Questions/Whitney

[Guest guest]

Do you wonder how much the jaundice had to do with all this?

Caden's number only got to 20 and they told us it wasn't serious

until it was 28-30, but who knows. We read an atricle the other day

that talked about how docs aren't taking jaundice as seriously as

they need to these days. My family talks about it all the time

because they sent us home for 2 days and then we had to go back in

for the jaundice and dehydration from the vomiting/reflux.

Our guys sound so much alike. Caden was never FTT, but he could

have been w/o his meds. Was your biopsy done fresh or frozen? Your

reply gives me hope that he may still hold his head up and sit one

day. We go to PT twice a week, OT once a week, and are evaluated by

the speech therapist every month. Yes, we have been told he looks

like the Gerber baby!!!

Have you, yourself, had any testing done? Was 's disease a

fluke? I know you say you have a healthy daughter and I can't

imagine how thankful you are for that. I want a big family and

always have, but I don't think we could survive this nightmare with

another child. We will have testing done before we consider having

any more children and hopefully we will be able to have more one day.

Yes, some days are easier than others. Yesterday was good news, but

I hate the fear of the unknown. I just want to know what we are up

against and what we need to do for our little guy to help him.

Thank you for the encouraging words and sounds like you are doing a

great job too!!

Vicki, , & Caden