Procrit Help

[Guest guest]

Hey friends, I need to know if any of you know if any of you can tell

me what to do to get my Procrit approved through my Medicare D

prescription plan. For the first time in 5 years I finally find a

medicine that was giving me some hope as to feeling better, and what

happens Medicare snatches it right from under me. And the pain in the

arse doctor Dendy just tells me that I'll have to pay for it out of

pocket if I decided that " I want to continue the medication " I don't

really see that there is no choice.. its not a matter of me just

wanting to continue the medication, its the fact that I need the

medication. I'm ready to " KILL HER " and I promise you guys that I have

seen her my very last time!!! I'm tired of her degrading comments as

to there being nothing really wrong with me, then why am I loosing

blood, hct is staying 24, why am I taking a imuno suppressant if there

is nothing wrong with me.. yeah sure I want my immune system to be

compromised so that everytime someone sneezes I'm sick. That when a

small child comes up to hug me at church I have to make a quick check

to see if they have green drainage pouring from their nose before that

happens.. I'm bad. I really do think that this woman would rather see

me die than to confess that I am sick....

[Guest guest]

,

Call your Part D plan, and talk to them to see if there's a way they can ok this.

If you had a decent MD then you could get them to write a letter explaining that you need it- and why. (Which is what they'll tell you to do).

MsPrettypants, Nobrain, has to be fired. She's past incompetent.

also, check out the Patient Assistance Program for Procrit.

http://www.procritline.com/patientassist/patient.assist.form.PDF

With your history of such extreme low blood counts-- they can't deny forever. You seriously have to fire prettypants nobrain.

Hugs,

Tracie

[Guest guest]

Hey Ron, Rose, Tracie, Connie, Marla, Ruth and all of the others that I can't even think of, Tell her what is wrong with her Crit level and how to get around the ---- Medicare Police. I hate it that I am a nurse and I am sitting here with having not only a clue any more about the labs and the meds but nothing about the insurance either and on top of that I hit 675 fric--- keys on this computer to type 10 words. I just got home from the ER where my husband took me because I can't form words. Some times they just won't come, my mouth is open but no word. Some times there is a noise but not a word. Sometimes the words are just not right. (not necessarily garbled but don't sound right) I have jerking movements of my extremities. And I feel jerking movements inside all the time. When I stand to walk I may walk OK or my knees my buckle very quickly. My hands when reaching out are very

shaky and jerky. I hear something in my head like maybe water rushing or sometimes a rattlesnake rattling. If I start to write with a pencil, the word may go on and on because I cannot spell it and so it continues on. Two doctors sent me to the ER by phone today. When I got to the ER I told them my symptoms and when I got to the sounds in my head they all backed away. They believed, I think, that I was seeking meds. I have so many bottles of pain meds that I could do more than they could I am sure. They offered me Vallium and when I refused they sent me home. They said everything turned out negative. I could call my doctor on Monday. The Urine for the test was still setting on the counter. My husband asked the nurse how the urine test came out and she said it was good. He asked her if she was telepathic. She said, "now you call your doctor on Monday if you don't feel better". I said," for what"? " He would give me the same advise as he did today and I just don't

think I could take it again." "Should I ask him if a 150mg of Solumedrol can hide a space occupying lesion? And by the way I am having to move out of my house that I have lived in for 40 years because I can't walk anymore so I can't get up the stairs. My boys are mad because they think we could make this house better and still live here. They will never understand. I went "home" for the last time a few weeks ago. to Tennessee. The mountains were beautiful. I went to North Carolina and went to my special place to pray and I prayed for all of you. I thought you would all be doing better and it doesn't seem to be so. I just want you to know that I still keep you in my prayers day and night God love you all Barb J wrote: Hey friends, I need to know if any of you know if any of

you can tell me what to do to get my Procrit approved through my Medicare D prescription plan. For the first time in 5 years I finally find a medicine that was giving me some hope as to feeling better, and what happens Medicare snatches it right from under me. And the pain in the arse doctor Dendy just tells me that I'll have to pay for it out of pocket if I decided that "I want to continue the medication" I don't really see that there is no choice.. its not a matter of me just wanting to continue the medication, its the fact that I need the medication. I'm ready to "KILL HER" and I promise you guys that I have seen her my very last time!!! I'm tired of her degrading comments as to there being nothing really wrong with me, then why am I loosing blood, hct is staying 24, why am I taking a imuno suppressant if there is nothing wrong with me.. yeah sure I want my immune system to be compromised so that everytime someone

