CONNIE

[Guest guest]

Connie, Have a safe and wondeful trip. Be sure to let us know what a great

time you had... I love to hear about all of your travels.

hugs

[Guest guest]

Connie, Have a safe and wondeful trip. Be sure to let us know what a great

time you had... I love to hear about all of your travels.

hugs

[Guest guest]

If it is any consolation... I have 2 daughters born with bilateral clubfoot.

One walked at 17 months and the other walked at 21 months.

www.pediatric-orthopedic-foundation.org

[Guest guest]

If it is any consolation... I have 2 daughters born with bilateral clubfoot.

One walked at 17 months and the other walked at 21 months.

www.pediatric-orthopedic-foundation.org

[Guest guest]

I would be concerned not because she isn't walking yet; but because

her heel is tight still. 11 casts is pretty much the maximum number

the Ponseti method should require.......and if the Dr is saying her

heel is still tight that is a sign something more should probably be

done to address this. Standing on the toes and ball of the foot is

a sign that the heel cannot properly be planted on the floor. My

daughters heels were also tight after being treated by several Drs.

Hers started out much less tight than you are describing. Grace

could walk (started at 23 months)and I could press her foot flat,

but it did not " work itself out " . Often it is the opposite and the

tendon gets tighter and tighter as the legs continue to grow. An

already too short achilles tendon pulls tighter and tighter and

cannot keep up with the growth of the leg bones and muscles. My

daughter just had a posterior release to " fix " multiple problems

that resulted from taking the wait and see approach. My

understanding is that a repeat tenotomy should not just be done to

correct the heal. It could be that the casting was not sufficient

before the first tenotomy was done. I would think probably at least

one cast should be applied to get the foot into the proper position

before another tenotomy was performed. I would first question your

Dr to be positive she/he is following the method to a T. There are

a few signs that could be questionable.......One being that your

daughters hours in the DBB are already reduced to 13/14 hours a day

before she has began walking.....exspecially if the Dr has noticed a

tight heel. Do you mind sharing who the Dr is? Also did your child

wear the DBB full time 24/7 for any length of time?

> Hi everyone

>

> My daughter is now 9 1/2 months old with cf left. She had 11

casts

> altogether, a tenotomy and is now in dbb about 13/14 hours. She

> crawls really well and has been doing for a few months and really

gets

> about in the bar but now she has started to stand and support

> herself. She will not put pressure on her leg/foot and only uses

her

> toes and ball of foot to stand on. Her big toe sticks up a bit.

She

> has a high heel anyway but consultant says she should 'walk it

out' or

> possibly need another tenotomy. (does this procedure bring down

the

> heel)?

>

> Anyway my question really is do any of you guys have tots that

have

> had problems when starting to walk? I expected her to just get up

and

> walk normally - am I asking too much here?

>

> Please advise - I don't go back to hospital until July and was

> thinking of bringing appt forward or maybe I just sit and wait.

>

> Thanks

> Regards

> Adele

>

> Mum to Connie 4/8/04

[Guest guest]

I would be concerned not because she isn't walking yet; but because

her heel is tight still. 11 casts is pretty much the maximum number

the Ponseti method should require.......and if the Dr is saying her

heel is still tight that is a sign something more should probably be

done to address this. Standing on the toes and ball of the foot is

a sign that the heel cannot properly be planted on the floor. My

daughters heels were also tight after being treated by several Drs.

Hers started out much less tight than you are describing. Grace

could walk (started at 23 months)and I could press her foot flat,

but it did not " work itself out " . Often it is the opposite and the

tendon gets tighter and tighter as the legs continue to grow. An

already too short achilles tendon pulls tighter and tighter and

cannot keep up with the growth of the leg bones and muscles. My

daughter just had a posterior release to " fix " multiple problems

that resulted from taking the wait and see approach. My

understanding is that a repeat tenotomy should not just be done to

correct the heal. It could be that the casting was not sufficient

before the first tenotomy was done. I would think probably at least

one cast should be applied to get the foot into the proper position

before another tenotomy was performed. I would first question your

Dr to be positive she/he is following the method to a T. There are

a few signs that could be questionable.......One being that your

daughters hours in the DBB are already reduced to 13/14 hours a day

before she has began walking.....exspecially if the Dr has noticed a

tight heel. Do you mind sharing who the Dr is? Also did your child

wear the DBB full time 24/7 for any length of time?

