Guest guest Posted July 3, 2001 Report Share Posted July 3, 2001 At 1:05 PM -0700 7/3/01, Jansen wrote: >...I'm fairly clear about the malabsorbive nature of the >surgery and that vitamins and protein and such will >become a regular way of life. What I'm unclear about >are such side effects as gas, wind, diahrrea, bad >breath, etc. You left out oil leaks and oil sprays (from the excess fats that we do not absorb). They're all kinds of fun. Not all that much bad breath reported. Brushing your tongue when you brush your teeth can head off a lot of breath problems--really! (Even if you have not had WLS) Also, some folks have nausea in the first weeks post-op. Most of the problems fade around weeks 6 to 8. But, not for everybody. >It seems to me some people are affected >while others aren't. I'm very unclear about what to >expect. Some or all of the above. Life is a grab bag. Sometimes it grabs you back. You should also be VERY clear about the peri- and post-surgical risks. Would we do it all over again? MOST every post-op would answer with a resounding YES. --Steve -- Steve Goldstein, age 61 Lap BPD/DS on May 2, 2001 Dr. Elariny, INOVA Fairfax Hospital, Virginia Starting (05/02/01) BMI = 51 BMI on 07/02 = 44 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2001 Report Share Posted July 3, 2001 You left out oil leaks and oil sprays (from the excess fats that we do not absorb). They're all kinds of fun.>>>> that really made me laugh, Steve! How could we forget the oil leaks? yikes! LOL (it only happened to me once though....thank goodness) Judie Re: Newbie with questions > At 1:05 PM -0700 7/3/01, Jansen wrote: > >...I'm fairly clear about the malabsorbive nature of the > >surgery and that vitamins and protein and such will > >become a regular way of life. What I'm unclear about > >are such side effects as gas, wind, diahrrea, bad > >breath, etc. > > You left out oil leaks and oil sprays (from the excess fats that we > do not absorb). They're all kinds of fun. > > Not all that much bad breath reported. Brushing your tongue when you > brush your teeth can head off a lot of breath problems--really! > (Even if you have not had WLS) > > Also, some folks have nausea in the first weeks post-op. > > Most of the problems fade around weeks 6 to 8. But, not for everybody. > > >It seems to me some people are affected > >while others aren't. I'm very unclear about what to > >expect. > > Some or all of the above. Life is a grab bag. Sometimes it grabs you back. > > You should also be VERY clear about the peri- and post-surgical risks. > > Would we do it all over again? MOST every post-op would answer with > a resounding YES. > > --Steve > > > -- > Steve Goldstein, age 61 > Lap BPD/DS on May 2, 2001 > Dr. Elariny, INOVA Fairfax Hospital, Virginia > Starting (05/02/01) BMI = 51 > BMI on 07/02 = 44 > > ---------------------------------------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 3. Can this diet be good for IBS? I was diagnosed with that a year ago. My trouble is the big C. If I did decide to go on this, would I have to start at stage 1, or could I just go right to the entire diet? I don't have IBS, but I know a lot of people on here go on this diet for IBS, and I think it's definitely supposed to help. I think everyone on here will definitely tell you to try it, and to start at intro. Even if you don't have bad symptoms, starting at intro can help your gut start to heal and also make it easier to figure out what foods you tolerate. Peace =)Alyssa 15 yoUC April 2008, dx Sept 2008SCD June 2009 (restarted)No meds! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 Hi . I went on SCD in March 2008 for IBS. It has been very helpful. My doctor encouraged me to start with the Introductory Diet, so as to starve a lot of unwanted microorganisms from the beginning. I followed it for about 3 days, before starting to add other foods. I had relied on Metamucil for many years and worried about giving it up. C was a problem for me too, so I started drinking very diluted prune juice. That helped a bit. Adding some nut butter to my diet after about a week helped even more. It is very easy to function without bran, once you discover all the other foods that contain fibre and gradually add them to your diet. SCD has significantly reduced the frequency and discomfort of C or D, and has also reduced my weight to a healthy range. I haven't been following Pecanbread's stages, so I can't really advise you there. Pecanbread is really aimed more at children with autism spectrum