Dumping syndrome?

[Guest guest]

I have never heard this term used before for, sorry. Isn't she still on only formula? If so there is probally nothing you would want to add to her diet, it may just make her other issues worse. One good way to help maintain her sugar is peanut butter, but with Zipporrah's swallowing issues I would not reccomend it.

Grace has always had issues with blood sugar, and they seem to be getting worse lately. She usually only gets night sweats, but you can tell if her sugar gets low during the day also. Grace will usually get very crabby, sometimes pale and shaky. We had to stop cornstarch at night because she is so constipated already, we did not want any more fuel to that fire. Dr. Cohen has put her on a diet high in complex carbs and fiber to help maintain her BS all day, then we are to add a night snack that includes chuncky peanut butter. We have only done this for a day or so now, and have noticed some results. She is only waking about once a night now instead of three to four.

I would call Dr.Whiteman and see if he has any ideas. Sometimes Dr.Cohen amazes me with tips on how to do things much easier. Best wishes for your little one. Hope you can help her feel better.

[Guest guest]

I wanted to get info on this issue. When I was at my ped.'s today she mentioned it sounded like Zipporrah was having dumping syndromes due to her extreme sweating palms and feet lately. Is this a hypoglycemia issue and what do I need to know, avoid, and do for her? She mentioned after she eats that Zipporrah may drop her sugars and to check them during sweating episodes. Any help appreciated.Darla: mommy to: Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, g-tube, disautonomia issues, hypotonia, heat/exercise intolerance, oxygen use, asthma... Zipporrah (7 mon.) Mito, SLE's, sensory issues, G-tube, asthma, mild tracheomalacia, tracheal ring, disautonomia issues, oxygen use.. and the gangGet more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Darla,

When I explained to my endo what symptoms I was having after

eating (about 2 hrs. after), she said it sounded like a dumping

syndrome. Basically it was not hypoglycemia (still not sure about

this one), but my blood pressure dropping when the food left my

stomache. I think it is called post prandial (something like this)

hypotension. I am not sure if this is what the doc meant or not for

you guys.

Dawn

[Guest guest]

Darla,

Before Will had his Nissen they explained dumping to us, a little. We

were told it was food rapidly leaving the stomach, and entering the

rest of the system before it is ready. I know some kids " dump " early

and you can actually see a fairly dramatic reaction fairly quickly

after they eat (1-2), pain and sudden BMs. Some kids dump late and

these kids have more problems with blood sugars, they will drop rapidly

and then spike back up.

We are pretty sure we have dealt with some degree of dumping for the

last 6 months or so. We were told to try and limit lots of sugars and

carbs (can't do to much because that's all he eats). High carbs are

one of the culprits for problems. I was told the way to check was to

monitor Blood sugar frequently for 2 hours after meals, and see what it

does. For now we are so sure Will is doing this I really don't want to

go through the routine of sticking him, so we'll wait till one of his

Drs decides to do it.

I hope that helps some. I'm definitely not an expert, but if you want

more mom's to ask about it there is a Fundo board that has a couple of

moms who are dealing with dumping.

fundofamilies@...

Will 9/7/01

[Guest guest]

has dumping syndrome, due to her fundoplication and the pyloric surgery done at

the same time, along with the dysautonomic features that she presents

with. In order to help with her

dumping, we feed her continually.

(She has a g-tube.) She is on

around the clock feeds of Alimentum and Compleat Pediatric at 50 ccs per hour

for 20 hours per day, plus whatever oral intake we can give her. In order to help to regulate her crazy

glucose levels, almost the entire time that she is off of the g-tube feedings we

let her “snack” on Cheerios, etc.

She doesn’t handle solids well—her body doesn’t digest them (part of the

dumping syndrome, where the food passes too quickly through her intestines) and

she doesn’t handle some complex foods, and some vegetables, fruits, and

sometimes dairy are verboten.

I hope

that I have helped a little.

-----Original

Message-----

From: albregra@...

Sent: Friday, May 21, 2004 3:13 AM

To: Mito

Subject: Re: Dumping

syndrome?

I have

never heard this term used before for, sorry. Isn't she still on only

formula? If so there is probally nothing you would want to add to her

diet, it may just make her other issues worse. One good way to

help maintain her sugar is peanut butter, but with Zipporrah's swallowing

issues I would not reccomend it.

Grace

has always had issues with blood sugar, and they seem to be getting worse

lately. She usually only gets night sweats, but you can tell if her sugar

gets low during the day also. Grace will usually get very crabby,

sometimes pale and shaky. We had to stop cornstarch at night because she

is so constipated already, we did not want any more fuel to that

fire. Dr. Cohen has put her on a diet high in complex carbs and fiber to

help maintain her BS all day, then we are to add a night snack that

includes chuncky peanut butter. We have only done this for a day or

so now, and have noticed some results. She is only waking about once a

night now instead of three to four.

I would

call Dr.Whiteman and see if he has any ideas. Sometimes Dr.Cohen amazes

me with tips on how to do things much easier. Best wishes for your little

one. Hope you can help her feel better.

Please contact

mito-owner with any problems or questions.