> Hi everyone

>

> My daughter is now 9 1/2 months old with cf left. She had 11

casts

> altogether, a tenotomy and is now in dbb about 13/14 hours. She

> crawls really well and has been doing for a few months and really

gets

> about in the bar but now she has started to stand and support

> herself. She will not put pressure on her leg/foot and only uses

her

> toes and ball of foot to stand on. Her big toe sticks up a bit.

She

> has a high heel anyway but consultant says she should 'walk it

out' or

> possibly need another tenotomy. (does this procedure bring down

the

> heel)?

>

> Anyway my question really is do any of you guys have tots that

have

> had problems when starting to walk? I expected her to just get up

and

> walk normally - am I asking too much here?

>

> Please advise - I don't go back to hospital until July and was

> thinking of bringing appt forward or maybe I just sit and wait.

>

> Thanks

> Regards

> Adele

>

> Mum to Connie 4/8/04

[Guest guest]

Hi

Thanks for that. Yes, Connie wore the dbb for 23/7 for 3 months.

The consultant (Dr ) from Bolton UK, advised me that I

needed to put her in the boots for bed and nap time which is about

14 hours in total. I saw Niamoi Davies from Manchester (a Ponsetti

recommended Dr) and she was the one who told me to wait. I then

went back to our consultant at Bolton. I wonder if I sent Dr

Ponsetti some pics he would advise me some more?

Was Grace standing for a while before she started to walk?

I am thinking I might try and bring our July appt forwards to asap.

Write soon

Worried Adele

> I would be concerned not because she isn't walking yet; but

because

> her heel is tight still. 11 casts is pretty much the maximum

number

> the Ponseti method should require.......and if the Dr is saying

her

> heel is still tight that is a sign something more should probably

be

> done to address this. Standing on the toes and ball of the foot

is

> a sign that the heel cannot properly be planted on the floor. My

> daughters heels were also tight after being treated by several

Drs.

> Hers started out much less tight than you are describing. Grace

> could walk (started at 23 months)and I could press her foot flat,

> but it did not " work itself out " . Often it is the opposite and

the

> tendon gets tighter and tighter as the legs continue to grow. An

> already too short achilles tendon pulls tighter and tighter and

> cannot keep up with the growth of the leg bones and muscles. My

> daughter just had a posterior release to " fix " multiple problems

> that resulted from taking the wait and see approach. My

> understanding is that a repeat tenotomy should not just be done to

> correct the heal. It could be that the casting was not sufficient

> before the first tenotomy was done. I would think probably at

least

> one cast should be applied to get the foot into the proper

position

> before another tenotomy was performed. I would first question

your

> Dr to be positive she/he is following the method to a T. There

are

> a few signs that could be questionable.......One being that your

> daughters hours in the DBB are already reduced to 13/14 hours a

day

> before she has began walking.....exspecially if the Dr has noticed

a

> tight heel. Do you mind sharing who the Dr is? Also did your

child

> wear the DBB full time 24/7 for any length of time?

> > Hi everyone

> >

> > My daughter is now 9 1/2 months old with cf left. She had 11

> casts

> > altogether, a tenotomy and is now in dbb about 13/14 hours.

She

> > crawls really well and has been doing for a few months and

really

> gets

> > about in the bar but now she has started to stand and support

> > herself. She will not put pressure on her leg/foot and only

uses

> her

> > toes and ball of foot to stand on. Her big toe sticks up a bit.

> She

> > has a high heel anyway but consultant says she should 'walk it

> out' or

> > possibly need another tenotomy. (does this procedure bring down

> the

> > heel)?