disorders, who benefit from not consuming dairy at the start of the diet. I don't think the same restriction applies to adults starting on the diet. You might want to join the group KosherSCD to ask about kosher SCD-legal gelatin. Hope this helps. Regards, Ellen in Toronto, Canada SCD since March 2008 IBS, Fibromyalgia, ME/CFS, multiple chemical sensitivities, allergies Don Goch wrote in BTVC-SCD Sunday, November 15, 2009 11:26 AM Hello, I appreciate so much all the news I get from this list. My dh has colitis and has been on the diet for 3 weeks. He is beginning Phase 3. I have a few questions: 1. Which veggies (we are using Pecanbread's table) are recommended to start with? There is quite a list, and some can be gassy. 2. When can he start legal cheeses (besides DCCC). They are not on the list. 3. Can this diet be good for IBS? I was diagnosed with that a year ago. My trouble is the big C. If I did decide to go on this, would I have to start at stage 1, or could I just go right to the entire diet? I'm a little nervous about doing it, as I rely on bran cereal in the morning, and that would have to go. My dh would like all of us (we have 2 teen girls) as he thinks there might be behavioral improvements. 4. Is anyone aware of a kosher brand of legal gelatin? I went to my kosher store, and even the clear had sugar in it. Thank you so much for taking the time to help us out! husband dx'd with colitis 10/09 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2009 Report Share Posted November 15, 2009 http://www.digestivewellness.com/ - they carry SCD legal gelatin and other items- all Kosher. PJ > > Hi . I went on SCD in March 2008 for IBS. It has been very helpful. My doctor encouraged me to start with the Introductory Diet, so as to starve a lot of unwanted microorganisms from the beginning. I followed it for about 3 days, before starting to add other foods. > > I had relied on Metamucil for many years and worried about giving it up. C was a problem for me too, so I started drinking very diluted prune juice. That helped a bit. Adding some nut butter to my diet after about a week helped even more. It is very easy to function without bran, once you discover all the other foods that contain fibre and gradually add them to your diet. > > SCD has significantly reduced the frequency and discomfort of C or D, and has also reduced my weight to a healthy range. > > I haven't been following Pecanbread's stages, so I can't really advise you there. Pecanbread is really aimed more at children with autism spectrum disorders, who benefit from not consuming dairy at the start of the diet. I don't think the same restriction applies to adults starting on the diet. > > You might want to join the group KosherSCD to ask about kosher SCD-legal gelatin. > > Hope this helps. > > Regards, Ellen in Toronto, Canada > SCD since March 2008 > IBS, Fibromyalgia, ME/CFS, multiple chemical sensitivities, allergies > > Don Goch wrote in BTVC-SCD Sunday, November 15, 2009 11:26 AM > > > > > Hello, I appreciate so much all the news I get from this list. > My dh has colitis and has been on the diet for 3 weeks. He is beginning Phase 3. I have a few questions: > 1. Which veggies (we are using Pecanbread's table) are recommended to start with? There is quite a list, and some can be gassy. > 2. When can he start legal cheeses (besides DCCC). They are not on the list. > 3. Can this diet be good for IBS? I was diagnosed with that a year ago. My trouble is the big C. If I did decide to go on this, would I have to start at stage 1, or could I just go right to the entire diet? I'm a little nervous about doing it, as I rely on bran cereal in the morning, and that would have to go. My dh would like all of us (we have 2 teen girls) as he thinks there might be behavioral improvements. > 4. Is anyone aware of a kosher brand of legal gelatin? I went to my kosher store, and even the clear had sugar in it. > > Thank you so much for taking the time to help us out! > > > husband dx'd with colitis 10/09 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 I'm fairly new, too, 3 months on SCD now, still getting off some illegals. I also have IBS. I have wondered about what to do about the fiber, as the acacia I've been using has helped my IBS which is the mixed type of never knowing what today will bring. My life-long gut problem was C and it always will be probably, because I found out with my first colonoscopy that my colon is three FEET too long. Even my sister with just a few inches too long a colon they said would