kass, proud mom to Chance(10-Mito), Madison(7-Mito), and Abby(6-Mito) >"Life is not measured by the breaths we take, but by the moments that >take our breath away" Unknown