> >

> > Anyway my question really is do any of you guys have tots that

> have

> > had problems when starting to walk? I expected her to just get

up

> and

> > walk normally - am I asking too much here?

> >

> > Please advise - I don't go back to hospital until July and was

> > thinking of bringing appt forward or maybe I just sit and wait.

> >

> > Thanks

> > Regards

> > Adele

> >

> > Mum to Connie 4/8/04

[Guest guest]

Hi

Thanks for that. Yes, Connie wore the dbb for 23/7 for 3 months.

The consultant (Dr ) from Bolton UK, advised me that I

needed to put her in the boots for bed and nap time which is about

14 hours in total. I saw Niamoi Davies from Manchester (a Ponsetti

recommended Dr) and she was the one who told me to wait. I then

went back to our consultant at Bolton. I wonder if I sent Dr

Ponsetti some pics he would advise me some more?

Was Grace standing for a while before she started to walk?

I am thinking I might try and bring our July appt forwards to asap.

Write soon

Worried Adele

> I would be concerned not because she isn't walking yet; but

because

> her heel is tight still. 11 casts is pretty much the maximum

number

> the Ponseti method should require.......and if the Dr is saying

her

> heel is still tight that is a sign something more should probably

be

> done to address this. Standing on the toes and ball of the foot

is

> a sign that the heel cannot properly be planted on the floor. My

> daughters heels were also tight after being treated by several

Drs.

> Hers started out much less tight than you are describing. Grace

> could walk (started at 23 months)and I could press her foot flat,

> but it did not " work itself out " . Often it is the opposite and

the

> tendon gets tighter and tighter as the legs continue to grow. An

> already too short achilles tendon pulls tighter and tighter and

> cannot keep up with the growth of the leg bones and muscles. My

> daughter just had a posterior release to " fix " multiple problems

> that resulted from taking the wait and see approach. My

> understanding is that a repeat tenotomy should not just be done to

> correct the heal. It could be that the casting was not sufficient

> before the first tenotomy was done. I would think probably at

least

> one cast should be applied to get the foot into the proper

position

> before another tenotomy was performed. I would first question

your

> Dr to be positive she/he is following the method to a T. There

are

> a few signs that could be questionable.......One being that your

> daughters hours in the DBB are already reduced to 13/14 hours a

day

> before she has began walking.....exspecially if the Dr has noticed

a

> tight heel. Do you mind sharing who the Dr is? Also did your

child

> wear the DBB full time 24/7 for any length of time?

> > Hi everyone

> >

> > My daughter is now 9 1/2 months old with cf left. She had 11

> casts

> > altogether, a tenotomy and is now in dbb about 13/14 hours.

She

> > crawls really well and has been doing for a few months and

really

> gets

> > about in the bar but now she has started to stand and support

> > herself. She will not put pressure on her leg/foot and only

uses

> her

> > toes and ball of foot to stand on. Her big toe sticks up a bit.

> She

> > has a high heel anyway but consultant says she should 'walk it

> out' or

> > possibly need another tenotomy. (does this procedure bring down

> the

> > heel)?

> >

> > Anyway my question really is do any of you guys have tots that

> have

> > had problems when starting to walk? I expected her to just get

up

> and

> > walk normally - am I asking too much here?

> >

> > Please advise - I don't go back to hospital until July and was

> > thinking of bringing appt forward or maybe I just sit and wait.

> >

> > Thanks

> > Regards

> > Adele

> >

> > Mum to Connie 4/8/04

[Guest guest]

That is good that your/Connies Dr seems to be following the method

very well. I forgot to ask you if you could get Connies foot flat

when you apply pressure, how is the dorsiflexion? If you can get it

flat and her dorsiflexion is good then Maybe since she has

unilateral clubfoot she is naturally favoring the other(stronger)

leg....it could be stronger since the clubfoot has been casted. I

dont want to make it sound like its definetly what I said or a

problem. I just keep looking back at my daughters situation and

thinking that maybe if something had been done when I first noticed

her tight heels.........that maybe we could have avoided the

surgery. From what I understand it is fairly common and easy to

correct at a young age. Oh, and yes Grace did walk holding on for a

long time before she let go. She always army crawled too. She was 10

weeks premature so I was told to adjust her age back 2 months....so

I should say she walked at 21 mos. I think she pulled up to a stand

around 10 mos and cruised until she walked. She used those push

walkers for a long time.