predispose her to C. What I am cautiously doing now is working magnesium in. That along with vit C heretofore have been like flame throwers in my gut as well as back to the IBS next day. But I think it's working. I am using magnesium glycenate which is advertised as " bowel neutral " . Not for me! but it is very gentle and so I will continue working that up and the acacia down. I THINK it's going to work. So far it seems to be helping. Another thing you could try is what my MIL said worked for her lifelong C: first thing in the morning a glass of warm water with a half a lemon's juice in it, fresh squeezed. I would recommend Intro for a couple of days anyhow. I didn't believe I needed it because over the 27 years with IBS (the " food is that stuff that is trying to kill me " years) I had by trial and error reached the SCD diet on my own except for rice and yams so I only had to ditch those. Figuring I was already on the diet once I ditched rice and yams, I didn't hurry to do Intro until a dental disaster had me unable to open my mouth far enough to do more than sip soup and eat our SCD gelatin. Then I realized, OK, this is Intro time. I did that for about four days because I couldn't do anything else. And.... it helped! After a bit I think I will do another weekend of Intro. It's also good to go back to to get out of flares or problem days as well as if you are sick. Hello, I appreciate so much all the news I get from this list. > My dh has colitis and has been on the diet for 3 weeks. He is beginning Phase 3. I have a few questions: > 1. Which veggies (we are using Pecanbread's table) are recommended to start with? There is quite a list, and some can be gassy. > 2. When can he start legal cheeses (besides DCCC). They are not on the list. > 3. Can this diet be good for IBS? I was diagnosed with that a year ago. My trouble is the big C. If I did decide to go on this, would I have to start at stage 1, or could I just go right to the entire diet? I'm a little nervous about doing it, as I rely on bran cereal in the morning, and that would have to go. My dh would like all of us (we have 2 teen girls) as he thinks there might be behavioral improvements. > 4. Is anyone aware of a kosher brand of legal gelatin? I went to my kosher store, and even the clear had sugar in it. > > Thank you so much for taking the time to help us out! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2009 Report Share Posted November 17, 2009 I take Acacia for diarrhea and it has helped me out several times - sometimes it seems to help sometimes it doesn't. I was also wondering what to do with it? Stop taking it? I'm only on Day 3 of the intro and I have stopped all supplements for the moment but I'd love to get some of my fiber in there to see if would help me along?? Marla SCD intro day 3 IBS - D and gluten senstivities From: My-Stitches Sent: Monday, November 16, 2009 3:25 PM To: BTVC-SCD Subject: Re: Newbie with questions I'm fairly new, too, 3 months on SCD now, still getting off some illegals. I also have IBS. I have wondered about what to do about the fiber, as the acacia I've been using has helped my IBS which is the mixed type of never knowing what today will bring. My life-long gut problem was C and it always will be probably, because I found out with my first colonoscopy that my colon is three FEET too long. Even my sister with just a few inches too long a colon they said would predispose her to C. What I am cautiously doing now is working magnesium in. That along with vit C heretofore have been like flame throwers in my gut as well as back to the IBS next day. But I think it's working. I am using magnesium glycenate which is advertised as "bowel neutral". Not for me! but it is very gentle and so I will continue working that up and the acacia down. I THINK it's going to work. So far it seems to be helping. Another thing you could try is what my MIL said worked for her lifelong C: first thing in the morning a glass of warm water with a half a lemon's juice in it, fresh squeezed. I would recommend Intro for a couple of days anyhow. I didn't believe I needed it because over the 27 years with IBS (the "food is that stuff that is trying to kill me" years) I had by trial and error reached the SCD diet on my own except for rice and yams so I only had to ditch those. Figuring I was already on the diet once I ditched rice and yams, I didn't hurry to do Intro until a dental disaster had me unable to open my mouth far enough to do more than sip soup and eat our SCD gelatin. Then I