Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 I have a question that I hope someone can help with - my daughter has crohn's and has been on the SCD for 8 months now and is feeling better, but continues to have problems with inflammation in her rectum area. She had an abscess 8 months ago and had surgery to have it drained, but has never truly had the inflammation in that area go away. She is on remicade about every 7-8 weeks and that seems to help the swelling, but at about the 5-6 week the inflammation comes back and is very painful. Someone had told us to back off of the almond flour, so we did. She seemed to improve somewhat so we added back some almond flour in her baked goods. Does anyone else have any experience with rectum inflammation and if so what did you do to help it go away? Thanks so much for your help, D. B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2009 Report Share Posted November 16, 2009 There are several posts about Carlson's vitamin E suppositories. You can also get prescription hydrocortisone suppositories- I know I've used them for hemorrhoids in the past, but it would seem they would help with any inflammation. PJ > > I have a question that I hope someone can help with - my daughter has crohn's and has been on the SCD for 8 months now and is feeling better, but continues to have problems with inflammation in her rectum area. She had an abscess 8 months ago and had surgery to have it drained, but has never truly had the inflammation in that area go away. She is on remicade about every 7-8 weeks and that seems to help the swelling, but at about the 5-6 week the inflammation comes back and is very painful. Someone had told us to back off of the almond flour, so we did. She seemed to improve somewhat so we added back some almond flour in her baked goods. Does anyone else have any experience with rectum inflammation and if so what did you do to help it go away? > Thanks so much for your help, > D. B. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2009 Report Share Posted November 17, 2009 > I have a question that I hope someone can help with - my daughter has > crohn's and has been on the SCD for 8 months now and is feeling better, > but continues to have problems with inflammation in her rectum area. She > had an abscess 8 months ago and had surgery to have it drained, but has > never truly had the inflammation in that area go away. She is on > remicade about every 7-8 weeks and that seems to help the swelling, but > at about the 5-6 week the inflammation comes back and is very painful. > Someone had told us to back off of the almond flour, so we did. She > seemed to improve somewhat so we added back some almond flour in her > baked goods. Does anyone else have any experience with rectum > inflammation and if so what did you do to help it go away?> Thanks so much for your help,> D. B.>Yes, I've had this. Involvement of the rectum in the disease is typical of Crohn's (though doesn't happen to every last person who has the disease). I strongly suggest you look into her taking LDN (www.lowdosenatlrexone.com) and thus avoiding the the Remicade). LDN helps tremendously for Crohn's, in every way, and is an excellent companion to being on the diet.n-- Now available. A fine Christmas gift for cat lovers. Free shipping, free gift wrapping:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; free shipping in U.S.; reduced shipping elsewhere Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2009 Report Share Posted November 18, 2009 Does anyone else have any experience with rectum inflammation and if so what did you do to help it go away? Hi DB, My son had a rectal fistula that was healed after a year on SCD. For the irritation before it healed he used Calmoseptine which can be purchased on line at: www.calmoseptine.com or can be ordered through your drugstore. Hope this helps, Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2009 Report Share Posted November 18, 2009 n, Thanks so much for your help! I think we will look into the LDN - what is the difference between LDN and Remicade and the way it works? Do you know where I can go online to take information to her doctor on LDN? D.B. > > > I have a question that I hope someone can help with - my daughter has > > crohn's and has been on the SCD for 8 months now and is feeling better, > > but continues to have problems with inflammation in her rectum area. She > > had an abscess 8 months ago and had surgery to have it drained, but has > > never truly had the inflammation in that area go away. She is onremicade > > about every 7-8 weeks and that seems to help the swelling, butat about > > the 5-6 week the inflammation comes back and is very painful.Someone had > > told us to back off of the almond flour, so we did. Sheseemed to improve > > somewhat so we added back some almond flour in herbaked goods. Does > > anyone else have any experience with rectuminflammation and if so what > > did you do to help it go away? > > Thanks so much for your help, > > D. B. > > > > Yes, I've had this. Involvement of the rectum in the disease is typical of > Crohn's (though doesn't happen to every last person who has the disease). > I strongly suggest you look into her taking LDN > (www.lowdosenatlrexone.com) and thus avoiding the the Remicade). LDN helps > tremendously for Crohn's, in every way, and is an excellent companion to > being on the diet. > > n > > > > > -- > Now available. A fine Christmas gift for cat lovers. Free shipping, free > gift wrapping: > Confessions of a Cataholic: My Life With the 10 Cats Who Caused My > Addiction > by n Van Til > www.wordpowerpublishing.com ; free shipping in U.S.; reduced shipping > elsewhere > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2009 Report Share Posted November 18, 2009 > n,> Thanks so much for your help!