I dont think it hurts to ask for an earlier appointment.

Exspecially if you feel something is not right. The worst they

would say is wait until July and I dont think the problem, if there

is one would drastically change by then. Perhaps the Dr is hoping it

will improve some over the next month. Im sure Dr Ponseti would

advise you if you sent pictures....or even Dr Herzenberg.

> Hi

> Thanks for that. Yes, Connie wore the dbb for 23/7 for 3 months.

> The consultant (Dr ) from Bolton UK, advised me that I

> needed to put her in the boots for bed and nap time which is about

> 14 hours in total. I saw Niamoi Davies from Manchester (a

Ponsetti

> recommended Dr) and she was the one who told me to wait. I then

> went back to our consultant at Bolton. I wonder if I sent Dr

> Ponsetti some pics he would advise me some more?

>

> Was Grace standing for a while before she started to walk?

>

> I am thinking I might try and bring our July appt forwards to asap.

>

> Write soon

>

> Worried Adele

>

>

>

>

>

> > I would be concerned not because she isn't walking yet; but

> because

> > her heel is tight still. 11 casts is pretty much the maximum

> number

> > the Ponseti method should require.......and if the Dr is saying

> her

> > heel is still tight that is a sign something more should

probably

> be

> > done to address this. Standing on the toes and ball of the foot

> is

> > a sign that the heel cannot properly be planted on the floor.

My

> > daughters heels were also tight after being treated by several

> Drs.

> > Hers started out much less tight than you are describing. Grace

> > could walk (started at 23 months)and I could press her foot

flat,

> > but it did not " work itself out " . Often it is the opposite and

> the

> > tendon gets tighter and tighter as the legs continue to grow. An

> > already too short achilles tendon pulls tighter and tighter and

> > cannot keep up with the growth of the leg bones and muscles. My

> > daughter just had a posterior release to " fix " multiple problems

> > that resulted from taking the wait and see approach. My

> > understanding is that a repeat tenotomy should not just be done

to

> > correct the heal. It could be that the casting was not

sufficient

> > before the first tenotomy was done. I would think probably at

> least

> > one cast should be applied to get the foot into the proper

> position

> > before another tenotomy was performed. I would first question

> your

> > Dr to be positive she/he is following the method to a T. There

> are

> > a few signs that could be questionable.......One being that your

> > daughters hours in the DBB are already reduced to 13/14 hours a

> day

> > before she has began walking.....exspecially if the Dr has

noticed

> a

> > tight heel. Do you mind sharing who the Dr is? Also did your

> child

> > wear the DBB full time 24/7 for any length of time?

> > > Hi everyone

> > >

> > > My daughter is now 9 1/2 months old with cf left. She had 11

> > casts

> > > altogether, a tenotomy and is now in dbb about 13/14 hours.

> She

> > > crawls really well and has been doing for a few months and

> really

> > gets

> > > about in the bar but now she has started to stand and support

> > > herself. She will not put pressure on her leg/foot and only

> uses

> > her

> > > toes and ball of foot to stand on. Her big toe sticks up a

bit.

> > She

> > > has a high heel anyway but consultant says she should 'walk it

> > out' or

> > > possibly need another tenotomy. (does this procedure bring

down

> > the

> > > heel)?

> > >

> > > Anyway my question really is do any of you guys have tots that

> > have

> > > had problems when starting to walk? I expected her to just

get

> up

> > and

> > > walk normally - am I asking too much here?

> > >

> > > Please advise - I don't go back to hospital until July and was

> > > thinking of bringing appt forward or maybe I just sit and wait.