sneezes I'm sick. That when a small child comes up to hug me at church I have to make a quick check to see if they have green drainage pouring from their nose before that happens.. I'm bad. I really do think that this woman would rather see me die than to confess that I am sick....~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHATS: WEDNESDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 12 MIDNIGHT EST. 11PM CENTRAL. 9PM PSTOPEN CHATS: THURSDAY 9PM EST. 8PM CENTRAL. 6PM PSTSUNDAY 4PM EST. 3PM CENTRAL. 1PM PSTCHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database

[Guest guest]

Dear ,

Getting the medications we need is so incredible frustrating. DON"T GIVE UP! KEEP FIGHTING. Even though the drug company says they won't give you the drug because you have insurance ... apply anyway as special circumstances. My insurance denied Remicade for me and I went to the drug company and got it approved for 6 months. Sorry I can help you with Medicare D as I don't have it.

It would be so wonderful if some big shot in the drug industry would realize that if they gave us the drugs we need they would be saving huge amonts of money by keeping us healthy!!! (well healthier) WHAT **** & ^%$#% & *** idiots they are!!

I understand how difficult it is to seek a new primary care doctor also. I shutter at the thought of having to explain my medical history to just one more doctor!!!....I don't like my PC Doc (not that she isn't supportive of me ..I just don't click with her) but she has wonderful nurse practioners and I only see them. If they were to move practices I'd go with them.

PLEASE don't give up....keep looking for a way to get this medication!!

ttfn

Ruth

>> Hey friends, I need to know if any of you know if any of you can tell > me what to do to get my Procrit approved through my Medicare D > prescription plan. For the first time in 5 years I finally find a > medicine that was giving me some hope as to feeling better, and what > happens Medicare snatches it right from under me. And the pain in the > arse doctor Dendy just tells me that I'll have to pay for it out of > pocket if I decided that "I want to continue the medication" I don't > really see that there is no choice.. its not a matter of me just > wanting to continue the medication, its the fact that I need the > medication. I'm ready to "KILL HER" and I promise you guys that I have > seen her my very last time!!! I'm tired of her degrading comments as > to there being nothing really wrong with me, then why am I loosing > blood, hct is staying 24, why am I taking a imuno suppressant if there > is nothing wrong with me.. yeah sure I want my immune system to be > compromised so that everytime someone sneezes I'm sick. That when a > small child comes up to hug me at church I have to make a quick check > to see if they have green drainage pouring from their nose before that > happens.. I'm bad. I really do think that this woman would rather see > me die than to confess that I am sick....>

[Guest guest]

Thanks Ruth, I know you're right, its not my first fight but dang I'm getting really very tired of all of this, not mentally tired I mean physically tired..My PCP isn't supportive nor does she make any bones about the fact that she's not gonna do anything for me, why am I staying? Well for just a few more days, she is pregnant, and is going on maternity leave, she has it in my chart that I'm just seeking medication, which is stupid because what I take is like B/P meds, fluid tablets, imuran, a multivitamin, Calcium, a few other over the counter meds that she's ordered. I do take one Lortab at night for bone pain, but that's it... because I'm on more than 10 medications that "SHE'S" ordered, I just want to take medications just to be taking something.. HOW STUPID!!! This is the same person that told me that if I didn't agree to take Paxil that there wasn't anything thing she could do for me. I bet she forgot that.. Well I took it for a short while, my sleep apnea doctor says that's why I'm getting up in my sleep and waking up in different locations, I even wrecked my wheelchair one night in my sleep and woke up due to the crash.

I won't give up, I have a 16 year old son that needs me right now, but I'm telling ya if it wasn't for him, I don't know..

Thanks again,

-- Re: Procrit Help

Dear ,

Getting the medications we need is so incredible frustrating. DON"T GIVE UP! KEEP FIGHTING. Even though the drug company says they won't give you the drug because you have insurance ... apply anyway as special circumstances. My insurance denied Remicade for me and I went to the drug company and got it approved for 6 months. Sorry I can help you with Medicare D as I don't have it.

