Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Asenath is still battling "something" and she is having a hard time with it. We are unsure if it is the asthma/O2 issues, the increased steroid causing higher blood sugar, higher blood pressure, extra bloating issues, tummy issues, or if it is something related to a virus as we are having a sinus type thingy going around the family. It could be a combination as well. But I am concerned as she is constantly whining, cuddling me, crying, trying to sleep all the time, not eating hardly at all, breathing harder, coughing/asthma issues, and is real upset all the time and not wanting to do much. I have talked with the docs (several) and no-one has any suggestions as to what I should do. I think they are hoping it passes, but I worry that not doing something to help will result in further SLE's and don't like to see her suffer. Please pray this passes quickly. We go to Mayo tomorrow to see the urologist and I am sure this will NOT help her with feeling well! I may stop to see Dr. Whiteman (at least his helpers) to see if he has any suggestions. Thanks for your prayers. Zipporrah also will see an ENT to see if oral feeds are safe. Darla: mommy to: Asenath (4) Mito, CNS Vasculitis, strokes, migraines, seizures, g-tube, disautonomia issues, hypotonia, heat/exercise intolerance, oxygen use, asthma... Zipporrah (7 mon.) Mito, SLE's, sensory issues, G-tube, asthma, mild tracheomalacia, tracheal ring, disautonomia issues...Luke (16 on Thurs.) SLE affecting mouth/eyes, eye issues, sensory issues, migraines, etc. Leah, Rachael, Isaac, Tirzah, Kezia, Marquis Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
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