> I think we will look into the LDN - what is the difference between LDN > and Remicade and the way it works? Do you know where I can go online to > take information to her doctor on LDN?Remicade (infliximab) is an artificial antibody that binds to TNFa (tumor necrosis factor alpha)-- which is a substance secreted by specific cells in the immune system and involved in systemic inflammation. So Remicade, through that binding process, suppresses inflammation, and in the process, pretty much suppresses the whole immune system -- which is why a lot of people can't tolerate it, and why it causes other complications. Low-Dose Naltrexone, taken before bed, blocks cells' opioid receptors for several hours (receptors in your cells that respond to dynorphins, enkephalins, endorphins, endomorphins and nociceptin). When that "blockade" wears off, the body responds by producing more endorphins and enkephalins (I'm not sure about the others; probably those too). And that nightly process also causes extra (new) opioid receptors to develop. Endorphins, particularly, play a large role in immune system health, and people with chronic auto-immune diseases universally have low levels of endorphins. So once your body starts producing more of them, the immune system begins to correct itself and you begin to feel much better (in my case, better than I probably have ever felt previously in my life, except in very early childhood) -- and that's why one of the first and major effects of LDN, for most people, is a marked reduction in fatigue. LDN doesn't suppress the immune system, it essentialy is a catalyst for pushing the body to regulate its own immune system. So the good news is, there are no bad long-term side effects. Initially some people don't sleep well during the part of the night when the blockade begins to wear off (I was one of those), and that can be frustrating, but as the body adjusts that normally improves, and for most people, in not too long. There can be some other initial reaction as the body adjusts to it (not entirely like die-off feels), but a lot of people don't have any negative reaction whatsoever. LDN is efficacious for a host of immune-system related ailments, and it works particularly well for Crohn's. There was a small Crohn's study done with it at Penn State -- very positive results -- which is now being followed up; and also a pediatric Crohn's study is currently taking place, I believe. You might want to start looking at www.lowdosenaltrexone.org, though parts of that site haven't been updated lately. There's also an LDN database of diseases/how people who have those conditions have responded to LDN. After that first site, your best bet is to simply Google low-dose naltrexone (and also LDN), and you'll run across the main sites.A small warning: a lot of doctors have never heard of LDN, even though what I've described has been known since the mid-1980s. It's a generic drug, and so inexpensive, and so the major drug companies aren't interested in it. Fortunately, my gastroenterologist -- who knew I am very drug sensitive and didn't do well on any Crohn's drug I tried -- was willing to let me try it (I'm the one who told him about it), which I started virtually at the same time as the diet. The diet is important with LDN, works well with it, because LDN can tend to cause yeast problems if one is eating breads, starches, sugars, etc. n> D.B.>> >>>> > I have a question that I hope someone can help with - my daughter has>> > crohn's and has been on the SCD for 8 months now and is feeling >> better,>> > but continues to have problems with inflammation in her rectum area. >> She>> > had an abscess 8 months ago and had surgery to have it drained, but >> has>> > never truly had the inflammation in that area go away. She is >> onremicade>> > about every 7-8 weeks and that seems to help the swelling, butat about>> > the 5-6 week the inflammation comes back and is very painful.Someone >> had>> > told us to back off of the almond flour, so we did. Sheseemed to >> improve>> > somewhat so we added back some almond flour in herbaked goods. Does>> > anyone else have any experience with rectuminflammation and if so what>> > did you do to help it go away?>> > Thanks so much for your help,>> > D. B.>> >>>>> Yes, I've had this. Involvement of the rectum in the disease is typical >> of>> Crohn's (though doesn't happen to every last person who has the >> disease).>> I strongly suggest you look into her taking LDN>> (www.lowdosenatlrexone.com) and thus avoiding the the Remicade). LDN >> helps>> tremendously for Crohn's, in every way, and is an excellent companion to>> being on the diet.