> > >

> > > Thanks

> > > Regards

> > > Adele

> > >

> > > Mum to Connie 4/8/04

[Guest guest]

That is good that your/Connies Dr seems to be following the method

very well. I forgot to ask you if you could get Connies foot flat

when you apply pressure, how is the dorsiflexion? If you can get it

flat and her dorsiflexion is good then Maybe since she has

unilateral clubfoot she is naturally favoring the other(stronger)

leg....it could be stronger since the clubfoot has been casted. I

dont want to make it sound like its definetly what I said or a

problem. I just keep looking back at my daughters situation and

thinking that maybe if something had been done when I first noticed

her tight heels.........that maybe we could have avoided the

surgery. From what I understand it is fairly common and easy to

correct at a young age. Oh, and yes Grace did walk holding on for a

long time before she let go. She always army crawled too. She was 10

weeks premature so I was told to adjust her age back 2 months....so

I should say she walked at 21 mos. I think she pulled up to a stand

around 10 mos and cruised until she walked. She used those push

walkers for a long time.

I dont think it hurts to ask for an earlier appointment.

Exspecially if you feel something is not right. The worst they

would say is wait until July and I dont think the problem, if there

is one would drastically change by then. Perhaps the Dr is hoping it

will improve some over the next month. Im sure Dr Ponseti would

advise you if you sent pictures....or even Dr Herzenberg.

> Hi

> Thanks for that. Yes, Connie wore the dbb for 23/7 for 3 months.

> The consultant (Dr ) from Bolton UK, advised me that I

> needed to put her in the boots for bed and nap time which is about

> 14 hours in total. I saw Niamoi Davies from Manchester (a

Ponsetti

> recommended Dr) and she was the one who told me to wait. I then

> went back to our consultant at Bolton. I wonder if I sent Dr

> Ponsetti some pics he would advise me some more?

>

> Was Grace standing for a while before she started to walk?

>

> I am thinking I might try and bring our July appt forwards to asap.

>

> Write soon

>

> Worried Adele

>

>

>

>

>

> > I would be concerned not because she isn't walking yet; but

> because

> > her heel is tight still. 11 casts is pretty much the maximum

> number

> > the Ponseti method should require.......and if the Dr is saying

> her

> > heel is still tight that is a sign something more should

probably

> be

> > done to address this. Standing on the toes and ball of the foot

> is

> > a sign that the heel cannot properly be planted on the floor.

My

> > daughters heels were also tight after being treated by several

> Drs.

> > Hers started out much less tight than you are describing. Grace

> > could walk (started at 23 months)and I could press her foot

flat,

> > but it did not " work itself out " . Often it is the opposite and

> the

> > tendon gets tighter and tighter as the legs continue to grow. An

> > already too short achilles tendon pulls tighter and tighter and

> > cannot keep up with the growth of the leg bones and muscles. My

> > daughter just had a posterior release to " fix " multiple problems

> > that resulted from taking the wait and see approach. My

> > understanding is that a repeat tenotomy should not just be done

to

> > correct the heal. It could be that the casting was not

sufficient

> > before the first tenotomy was done. I would think probably at

> least

> > one cast should be applied to get the foot into the proper

> position

> > before another tenotomy was performed. I would first question

> your

> > Dr to be positive she/he is following the method to a T. There

> are

> > a few signs that could be questionable.......One being that your

> > daughters hours in the DBB are already reduced to 13/14 hours a

> day

> > before she has began walking.....exspecially if the Dr has

noticed

> a

> > tight heel. Do you mind sharing who the Dr is? Also did your

> child

> > wear the DBB full time 24/7 for any length of time?

> > > Hi everyone

> > >

> > > My daughter is now 9 1/2 months old with cf left. She had 11

> > casts

> > > altogether, a tenotomy and is now in dbb about 13/14 hours.

> She

> > > crawls really well and has been doing for a few months and

> really

> > gets

> > > about in the bar but now she has started to stand and support

> > > herself. She will not put pressure on her leg/foot and only

> uses

> > her

> > > toes and ball of foot to stand on. Her big toe sticks up a

bit.

