Re: Leah needs eye surgery

[Guest guest]

lisa,

i hope leah has a smooth " routine " surgery. glad to hear that you

are pleased with all of the doctors involved--that really makes a

difference.

and i would love to see pictures of the playground equipment. the

slides are not always wide enough for adult hips! and how happy

that must make leah feel, to be independent on the equipment

herself! it sounds great.

take care and i will keep leah in my thoughts/prayers during her

surgery.

bethany

mom to brennan 7, palmer & anna grace (leighs) 4

> Hi guys:

>

> Well just got back from Madison and they have determined what kind

of

> eye surgery Leah will have. Shouldn't be a too long of surgery

and her

> metabolic doctor decided that they will do another muscle biopsy

at the

> same time. And she will have new tubes put in too since she is

under.

> But the reason I'm writing is to say what a neat group of doctors

we are

> dealing with and no one is taking any chances with Leah's mito and

they

> are all trying to stay on top of that she will be the first

surgery so

> she doesn't fast that long and are very cautious about going under

and

> will red flag the information for the anthesologists. And they

> appreciate all the information we are giving them on this

situation. I

> am going in to this surgery very relaxed and not worried. Is that

> possible (?). I gave them the web site of the UMDF and they will

check

> into Dr. Cohen's piece. But just in case I will be printing out

my own

> copy and bring it with us to the next appointment. I'm not sure

what

> the muscle biopsy will be for. I was on the road back to Appleton

when

> my husband got the call about that they would want to do another

one.

> So she will have twin scars on each thigh. When I find out what

they

> are looking for will let you all know. Her surgery will be done

on June

> 10th. So we will check in to the Mc house that

Tuesday

> evening and I may not get back on line to read emails until that

Friday,

> June 11th. And then on that Saturday I go and speak to a group of

> professionals about how we got the Universal Playground started

and what

> a difference it has made in not only Leah's life but other

children with

> disabilities. I'll have to find a scanner to scan a few photos

for you

> guys. I'm so proud of this playground. Leah could actually

bounce on a

> small teeter totter bouncer in her own seat because of the straps

> holding her in place and I could actually sit in another seat in

front

> of her to help her bounce. No sitting on moms lap. Yippee!

>

> Nerenhausen

> mom to Leah

[Guest guest]

Bethany:

There is a roller slide. It literally has rollers all the way down the

slide. It is wide enough for two people to go down side by side. Now that

Leah can actully sit up for a short time, we could do that slide together.

If your park is thinking of doing any upgrading, check in to this slide. It

feels so funny going down it. The rollers gently roll you down and no chance

of any fingers getting caught between the rollers.

Nerenhausen

mom to Leah

bethanycarol wrote:

> lisa,

>

> i hope leah has a smooth " routine " surgery. glad to hear that you

> are pleased with all of the doctors involved--that really makes a

> difference.

>

> and i would love to see pictures of the playground equipment. the

> slides are not always wide enough for adult hips! and how happy

> that must make leah feel, to be independent on the equipment

> herself! it sounds great.

>

> take care and i will keep leah in my thoughts/prayers during her

> surgery.

>

> bethany

> mom to brennan 7, palmer & anna grace (leighs) 4

>

>

> > Hi guys:

> >

> > Well just got back from Madison and they have determined what kind

> of

> > eye surgery Leah will have. Shouldn't be a too long of surgery

> and her

> > metabolic doctor decided that they will do another muscle biopsy

> at the

> > same time. And she will have new tubes put in too since she is

> under.

> > But the reason I'm writing is to say what a neat group of doctors

> we are

> > dealing with and no one is taking any chances with Leah's mito and

> they

> > are all trying to stay on top of that she will be the first

> surgery so

> > she doesn't fast that long and are very cautious about going under

> and

> > will red flag the information for the anthesologists. And they

> > appreciate all the information we are giving them on this

> situation. I

> > am going in to this surgery very relaxed and not worried. Is that

> > possible (?). I gave them the web site of the UMDF and they will

> check

> > into Dr. Cohen's piece. But just in case I will be printing out

> my own

> > copy and bring it with us to the next appointment. I'm not sure

> what

> > the muscle biopsy will be for. I was on the road back to Appleton

> when

> > my husband got the call about that they would want to do another

> one.

> > So she will have twin scars on each thigh. When I find out what

> they

> > are looking for will let you all know. Her surgery will be done

> on June

> > 10th. So we will check in to the Mc house that

> Tuesday

> > evening and I may not get back on line to read emails until that

> Friday,

> > June 11th. And then on that Saturday I go and speak to a group of

> > professionals about how we got the Universal Playground started

> and what

> > a difference it has made in not only Leah's life but other

> children with

> > disabilities. I'll have to find a scanner to scan a few photos

> for you

> > guys. I'm so proud of this playground. Leah could actually

> bounce on a

> > small teeter totter bouncer in her own seat because of the straps

> > holding her in place and I could actually sit in another seat in

> front

> > of her to help her bounce. No sitting on moms lap. Yippee!

> >

> > Nerenhausen

> > mom to Leah

>

>

> Please contact mito-owner with any problems or questions.

>