Guest guest Posted May 21, 2004 Report Share Posted May 21, 2004 I have been doing research this morning on the issue and found some helpful information. I think Zipporrah does display the symptoms of late gastric emptying and possibly even the early gastric dumping. I know one person on this list suggested that was a possibility for Zipporrah a month or so ago and mentioned how the slowness of the emptying caused problems when her child (and mine) lay on their stomachs and backs; they gag and/or vomit. The research I found said that if the stomach empties too fast you may see(during or just following the meal): nausea cramps vomiting belching headache diarrhea bloating shortness of breath (the bloating causes the stomach to press on the lungs.) If the stomach empties too slowly you may see (1-3 hrs. after a meal): weakness sweating dizziness shakiness hunger decreased consciousness difficulty concentrating To help your child you can: eat frequent small meals low carbohydrate intake high fat and protein intake drink liquids between meals NOT during them I am doing a trial blood sugar check for the next few hours to see if it shows anything. The had a feeding and during it was 127. then at the end she had dry heaves and very sweaty so needed to use burp tube. She had lots of burp bubbles with tons of phlegm and liquid. Will update later if anything significant happens. Darla > has dumping syndrome, due to her fundoplication and the pyloric > surgery done at the same time, along with the dysautonomic features that she > presents with. In order to help with her dumping, we feed her continually. > (She has a g-tube.) She is on around the clock feeds of Alimentum and > Compleat Pediatric at 50 ccs per hour for 20 hours per day, plus whatever > oral intake we can give her. In order to help to regulate her crazy glucose > levels, almost the entire time that she is off of the g-tube feedings we let > her " snack " on Cheerios, etc. She doesn't handle solids well-her body doesn > 't digest them (part of the dumping syndrome, where the food passes too > quickly through her intestines) and she doesn't handle some complex foods, > and some vegetables, fruits, and sometimes dairy are verboten. > > I hope that I have helped a little. > > > > Re: Dumping syndrome? > > I have never heard this term used before for, sorry. Isn't she still on > only formula? If so there is probally nothing you would want to add to her > diet, it may just make her other issues worse. One good way to help maintain > her sugar is peanut butter, but with Zipporrah's swallowing issues I would > not reccomend it. > Grace has always had issues with blood sugar, and they seem to be getting > worse lately. She usually only gets night sweats, but you can tell if her > sugar gets low during the day also. Grace will usually get very crabby, > sometimes pale and shaky. We had to stop cornstarch at night because she is > so constipated already, we did not want any more fuel to that fire. Dr. > Cohen has put her on a diet high in complex carbs and fiber to help maintain > her BS all day, then we are to add a night snack that includes chuncky > peanut butter. We have only done this for a day or so now, and have noticed > some results. She is only waking about once a night now instead of three to > four. > I would call Dr.Whiteman and see if he has any ideas. Sometimes Dr.Cohen > amazes me with tips on how to do things much easier. Best wishes for your > little one. Hope you can help her feel better. > > > > Please contact mito-owner with any problems or questions. > > > > _____ > > Quote Link to comment Share on other sites More sharing options...
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