> > She

> > > has a high heel anyway but consultant says she should 'walk it

> > out' or

> > > possibly need another tenotomy. (does this procedure bring

down

> > the

> > > heel)?

> > >

> > > Anyway my question really is do any of you guys have tots that

> > have

> > > had problems when starting to walk? I expected her to just

get

> up

> > and

> > > walk normally - am I asking too much here?

> > >

> > > Please advise - I don't go back to hospital until July and was

> > > thinking of bringing appt forward or maybe I just sit and wait.

> > >

> > > Thanks

> > > Regards

> > > Adele

> > >

> > > Mum to Connie 4/8/04

[Guest guest]

CONNIE DEAR I DID KNOW THATS.WELL I LEARN SOMRTHING NEW ABOUT

GRITS EVERYDAY......LOL...QUINT

[Guest guest]

GRITS--versatile, nutritious & delicious!

Ramblin' Rose

Moderator

From: sarcdogg@...Reply-To: Neurosarcoidosis To: NEUROSARCOIDOSIS (AT) YAHOOGROUPS (DOT) COMSubject: CONNIEDate: Thu, 17 Aug 2006 13:20:24 -0400

CONNIE DEAR I DID KNOW THATS.WELL I LEARN SOMRTHING NEW ABOUT GRITS EVERYDAY......LOL...QUINT

Windows Live Spaces is here! It’s easy to create your own personal Web site.

[Guest guest]

Hey,

Don't forget the acronym G.R.I.T.S.- Girls Raised In The South. That is

me! Hee Hee.

Terri G.

[Guest guest]

Terri- so if u are a boy raised in the south does that

make u a B.r.i.t.s. MATT

--- mosaicgirl1 mosaicgirl1@...> wrote:

>

> Hey,

>

> Don't forget the acronym G.R.I.T.S.- Girls Raised In

> The South. That is

> me! Hee Hee.

>

> Terri G.

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Matt,

That just makes you a redneck. Hee Hee!

Terri G.

>

> >

> > Hey,

> >

> > Don't forget the acronym G.R.I.T.S.- Girls Raised In

> > The South. That is

> > me! Hee Hee.

> >

> > Terri G.

> >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

[Guest guest]

Hey sweetie, thanks for the information on Free Meds.com I actually won my appeal just this week, restarted my Procrit once a week for 3 months and then I'll have to go through the process again, but hey I actually won the appeal.. I asked the pharmasist who it was that my 16 year old son needed to sue when his mom died from complications of not getting the meds she needed, especially when I'm all he has.. He quickly sent my appeal through... lol but hey I did feel as if I were dying.

-- Re: Re: Procrit Help

, This is a new sight I came across in my job, www.freemedicine.com, try them; all they can say is no/////////Connieolehomepla wrote:

Dear ,

Getting the medications we need is so incredible frustrating. DON"T GIVE UP! KEEP FIGHTING. Even though the drug company says they won't give you the drug because you have insurance ... apply anyway as special circumstances. My insurance denied Remicade for me and I went to the drug company and got it approved for 6 months. Sorry I can help you with Medicare D as I don't have it.

It would be so wonderful if some big shot in the drug industry would realize that if they gave us the drugs we need they would be saving huge amonts of money by keeping us healthy!!! (well healthier) WHAT **** & ^%$#% & *** idiots they are!!

I understand how difficult it is to seek a new primary care doctor also. I shutter at the thought of having to explain my medical history to just one more doctor!!!....I don't like my PC Doc (not that she isn't supportive of me ..I just don't click with her) but she has wonderful nurse practioners and I only see them. If they were to move practices I'd go with them.