realized, OK, this is Intro time. I did that for about four days because I couldn't do anything else. And.... it helped! After a bit I think I will do another weekend of Intro. It's also good to go back to to get out of flares or problem days as well as if you are sick. Hello, I appreciate so much all the news I get from this list. > My dh has colitis and has been on the diet for 3 weeks. He is beginning Phase 3. I have a few questions: > 1. Which veggies (we are using Pecanbread's table) are recommended to start with? There is quite a list, and some can be gassy. > 2. When can he start legal cheeses (besides DCCC). They are not on the list. > 3. Can this diet be good for IBS? I was diagnosed with that a year ago. My trouble is the big C. If I did decide to go on this, would I have to start at stage 1, or could I just go right to the entire diet? I'm a little nervous about doing it, as I rely on bran cereal in the morning, and that would have to go. My dh would like all of us (we have 2 teen girls) as he thinks there might be behavioral improvements. > 4. Is anyone aware of a kosher brand of legal gelatin? I went to my kosher store, and even the clear had sugar in it. > > Thank you so much for taking the time to help us out! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2009 Report Share Posted November 17, 2009 E414 designates Acacia as a gum, also called gum Arabic. AFAIK it is not allowed on SCD as it is a polysaccharide. I would recommend you stop taking it. There is a ton of fiber in well cooked carrots, onions, peeled & de-seeded zucchini. I don’t think you have to worry about getting enough fiber on this diet. http://www.breakingtheviciouscycle.info/knowledge_base/kb/e_codes_for_food_additives_in_europe.htm Hope you feel better soon. Hang in there! Carol From: BTVC-SCD [mailto:BTVC-SCD ] On Behalf Of Marla I take Acacia for diarrhea and it has helped me out several times - sometimes it seems to help sometimes it doesn't. I was also wondering what to do with it? Stop taking it? I'm only on Day 3 of the intro and I have stopped all supplements for the moment but I'd love to get some of my fiber in there to see if would help me along?? Marla SCD intro day 3 IBS - D and gluten senstivities Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 > Hi everybody, > > I've been a lurker for some time now and think this group offers truly fantastic resources, support, and information. I'm a relatively new SCDer with some questions, but first let me give you some of my background. > > I was diagnosed with CD in February 2008. My only symptom prior to diagnosis, and which is still the only symptom that reminds me that I have this affliction, is abdominal cramping due to stricturing of the jejunum and terminal ileum. I'm thankful that I've never had D, C, fatigue, or any of the other awful symptoms associated with this disease. However, the cramping I experience can be excruciating to the point of total debilitation. I'm sure many of you can relate! > > After two failed trials, I began the SCD in earnest in July 2009 (I still receive Remicade treatments every 8 weeks - I am on no other medication). I've been 99% faithful to the diet since then, with a handful of times that I've fallen off the wagon. My health has really been at its best since last July, with only a few occasions of cramping. The SCD is the only thing that has allowed me to put any real weight back on after my initial loss. That is thanks to yogurt made with half and half and the nut butter brownies. Even the high-carb, low residue diet normally recommended for CD patients failed to put much weight back on for me. > > I've been symptom free for sometime now, until a few days ago when I had one of the worst cramping episodes of my life. Stupidly, and much against my better judgement, I had been daily drinking an herbal tea for some time that contains licorice, an illegal ingredient. I probably also had some bananas that weren't fully ripened. > > Now for my questions (and I'm sure I already know what the answers will be from the long termers): > > 1. What are the odds that the tiny amounts of licorice in the tea as well as a few under-ripened bananas could have triggered a full blown recurrence of the stricture and cramping? It's not a question of odds with this disease complex. We've all heard about what would seem to common sense as some incredibly unlikely scenarios arising among various individuals on this board. These diseases are idiosyncratic. Also, its 9 months in, which means, for whatever reason, your