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Tamara,

When we had a c-pap/bi-pap for Billy there was an in line water

heater which added moisture and raised the temp. of the air. Do you

have one?

Billy could not deal with the bi-pap or c-pap and does have a trach

now. He is on a vent at night with nightly readings of 99-100%.

His day time readings are 90-94% all on room air (in Denver, so

that's about our normal).

Twana

He hates the C-Pap and everything about it, mainly the fit and the

cold air.

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  • 1 year later...

Hi Laurie,

Sorry to hear that you have to increase the pressure on your CPAP.

That is a really BIG increase at one time. I hope you are able to

tolerate it. Too bad you can't use the same mask as before. If I

remember correctly you had a really comfortable one. I hope this mask

is comfortable for you and that everything goes well. Thinking of you....

Hugs,

Ann-Marie

At 05:35 PM 9/21/2005, you wrote:

>Hi

>

>I just found out that they will be increasing my CPAP pressure from 11

>to 17. Do any of you have a pressure set this high or higher. I don't

>even know how high the pressures can be set. I do know that I had to

>pick out a mask that could be tightened enough to withstand the

>pressure.

>

>laurie

>

>

>Medical advice, information, opinions, data and statements contained

>herein are not necessarily those of the list moderators. The author

>of this e mail is entirely responsible for its content. List members

>are reminded of their responsibility to evaluate the content of the

>postings and consult with their physicians regarding changes in

>their own treatment.

>

>Personal attacks are not permitted on the list and anyone who sends

>one is automatically moderated or removed depending on the severity

>of the attack.

>

>

>

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>

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Ann-Marie

Thanks for the " thinking of you " . They set my CPAP (actually a C-flex)

so the pressure goes down for exhaling. I was able to wear it all

night by starting out with the ramping. My new mask is defective, so I

had to use the old one which doesn't maintain a good seal, but only

woke up once due to the CPAP last night and that was when I turned one

too many times and pulled the hosing from the CPAP.

laurie

>

> Hi Laurie,

>

> Sorry to hear that you have to increase the pressure on your CPAP.

> That is a really BIG increase at one time. I hope you are able to

> tolerate it. Too bad you can't use the same mask as before. If I

> remember correctly you had a really comfortable one. I hope this mask

> is comfortable for you and that everything goes well. Thinking of you....

>

> Hugs,

> Ann-Marie

>

>

>

>

>

>

>

> At 05:35 PM 9/21/2005, you wrote:

>

> >Hi

> >

> >I just found out that they will be increasing my CPAP pressure from 11

> >to 17. Do any of you have a pressure set this high or higher. I don't

> >even know how high the pressures can be set. I do know that I had to

> >pick out a mask that could be tightened enough to withstand the

> >pressure.

> >

> >laurie

> >

> >

> >Medical advice, information, opinions, data and statements contained

> >herein are not necessarily those of the list moderators. The author

> >of this e mail is entirely responsible for its content. List members

> >are reminded of their responsibility to evaluate the content of the

> >postings and consult with their physicians regarding changes in

> >their own treatment.

> >

> >Personal attacks are not permitted on the list and anyone who sends

> >one is automatically moderated or removed depending on the severity

> >of the attack.

> >

> >

> >

> >

> >

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Uh oh, spaghetti syndrome. Wasn't that Kristie's name for the nighttime tube

tangle?

B

> My new mask is defective, so I

> had to use the old one which doesn't maintain a good seal, but only

> woke up once due to the CPAP last night and that was when I turned one

> too many times and pulled the hosing from the CPAP.

>

> laurie

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Barbara

I'm not sure, but it sounds like something Kristie would say.

I don't know how people do it with several tubes for different things. Yikes!!!

laurie

> Uh oh, spaghetti syndrome. Wasn't that Kristie's name for the nighttime tube

> tangle?

>

> B

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