It would be so wonderful if some big shot in the drug industry would realize that if they gave us the drugs we need they would be saving huge amonts of money by keeping us healthy!!! (well healthier) WHAT **** & ^%$#% & *** idiots they are!!

I understand how difficult it is to seek a new primary care doctor also. I shutter at the thought of having to explain my medical history to just one more doctor!!!....I don't like my PC Doc (not that she isn't supportive of me ..I just don't click with her) but she has wonderful nurse practioners and I only see them. If they were to move practices I'd go with them.

PLEASE don't give up....keep looking for a way to get this medication!!

ttfn

Ruth

>> Hey friends, I need to know if any of you know if any of you can tell > me what to do to get my Procrit approved through my Medicare D > prescription plan. For the first time in 5 years I finally find a > medicine that was giving me some hope as to feeling better, and what > happens Medicare snatches it right from under me. And the pain in the > arse doctor Dendy just tells me that I'll have to pay for it out of > pocket if I decided that "I want to continue the medication" I don't > really see that there is no choice.. its not a matter of me just > wanting to continue the medication, its the fact that I need the > medication. I'm ready to "KILL HER" and I promise you guys that I have > seen her my very last time!!! I'm tired of her degrading comments as > to there being nothing really wrong with me, then why am I loosing > blood, hct is staying 24, why am I taking a imuno suppressant if there > is nothing wrong with me.. yeah sure I want my immune system to be > compromised so that everytime someone sneezes I'm sick. That when a > small child comes up to hug me at church I have to make a quick check > to see if they have green drainage pouring from their nose before that > happens.. I'm bad. I really do think that this woman would rather see > me die than to confess that I am sick....>

[Guest guest]

Dear Sweet Barb,

Yes your prayers have helped, and I thank you for

every one on my behalf; and I sincerely mean that.

God has been so good to me, and I absolutely couldn't

make it without him.

I am so sorry about the ER mess, they tend to do that

alot where we are concerned. I do believe I would

make a call to quality assurance about the labs, that

is unforgiveable. Do you have even (1) good doctor,

who will listen and help, I sure do hope so. I will

be praying that if you don't already have one, you'll

find one. Sounds like your sarc is way out of

control, as I am sure you already know.

I hate you are having to move out of your house, but

stairs are a nightmare, & with what is happening to

you falling down them would not be fun. I wish they

could put one of those private elevators in it for

you, but I don't know how you start. I will admit

when I heard what they cost I was surprised, I thought

they would have been alot more expensive.

I'm glad you got to go to Tennesee, there is a place

in Georgia that I go to in my memories when things are

getting just to out of hand. It is a place called

High Falls, it has small cascading waterfalls that run

in to a river with countryside on both sides. I used

to live about 15 minutes away from it before I had to

move back home to Florida.

Please take care, Connie

--- " barb J. " statpdq@...> wrote:

> Hey Ron, Rose, Tracie, Connie, Marla, Ruth and all

> of the others that I can't even think of,

> Tell her what is wrong with her Crit level and how

> to get around the ---- Medicare Police. I hate it

> that I am a nurse and I am sitting here with having

> not only a clue any more about the labs and the meds

> but nothing about the insurance either and on top of

> that I hit 675 fric--- keys on this computer to type

> 10 words.

> I just got home from the ER where my husband took

> me because I can't form words. Some times they just

> won't come, my mouth is open but no word. Some times

> there is a noise but not a word. Sometimes the words

> are just not right. (not necessarily garbled but

> don't sound right)

> I have jerking movements of my extremities. And I

> feel jerking movements inside all the time.

> When I stand to walk I may walk OK or my knees my

> buckle very quickly. My hands when reaching out are

> very shaky and jerky. I hear something in my head

> like maybe water rushing or sometimes a rattlesnake

> rattling. If I start to write with a pencil, the

> word may go on and on because I cannot spell it and

> so it continues on. Two doctors sent me to the ER by

> phone today. When I got to the ER I told them my

> symptoms and when I got to the sounds in my head

> they all backed away. They believed, I think, that I

> was seeking meds. I have so many bottles of pain

> meds that I could do more than they could I am sure.