gut ecology was more sensitive to destabilization by a new bacterial/fungal/yeast overgrowth. At another point, maybe this wouldn't bother you. Or maybe it always would over time - that's the thing you can't know. So if you reacted to this, it's better to avoid it. > > 2. Assuming one is 100% faithful to the diet, is it unusual to have symptomatic episodes from time to time, even after a long period of perfect health? I'm aware of the 3 month flare, but what about flares that come at 6 months, 1 year, 2 years, etc.? Totally normal to have a 9 month flare (or 6 or 1 year or two). Though they can decrease in severity and duration the longer you are on the diet. They are probably more likely to arise when you are cutting some corners. > > I was on the verge of telling my GI doc that I was ready to stop the Remicade treatments, but I think I'll maintain them indefinitely. Sometimes I don't know if it's the diet or the medication that is keeping me well. Probably the combo, if you know the remicade works for you. Mara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2010 Report Share Posted March 19, 2010 > Hi everybody, > > I've been a lurker for some time now and think this group offers truly fantastic resources, support, and information. I'm a relatively new SCDer with some questions, but first let me give you some of my background. > > I was diagnosed with CD in February 2008. My only symptom prior to diagnosis, and which is still the only symptom that reminds me that I have this affliction, is abdominal cramping due to stricturing of the jejunum and terminal ileum. I'm thankful that I've never had D, C, fatigue, or any of the other awful symptoms associated with this disease. However, the cramping I experience can be excruciating to the point of total debilitation. I'm sure many of you can relate! > > After two failed trials, I began the SCD in earnest in July 2009 (I still receive Remicade treatments every 8 weeks - I am on no other medication). I've been 99% faithful to the diet since then, with a handful of times that I've fallen off the wagon. My health has really been at its best since last July, with only a few occasions of cramping. The SCD is the only thing that has allowed me to put any real weight back on after my initial loss. That is thanks to yogurt made with half and half and the nut butter brownies. Even the high-carb, low residue diet normally recommended for CD patients failed to put much weight back on for me. > > I've been symptom free for sometime now, until a few days ago when I had one of the worst cramping episodes of my life. Stupidly, and much against my better judgement, I had been daily drinking an herbal tea for some time that contains licorice, an illegal ingredient. I probably also had some bananas that weren't fully ripened. > > Now for my questions (and I'm sure I already know what the answers will be from the long termers): > > 1. What are the odds that the tiny amounts of licorice in the tea as well as a few under-ripened bananas could have triggered a full blown recurrence of the stricture and cramping? It's not a question of odds with this disease complex. We've all heard about what would seem to common sense as some incredibly unlikely scenarios arising among various individuals on this board. These diseases are idiosyncratic. Also, its 9 months in, which means, for whatever reason, your gut ecology was more sensitive to destabilization by a new bacterial/fungal/yeast overgrowth. At another point, maybe this wouldn't bother you. Or maybe it always would over time - that's the thing you can't know. So if you reacted to this, it's better to avoid it. > > 2. Assuming one is 100% faithful to the diet, is it unusual to have symptomatic episodes from time to time, even after a long period of perfect health? I'm aware of the 3 month flare, but what about flares that come at 6 months, 1 year, 2 years, etc.? Totally normal to have a 9 month flare (or 6 or 1 year or two). Though they can decrease in severity and duration the longer you are on the diet. They are probably more likely to arise when you are cutting some corners. > > I was on the verge of telling my GI doc that I was ready to stop the Remicade treatments, but I think I'll maintain them indefinitely. Sometimes I don't know if it's the diet or the medication that is keeping me well. Probably the combo, if you know the remicade works for you. Mara Quote Link to comment Share on other sites More sharing options...
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