Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 Sorry I have no advice. All I can offer are thoughts and prayers for you and your little one. I hope you are able to help her, and she can regain some control. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 I am so sorry to hear Hala is not doing well. We all know only to well how this awful disease can rear it's ugly head. Please know that there are any people praying for all of you. God be with you, Kathy, grandma to Audrey, 33 mos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 I too have no advice. I am so sorry for Hala that she is suffering so much. It is so frustrating to just sit back and watch it. Have they tried IV fluid for a few days. Sometimes it seems to help (D10). I know has had crisis' and no one can figure it out. We put her on IV fluids for a few days and I think it it the sugar and the resting of the bowel that helps. If she isn't eating and drinking well, it would help that! My thoughts and prayers are with you and your family at this time, Dawn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 I am so sorry to hear your news our thoughts and prayers are with you always. and Kelli, Mito Complex1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Dear Muneera: Just writing to say I am so sorry to hear about your baby and her troubles. I'm a bit behind on reading emails but my heart breaks for you and your baby. I am hoping and praying this is a temporary crash for her and that her sight will return. I will pray for all of you, too. I don't have experience with that problem but wanted to offer support. Cindy (mom to Seth, 13 next week!!, Ben, 8, both with mito) Quote Link to comment Share on other sites More sharing options...
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