> They offered me Vallium and when I refused they sent

> me home. They said everything turned out negative. I

> could call my doctor on Monday. The Urine for the

> test was still setting on the counter. My husband

> asked the nurse how the urine test came out and she

> said it was good. He asked her if she was

> telepathic. She said, " now you call your doctor on

> Monday if you don't feel

> better " . I said, " for what " ? " He would give me the

> same advise as he did today and I just don't think I

> could take it again. " " Should I ask him if a 150mg

> of Solumedrol can hide a space occupying lesion? And

> by the way I am having to move out of my house that

> I have lived in for 40 years because I can't walk

> anymore so I can't get up the stairs. My boys are

> mad because they think we could make this house

> better and still live here. They will never

> understand.

> I went " home " for the last time a few weeks ago.

> to Tennessee. The mountains were beautiful. I went

> to North Carolina and went to my special place to

> pray and I prayed for all of you. I thought you

> would all be doing better and it doesn't seem to be

> so. I just want you to know that I still keep you in

> my prayers day and night

> God love you all

> Barb J

>

>

> topdat@...> wrote: Hey friends,

> I need to know if any of you know if any of you can

> tell

> me what to do to get my Procrit approved through my

> Medicare D

> prescription plan. For the first time in 5 years I

> finally find a

> medicine that was giving me some hope as to feeling

> better, and what

> happens Medicare snatches it right from under me.

> And the pain in the

> arse doctor Dendy just tells me that I'll have to

> pay for it out of

> pocket if I decided that " I want to continue the

> medication " I don't

> really see that there is no choice.. its not a

> matter of me just

> wanting to continue the medication, its the fact

> that I need the

> medication. I'm ready to " KILL HER " and I promise

> you guys that I have

> seen her my very last time!!! I'm tired of her

> degrading comments as

> to there being nothing really wrong with me, then

> why am I loosing

> blood, hct is staying 24, why am I taking a imuno

> suppressant if there

> is nothing wrong with me.. yeah sure I want my

> immune system to be

> compromised so that everytime someone sneezes I'm

> sick. That when a

> small child comes up to hug me at church I have to

> make a quick check

> to see if they have green drainage pouring from

> their nose before that

> happens.. I'm bad. I really do think that this woman

> would rather see

> me die than to confess that I am sick....

>

>

>

>

>

>

> ~~~~ *** ~~~ *** ~~~ *** ~~~~

> The Neurosarcoidosis Community

>

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> CENTRAL. 6PM PST

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>

>

>

[Guest guest]

, This is a new sight I came across in my job, www.freemedicine.com, try them; all they can say is no/////////Connieolehomepla wrote: Dear , Getting the medications we need is so incredible frustrating. DON"T GIVE UP! KEEP FIGHTING. Even though the drug company says they won't give you the drug because you have insurance ... apply anyway as special

circumstances. My insurance denied Remicade for me and I went to the drug company and got it approved for 6 months. Sorry I can help you with Medicare D as I don't have it. It would be so wonderful if some big shot in the drug industry would realize that if they gave us the drugs we need they would be saving huge amonts of money by keeping us healthy!!! (well healthier) WHAT **** & ^%$#% & *** idiots they are!! I understand how difficult it is to seek a new primary care doctor also. I shutter at the thought of having to explain my medical history to just one more doctor!!!....I don't like my PC Doc (not that she isn't supportive of me ..I just don't click with her) but she has wonderful nurse practioners and I only see them. If they were to move practices I'd go with them. PLEASE don't give

up....keep looking for a way to get this medication!! ttfn Ruth >> Hey friends, I need to know if any of you know if any of you can tell > me what to do to get my Procrit approved through my Medicare D > prescription plan. For the first time in 5 years I finally find a > medicine that was giving me some hope as to feeling better, and what > happens Medicare snatches it right from under me. And the pain in the > arse doctor Dendy just tells me that I'll have to pay for it out of > pocket if I decided that "I want to continue the medication" I don't > really see that there is no choice.. its not a matter of me just > wanting to continue the medication, its the fact that I

need the > medication. I'm ready to "KILL HER" and I promise you guys that I have > seen her my very last time!!! I'm tired of her degrading comments as > to there being nothing really wrong with me, then why am I loosing > blood, hct is staying 24, why am I taking a imuno suppressant if there > is nothing wrong with me.. yeah sure I want my immune system to be > compromised so that everytime someone sneezes I'm sick. That when a > small child comes up to hug me at church I have to make a quick check > to see if they have green drainage pouring from their nose before that > happens.. I'm bad. I really do think that this woman would rather see > me die than to confess that I am sick....>

