Re: Paying it forward - SCD Resource on Twitter

[Guest guest]

Sounds like a nice idea.  I don't do twitter; anyone do Facebook?

 

Debbie 40 cd

 

Howdy all. I have been on SCD for 1 yr and four months (well I will be on the 28th of this month). The first year was very very challenging. I was symptom free initially for a month and a half after being on SCD. I had been on Prednisone and had tapered off. I read how some people were doing great after a short time on SCD so I hoped I was the same so I stopped all meds...then I went through a breakup of a long term relationship and the stressful holidays...I fell into another flare and almost ended up in the hospital. I dropped about 30 lbs and was pretty weak...I was eating about 15 items total for months as everything seemed to be reactive. I got an SCD counselor and we kept tweaking and tweaking for months. The flare basically lasted till July and then tried to show back up a couple more times - at this point I was not relying on Prednisone and found that I could start doing diet modifications to manage the flares. Fast forward to now, I have dropped the Asacol to a mait dose (1 400 mg 3 x a day) and I have not been in Predinosone since July (I was on a really really slow taper). I am back up about 25 lbs and now have to actually watch what I eat as I believe my metabolism has gone back to that of someone my age (37), so slower. Not to long ago Gay sent me and others in the Portland, Oregon area a notification that a new person had come on board for SCD and to offer support if we could. This request impacted me - I was now being seen as more of an experienced veteran on SCD. It was assumed that I would be doing better than at the start. All of this is true and I feel VERY THANKFUL for SCD, the request only affirms the belief that others have that one can do much better if they use the SCD diet. I have a lot of resources that I have utilized during the transitional period of my life. First off, I am a big foody and I have access to chefs that have offer tips and tricks. The new flexibility has allowed me the freedom to experiment more in the kitchen and trying out some of the wonderful recipes that others offer up (as well as a few of my own). I have ulcerative colitis and stress does play a part in flares for me - I belong to a group that helps me with my stress, I journal and am tapping into many creative parts of myself - many of the discoveries along this path I think have been inspirational and helpful to others as they are more general life lessons that I share with others - who knew that have an illness like UC could also have a silver lining - many doors have opened where I thought opportunities would have closed down for good when things started to get really bad for me illness-wise. I am self employed in the marketing and lead generation field - it is my job to be resourceful - this strength gives me a lot of options and the ability to think outside the box when it come to SCD and managing my approach to discovering my core foods and identifying food sensitivities at various stages (this most certainly has been a complicated, moving target). I have decided to start sharing little thoughts on Twitter in the hopes that others will find help, support and ideas along their SCD journey. " Tweets " as they are called are brief and to the point (only 140 characters max) - thought I would let you all know that I was doing this, those that might be interested. It is my intention to follow strict SCD guidelines so I will not be voicing details outside of Elaine's parameters. I can guarantee that I will be putting something on their daily, but certainly on a more regular basis.

aiazeen ()UC 6 yrsSCD 1yr 4 monthsImipramine 30 mg in eveAsacol 400 mg 1x per day

[Guest guest]

Yes, the same detail on twitter is also on Facebook under the name, " SCD Diet "

