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Have you given your child anything for the infringement? Like Alka Seltzer

Gold or Pepcid AC tablets? I give Evan this plus Colostrum Gold from

Kirkman's. I need to order some EnZmAid but when I had that, I would use it

also. Maybe it is overkill but I am prone to that I guess. I pray that he

will soon be better. Have you read Karyn Seroussi's book, 'Unraveling the

Mystery of Autism and Pervasive Developmental Disorder'? I think it is very

helpful.

Betty

Need Encouragement

> Our son had a dietary infringement at church 2 weeks ago

> Sunday. This was our first major infringement so didn't know what to

> expect, --------------- is like

> a little banshee, always making weird noises and being loud. He was

> pushing his forehead across the carpet which we have never seen. He

> has

> no speech delay at all but the last 4 days he has trouble at times

> finding words and he gets real frustrated and will say " I don't know

> how to say it! " He is hyper and unfocused and has trouble following

> directions. My son's sweet spirit has left him and he is irritable

> and mean. He has tantrums when he doesn't get his way-something he

> hasn't done since he has been on the diet. He cries and says he is

> going to die (he is 4&1/2!) He is

> having frequent night terrors. I'm starting to be afraid that we

> won't get him back again. Please, I need encouragement from someone

> who has been through this! If I have to never let my son out of my

> sight again I never want him to have to go through this again! Rosie

> Semak ('s mom) P.S. Please pray for

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Rosie,

My heart goes out to you. I can very much relate to your frustration and

how upset you are. goes through times when all he wants to do is

tantrum and bite people. Talk about the pits. I call these times " down

cycles. " Praise God they always pass. I will be praying for you and

today. I know that times like this can make you want to either

pull your hair out or sit on the floor and bawl. I've been there so many

times in the past 3 years it's not even funny.

I was having such a day last Sunday when I went to church. I sat in

church and cried for almost 2 hours. We were having an Easter Muscial

about how God is with us even though we go through some very hard times.

At the end they told the story of a Man who has 4 children the eldest was

9. They were in an Automobile accident and the 9 year old was killed.

The other 3 were seriously injured, but survived. Out of that experience

the man wrote these words and put them to music:

God will make a way

when there seems to be no way

He works in ways we cannot see

He will make a way for me

He will be my guide

draw me closer to his side

He works in ways we cannot see

He will make a way for you and me.

I was able to draw such strength from the musical, then the icing on the

cake was when a Mom and Dad stood up and brought their son to the front

to tell their story. Their son was born without most of his brain and

they were told that if he lived he would never see, hear, walk or talk.

The child has truly struggled for his life, but he improves every day.

Last week it was confirmed that the child can see. The point that the

parents made was that while it has been a horrible experience, God has

truly given them the strength to go on. And they daily see their child

responding in ways that the Dr.s told them he never would.

On a more practical note, have you tried digestive enzymes? I've found

that if we keep some of these on hand and give them immediately following

and infringement, that the reaction is so much less severe. I have even

given a bottle to the school and told them to please let me know if

accidentally gets food he's not supposed to have. This helps the

teachers when they know that if they have a goof up there's something

that they can do. But, we haven't had any infractions at school this

year so far.

God Bless,

I'll pray for you and today.

Leigh

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Rosie -

We've been there too. Just so you can take a positive thing out of

this experience, this means that all your hard work regarding the

diet is worth while! It is confirmation that you are doing the right

thing.

Our pattern for length of time with a dietary infringement seems to

be about 3 weeks. The first week he is spacey and out of it with a

loss of language and eye contact, the next week is the worst with

tantruming, night terrors, all sorts of non-compliance. Then the next

week he gradually " comes back " and we usually end up seeing him catch

a cold or get some sort of unexplained fever and runny nose - then we

know we are at the last stage of the detox.

So..... as Bette said in All About Eve " Fasten you seatbelts,

it's going to be a bumpy night (or three weeks, in our case). "

Hang in there - he will come back.

Moira

mom to Vico (AS 4) and Culzean (almost 1 year old!)

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  • 8 years later...

I spent five days on the intro diet last week and have been trying to add a few

foods back in (squash, applesauce). In the beginning the carrots seemed to give

me a lot of gas, so I pulled them out for a few days and put just a few back in

yesterday. I'm not having d. anymore, but now it's the opposite. I went over

36 hours with no bowl movement. Today I'm so stinky with gas I can hardly stand

myself! I don't know where to go from here, but am hoping someone has some

suggestions for me. Thanks,

Tai

Celiac Disease 4+ years

New to SCD

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I'm not having d. anymore, but now it's the opposite. I went over 36 hours with no bowl movement. Today I'm so stinky with gas I can hardly stand myself! I don't know where to go from here, but am hoping someone has some suggestions for me.Maybe going from D to C is a good sign that your body is ready for some more veggies/fruits to be added in? I'm not sure about this, but just the fact that you've gone from D to C is a good sign that your gut is adjusting to the new diet, and hopefully beginning to heal. It sounds like you are safe to proceed beyond the intro diet. You're still going to have symptoms, but over time they'll begin to get better, and if I were you I would just keep adding in new foods one at a time to make sure they don't cause a change in your symptoms for the worse. Keep up the good work though! =D Peace =)Alyssa 15 yoUC April 2008, dx Sept 2008SCD June 2009 (restarted)No meds!

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Hi Tai..

I had this yoyo experience too as I healed..

It sure is frustrating.. I also experienced loads of uncomfortable and smelly

gas.. Not to get too gross but I am thankful my husband has no sense of smell

LOL.

Why don't you type out exactly what you are eating including supplements and

medications?

That way one of us can brainstorm with you to see if there is a culprit or this

just may be part of the healing process.

Hang in there!

It gets better, just takes time..

Jodi

>

> I spent five days on the intro diet last week and have been trying to add a

few foods back in (squash, applesauce). In the beginning the carrots seemed to

give me a lot of gas, so I pulled them out for a few days and put just a few

back in yesterday. I'm not having d. anymore, but now it's the opposite. I

went over 36 hours with no bowl movement. Today I'm so stinky with gas I can

hardly stand myself! I don't know where to go from here, but am hoping someone

has some suggestions for me. Thanks,

>

> Tai

> Celiac Disease 4+ years

> New to SCD

>

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