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Thank you all for your wonderful support. Your replies were very

helpful and I am feeling a lot better about things. I deal with it

really well for most of the time, but then every month or two I have

a day or two of feeling sorry for myself! I feel bad because since

Lily is so young, I have no idea what she must be going through

since she can't communicate it to me. You guys are great! I see that

a few of you are from Washington state, any suggestions of better

mito doctors? I am currently driving down to Portland to the Oregon

Health and Sciences University. I like it, but is there someone

better around the Tacoma area? Or does anyone else go to OHSU?

Thanks again for your support, I hope someday I can give advice to

some of you too!!

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