PLEASE don't give up....keep looking for a way to get this medication!!

ttfn

Ruth

>> Hey friends, I need to know if any of you know if any of you can tell > me what to do to get my Procrit approved through my Medicare D > prescription plan. For the first time in 5 years I finally find a > medicine that was giving me some hope as to feeling better, and what > happens Medicare snatches it right from under me. And the pain in the > arse doctor Dendy just tells me that I'll have to pay for it out of > pocket if I decided that "I want to continue the medication" I don't > really see that there is no choice.. its not a matter of me just > wanting to continue the medication, its the fact that I need the > medication. I'm ready to "KILL HER" and I promise you guys that I have > seen her my very last time!!! I'm tired of her degrading comments as > to there being nothing really wrong with me, then why am I loosing > blood, hct is staying 24, why am I taking a imuno suppressant if there > is nothing wrong with me.. yeah sure I want my immune system to be > compromised so that everytime someone sneezes I'm sick. That when a > small child comes up to hug me at church I have to make a quick check > to see if they have green drainage pouring from their nose before that > happens.. I'm bad. I really do think that this woman would rather see > me die than to confess that I am sick....>

All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.

[Guest guest]

Nahhh Matt, that makes you a sure nuff "good ole boy", in the nicest sense of the word///////Connie Cohen wrote: Terri- so if u are a boy raised in the south does thatmake u a B.r.i.t.s. MATT--- mosaicgirl1 <mosaicgirl1 (AT) yahoo (DOT) com> wrote:> > Hey,> > Don't forget the acronym G.R.I.T.S.- Girls Raised In> The South. That is> me! Hee Hee.> > Terri G.> > >

> > > __________________________________________________

[Guest guest]

hoorah , I am so glad.....You go girl. Take Care//Connie wrote: Hey sweetie, thanks for the information on Free Meds.com I actually won my appeal just this week, restarted my Procrit once a week for 3 months and then I'll have to go through the process again, but hey I actually won the

appeal.. I asked the pharmasist who it was that my 16 year old son needed to sue when his mom died from complications of not getting the meds she needed, especially when I'm all he has.. He quickly sent my appeal through... lol but hey I did feel as if I were dying. -- Re:

Re: Procrit Help , This is a new sight I came across in my job, www.freemedicine.com, try them; all they can say is no/////////Connieolehomepla <olehomepla (AT) yahoo (DOT) com> wrote: Dear , Getting the medications we need is so incredible frustrating. DON"T GIVE UP! KEEP FIGHTING. Even though the drug company says they won't give you the drug because you have insurance ... apply anyway as special circumstances. My insurance denied Remicade for me and I went to the drug company and got it approved for 6 months. Sorry I can help you with Medicare D as I don't have it. It would be so wonderful if some big shot in the drug industry would

realize that if they gave us the drugs we need they would be saving huge amonts of money by keeping us healthy!!! (well healthier) WHAT **** & ^%$#% & *** idiots they are!! I understand how difficult it is to seek a new primary care doctor also. I shutter at the thought of having to explain my medical history to just one more doctor!!!....I don't like my PC Doc (not that she isn't supportive of me ..I just don't click with her) but she has wonderful nurse practioners and I only see them. If they were to move practices I'd go with them. PLEASE don't give up....keep looking for a way to get this medication!! ttfn Ruth >> Hey friends, I need to know if any of you know if any of you can tell > me what to do to get my Procrit approved through my Medicare D > prescription plan. For the first time in 5 years I finally find a > medicine that was giving me some hope as to feeling better, and what > happens Medicare snatches it right from under me. And the pain in the > arse doctor Dendy just tells me that I'll have to pay for it out of > pocket if I decided that "I want to continue the medication" I don't > really see that there is no choice.. its not a matter of me just > wanting to continue the medication, its the fact that I need the > medication. I'm ready to "KILL HER" and I promise you guys that I have > seen her my very last time!!! I'm tired of her degrading comments as > to there being nothing really wrong with me, then why am I loosing > blood, hct is staying 24,

why am I taking a imuno suppressant if there > is nothing wrong with me.. yeah sure I want my immune system to be > compromised so that everytime someone sneezes I'm sick. That when a > small child comes up to hug me at church I have to make a quick check > to see if they have green drainage pouring from their nose before that > happens.. I'm bad. I really do think that this woman would rather see > me die than to confess that I am sick....> All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.

All-new Yahoo! Mail - Fire up a more powerful email and get things done faster.