>>>> n>>-- Now available. A fine Christmas gif for cat lovers. Signed copies, free shipping, free gift wrapping:Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addictionby n Van Tilwww.wordpowerpublishing.com ; free shipping in U.S.; reduced shipping elsewhere Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2009 Report Share Posted November 18, 2009 is LDN good to fight candida? Re: Re: question about inflammation in the rectum area > n, > Thanks so much for your help! > I think we will look into the LDN - what is the difference between LDN > and Remicade and the way it works? Do you know where I can go online to > take information to her doctor on LDN? Remicade (infliximab) is an artificial antibody that binds to TNFa (tumor necrosis factor alpha)-- which is a substance secreted by specific cells in the immune system and involved in systemic inflammation. So Remicade, through that binding process, suppresses inflammation, and in the process, pretty much suppresses the whole immune system -- which is why a lot of people can't tolerate it, and why it causes other complications. Low-Dose Naltrexone, taken before bed, blocks cells' opioid receptors for several hours (receptors in your cells that respond to dynorphins, enkephalins, endorphins, endomorphins and nociceptin). When that "blockade" wears off, the body responds by producing more endorphins and enkephalins (I'm not sure about the others; probably those too). And that nightly process also causes extra (new) opioid receptors to develop. Endorphins, particularly, play a large role in immune system health, and people with chronic auto-immune diseases universally have low levels of endorphins. So once your body starts producing more of them, the immune system begins to correct itself and you begin to feel much better (in my case, better than I probably have ever felt previously in my life, except in very early childhood) -- and that's why one of the first and major effects of LDN, for most people, is a marked reduction in fatigue. LDN doesn't suppress the immune system, it essentialy is a catalyst for pushing the body to regulate its own immune system. So the good news is, there are no bad long-term side effects. Initially some people don't sleep well during the part of the night when the blockade begins to wear off (I was one of those), and that can be frustrating, but as the body adjusts that normally improves, and for most people, in not too long. There can be some other initial reaction as the body adjusts to it (not entirely like die-off feels), but a lot of people don't have any negative reaction whatsoever. LDN is efficacious for a host of immune-system related ailments, and it works particularly well for Crohn's. There was a small Crohn's study done with it at Penn State -- very positive results -- which is now being followed up; and also a pediatric Crohn's study is currently taking place, I believe. You might want to start looking at www.lowdosenaltrexone.org, though parts of that site haven't been updated lately. There's also an LDN database of diseases/how people who have those conditions have responded to LDN. After that first site, your best bet is to simply Google low-dose naltrexone (and also LDN), and you'll run across the main sites. A small warning: a lot of doctors have never heard of LDN, even though what I've described has been known since the mid-1980s. It's a generic drug, and so inexpensive, and so the major drug companies aren't interested in it. Fortunately, my gastroenterologist -- who knew I am very drug sensitive and didn't do well on any Crohn's drug I tried -- was willing to let me try it (I'm the one who told him about it), which I started virtually at the same time as the diet. The diet is important with LDN, works well with it, because LDN can tend to cause yeast problems if one is eating breads, starches, sugars, etc. n > D.B. > > >> >> > I have a question that I hope someone can help with - my daughter has >> > crohn's and has been on the SCD for 8 months now and is feeling >> better, >> > but continues to have problems with inflammation in her rectum area. >> She >> > had an abscess 8 months ago and had surgery to have it drained, but >> has >> > never truly had the inflammation in that area go away. She is >> onremicade >> > about every 7-8 weeks and that seems to help the swelling, butat about >> > the 5-6 week the inflammation comes back and is very painful.Someone >> had >> > told us to back off of the almond flour, so we did. Sheseemed to >> improve >> > somewhat so we added back some almond flour in herbaked goods. Does >> > anyone else have any experience with rectuminflammation and if so what >> > did you do to help it go away? >> > Thanks so much for your help, >> > D. B. >> > >> >> Yes, I've had this. Involvement of the rectum in the disease is typical >> of >> Crohn's (though doesn't happen to every last person who has the >> disease). >> I strongly suggest you look into her taking LDN >> (www.lowdosenatlrexone.com) and thus avoiding the the Remicade). LDN >> helps >> tremendously for Crohn's, in every way, and is an excellent companion to >> being on the diet. >> >> n >> -- Now available. A fine Christmas gif for cat lovers. Signed copies, free shipping, free gift wrapping: Confessions of a Cataholic: My Life With the 10 Cats Who Caused My Addiction by n Van Til www.wordpowerpublishing.com ; free shipping in U.S.; reduced shipping elsewhere Quote Link to comment Share on other sites More sharing options...
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