Re: Re: New Member-BRMS

[Guest guest]

Hi Connie,

Yes, I looked up the site last night and basically they

help people with no insurance. I have health insurance,

but they are dening my claim. Its very frustrating! But

thanks for the site. Angie (Ohio)

--- Connie Griffis conaugusta@...> wrote:

> Hi Angie,

>

> Nice to meet you. I was reading your posting and was

> wondering if you had tried the site NeedyMeds. When

> insurance won't pay for a product sometimes you can

> get it through this site. Just a thought...Connie fm

> Florida

>

> --- cytochic tagildow@...> wrote:

>

> > --Hi Tracie,

> > Thanks for emailing back. Its so nice to talk to

> > someone about my

> > condition that doesn't just have a blank look on

> > their face. I will

> > check out the web site you gave me. I tried last

> > year to appeal the

> > insurance and even though I had taken all the other

> > medication and

> > they no longer worked, they still denied me. I took

> > a loan out to

> > pay for three months of humira and it worked

> > wonderfully but due to

> > lack of funds I had to quit and within a year I have

> > gotten worse.

> > My doc orginally wanted me to try remicade but that

> > scares me

> > because he said you can have severe allergic

> > reactions. I hope it

> > works for you. It sound like it is. I'll keep

> > fighting insurance.

> > I can't keep taking loans out. Thanks for

> > listening. Angie

> > - In Neurosarcoidosis , tiodaat@...

> > wrote:

> > >

> > > Hi angie,

> > >

> > > I'm sorry that you haven't had much of a response

> > today. Right

> > now, all of

> > > the moderator's and our owners are in flare, so

> > we're doing a " tag-

> > team "

> > > getting the emails answered.

> > >

> > > You said your MD is trying to get approval for

> > Humira. If he will

> > document

> > > that you've been on the Methotrexate, Imuran, and

> > Prednisone--

> > along with

> > > whatever else you've been on, and that the disease

> > is still

> > progressing-- that

> > > should get you thru the Appeals process.

> > >

> > > Humira, Enbrel and Remicade are all showing some

> > progress with

> > slowing the

> > > disease process. Here is a good site that talks

> > about the BRM's

> > (Biological

> > > Response Modifiers) and what the stats are finally

> > beginning to

> > show.

> > >

> > >

> >

>

http://www.medicinenet.com/script/main/art.asp?articlekey=40225

> > >

> > > I have been on Remicade now for about 15 months

> > out of the last 2

> > yrs. I

> > > went thru the clinical trial and had received the

> > drug. The

> > primary side effect

> > > has been an increasing exhaustion-fatigue with

> > each infusion. It

> > now takes me

> > > the better part of a week to recover following

> > each infusion (I

> > get them every

> > > 4 wks).

> > >

> > > Darlene, our co-owner of the group- is in serious

> > condition with

> > > Histoplasmosis-- which is basically systemic

> > candidis (yeast)

> > infection throughout her

> > > body. This does concern me, as I am getting yeast

> > infections

> > following each

> > > infusion-- so it's Diflucan chaser time for me.

> > >

> > > The upside is that my brain function is higher, my

> > lungs are

> > working a bit

> > > better and I'm not having to be on oxygen 24/7 (I

> > still have to

> > have it at

> > > night, and if I go up in elevation).

> > >

> > > With any of the BRM's, you have to take

> > Methotrexate or Prednisone

> > with it,

> > > so that you don't build anti-bodies against the

> > BRM. You also

> > must take Folic

> > > Acid so that your B12 does not end up depleted.

> > >

> > > For me, it's been a cocktail of Remicade,

> > Methotrexate and

> > Plaquenil that has

> > > me maintained.

> > >

> > > I have multi-system sarc, eyes, sinuses, lungs,

> > lymphs, bones and

> > brain.

> > > Prednisone was basically feeding my sarc, and the

> > side effects

> > were no longer

> > > acceptable.

> > >

> > > Anyway, know that you are with a group of sarcies,

> > and that at 410

> > members,

> > > we have a wealth of information. Our ARCHIVES and

> > our LINKS have

> > sites and

> > > references that you can print out and take to your

> > MD's.

> > >

> > > Also, know that we are here for you, and even if

> > it takes a day or

> > so -

> > > someone will get back to you and help with your

> > questions or

> > concerns.

> > >

> > > Sincerely,

> > > Tracie

> > > NS Co-owner/moderator

> > >

> >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>