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[Guest guest]

, Please hang in there, you are right; that beautiful son needs his mom. We need you too. Maybe do what I do every now & again, not for long mind you; but I take a doctor break. Like I say, I can't afford this luxuary but for a few days or week or two, but sometimes it gives me time to take a breath before the next fight. I also know how overwhelming it is to have to explain to someone new, what's going on with us, but please try; this woman is going to end up doing harm. Grief, I hope she takes better care of her child than she has you. Your in my thoughts & prayers. I wish you were closer. We'd go to Fernandina Beach where my brother is, sit on the beach at dusk (no sun), drink ice tea or pepsi's and eat the stuff we usually don't, and watch all the interesting people go by while we listened to the waves and dare anyone to bother us. Take Care, as long as we're breathing it can get better!.........Connie wrote: Thanks Ruth, I know you're right, its not my first fight but dang I'm getting really very tired of all of this, not mentally tired I mean physically tired..My PCP

isn't supportive nor does she make any bones about the fact that she's not gonna do anything for me, why am I staying? Well for just a few more days, she is pregnant, and is going on maternity leave, she has it in my chart that I'm just seeking medication, which is stupid because what I take is like B/P meds, fluid tablets, imuran, a multivitamin, Calcium, a few other over the counter meds that she's ordered. I do take one Lortab at night for bone pain, but that's it... because I'm on more than 10 medications that "SHE'S" ordered, I just want to take medications just to be taking something.. HOW STUPID!!! This is the same person that told me that if I didn't agree to take Paxil that there wasn't anything thing she could do for me. I bet she forgot that.. Well I took it for a short while, my sleep apnea doctor says that's why I'm getting up in my sleep and waking up in different locations, I even wrecked my wheelchair one night in my sleep and woke up due

to the crash. I won't give up, I have a 16 year old son that needs me right now, but I'm telling ya if it wasn't for him, I don't know.. Thanks again, -- Re: Procrit Help Dear , Getting the medications we need is so incredible frustrating. DON"T GIVE UP! KEEP FIGHTING. Even though the drug company says they won't give you the drug because you have insurance ... apply anyway as special circumstances. My insurance denied Remicade for me and I went to the drug company and got it approved for 6 months. Sorry I can help you with Medicare D as I don't have it. It would be so wonderful if some big shot in the drug industry would realize that if they gave us the drugs we need they would be saving huge amonts of money by keeping us healthy!!! (well healthier) WHAT **** & ^%$#% & *** idiots they are!! I understand how difficult it is to seek a new primary care doctor also. I shutter at the thought of having to explain my medical

history to just one more doctor!!!....I don't like my PC Doc (not that she isn't supportive of me ..I just don't click with her) but she has wonderful nurse practioners and I only see them. If they were to move practices I'd go with them. PLEASE don't give up....keep looking for a way to get this medication!! ttfn Ruth >> Hey friends, I need to know if any of you know if any of you can tell > me what to do to get my Procrit approved through my Medicare D > prescription plan. For the first time in 5 years I finally find a > medicine that was giving me some hope as to feeling better, and what > happens Medicare snatches it right from under me. And the pain in the

> arse doctor Dendy just tells me that I'll have to pay for it out of > pocket if I decided that "I want to continue the medication" I don't > really see that there is no choice.. its not a matter of me just > wanting to continue the medication, its the fact that I need the > medication. I'm ready to "KILL HER" and I promise you guys that I have > seen her my very last time!!! I'm tired of her degrading comments as > to there being nothing really wrong with me, then why am I loosing > blood, hct is staying 24, why am I taking a imuno suppressant if there > is nothing wrong with me.. yeah sure I want my immune system to be > compromised so that everytime someone sneezes I'm sick. That when a > small child comes up to hug me at church I have to make a quick check > to see if they have green drainage pouring from their nose before that > happens.. I'm bad. I really do think that this

woman would rather see > me die than to confess that I am sick....>

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