>

> >

> >

> > Howdy all. I have been on SCD for 1 yr and four months (well I will be on

> > the 28th of this month). The first year was very very challenging. I was

> > symptom free initially for a month and a half after being on SCD. I had been

> > on Prednisone and had tapered off. I read how some people were doing great

> > after a short time on SCD so I hoped I was the same so I stopped all

> > meds...then I went through a breakup of a long term relationship and the

> > stressful holidays...I fell into another flare and almost ended up in the

> > hospital. I dropped about 30 lbs and was pretty weak...I was eating about 15

> > items total for months as everything seemed to be reactive. I got an SCD

> > counselor and we kept tweaking and tweaking for months. The flare basically

> > lasted till July and then tried to show back up a couple more times - at

> > this point I was not relying on Prednisone and found that I could start

> > doing diet modifications to manage the flares. Fast forward to now, I have

> > dropped the Asacol to a mait dose (1 400 mg 3 x a day) and I have not been

> > in Predinosone since July (I was on a really really slow taper). I am back

> > up about 25 lbs and now have to actually watch what I eat as I believe my

> > metabolism has gone back to that of someone my age (37), so slower. Not to

> > long ago Gay sent me and others in the Portland, Oregon area a notification

> > that a new person had come on board for SCD and to offer support if we

> > could. This request impacted me - I was now being seen as more of an

> > experienced veteran on SCD. It was assumed that I would be doing better than

> > at the start. All of this is true and I feel VERY THANKFUL for SCD, the

> > request only affirms the belief that others have that one can do much better

> > if they use the SCD diet. I have a lot of resources that I have utilized

> > during the transitional period of my life. First off, I am a big foody and I

> > have access to chefs that have offer tips and tricks. The new flexibility

> > has allowed me the freedom to experiment more in the kitchen and trying out

> > some of the wonderful recipes that others offer up (as well as a few of my

> > own). I have ulcerative colitis and stress does play a part in flares for me

> > - I belong to a group that helps me with my stress, I journal and am tapping

> > into many creative parts of myself - many of the discoveries along this path

> > I think have been inspirational and helpful to others as they are more

> > general life lessons that I share with others - who knew that have an

> > illness like UC could also have a silver lining - many doors have opened

> > where I thought opportunities would have closed down for good when things

> > started to get really bad for me illness-wise. I am self employed in the

> > marketing and lead generation field - it is my job to be resourceful - this

> > strength gives me a lot of options and the ability to think outside the box

> > when it come to SCD and managing my approach to discovering my core foods

> > and identifying food sensitivities at various stages (this most certainly

> > has been a complicated, moving target). I have decided to start sharing

> > little thoughts on Twitter in the hopes that others will find help, support

> > and ideas along their SCD journey. " Tweets " as they are called are brief and

> > to the point (only 140 characters max) - thought I would let you all know

> > that I was doing this, those that might be interested. It is my intention to

> > follow strict SCD guidelines so I will not be voicing details outside of

> > Elaine's parameters. I can guarantee that I will be putting something on

> > their daily, but certainly on a more regular basis.

> >

> > aiazeen ()

> > UC 6 yrs

> > SCD 1yr 4 months

> > Imipramine 30 mg in eve

> > Asacol 400 mg 1x per day

> >

> >

> >

>

[Guest guest]

Is that the handle on twitter? Cause I just tried it and it is not

coming up for me?

Mara

> Yes, the same detail on twitter is also on Facebook under the name,

> " SCD Diet "

>

>

>>

>> Sounds like a nice idea. I don't do twitter; anyone do Facebook?

[Guest guest]

Looks like you have to enter the entire address is (sorry - new to Twitter

myself - thanks for your patience)

http://twitter.com/scdresource

> >

> > >

> > >

> > > Howdy all. I have been on SCD for 1 yr and four months (well I will be on

> > > the 28th of this month). The first year was very very challenging. I was

> > > symptom free initially for a month and a half after being on SCD. I had

been

> > > on Prednisone and had tapered off. I read how some people were doing great

> > > after a short time on SCD so I hoped I was the same so I stopped all

> > > meds...then I went through a breakup of a long term relationship and the

> > > stressful holidays...I fell into another flare and almost ended up in the

> > > hospital. I dropped about 30 lbs and was pretty weak...I was eating about

15

> > > items total for months as everything seemed to be reactive. I got an SCD

> > > counselor and we kept tweaking and tweaking for months. The flare

basically

> > > lasted till July and then tried to show back up a couple more times - at

> > > this point I was not relying on Prednisone and found that I could start

> > > doing diet modifications to manage the flares. Fast forward to now, I have

> > > dropped the Asacol to a mait dose (1 400 mg 3 x a day) and I have not been

> > > in Predinosone since July (I was on a really really slow taper). I am back

> > > up about 25 lbs and now have to actually watch what I eat as I believe my

> > > metabolism has gone back to that of someone my age (37), so slower. Not to

> > > long ago Gay sent me and others in the Portland, Oregon area a

notification

> > > that a new person had come on board for SCD and to offer support if we

> > > could. This request impacted me - I was now being seen as more of an

> > > experienced veteran on SCD. It was assumed that I would be doing better

than

> > > at the start. All of this is true and I feel VERY THANKFUL for SCD, the

> > > request only affirms the belief that others have that one can do much

better

> > > if they use the SCD diet. I have a lot of resources that I have utilized

> > > during the transitional period of my life. First off, I am a big foody and

I

> > > have access to chefs that have offer tips and tricks. The new flexibility

> > > has allowed me the freedom to experiment more in the kitchen and trying

out

> > > some of the wonderful recipes that others offer up (as well as a few of my

> > > own). I have ulcerative colitis and stress does play a part in flares for

me

> > > - I belong to a group that helps me with my stress, I journal and am

tapping

> > > into many creative parts of myself - many of the discoveries along this

path

> > > I think have been inspirational and helpful to others as they are more

> > > general life lessons that I share with others - who knew that have an

> > > illness like UC could also have a silver lining - many doors have opened

> > > where I thought opportunities would have closed down for good when things

> > > started to get really bad for me illness-wise. I am self employed in the

> > > marketing and lead generation field - it is my job to be resourceful -

this

> > > strength gives me a lot of options and the ability to think outside the

box

> > > when it come to SCD and managing my approach to discovering my core foods

> > > and identifying food sensitivities at various stages (this most certainly

> > > has been a complicated, moving target). I have decided to start sharing

> > > little thoughts on Twitter in the hopes that others will find help,

support

> > > and ideas along their SCD journey. " Tweets " as they are called are brief

and

> > > to the point (only 140 characters max) - thought I would let you all know

> > > that I was doing this, those that might be interested. It is my intention

to

> > > follow strict SCD guidelines so I will not be voicing details outside of

> > > Elaine's parameters. I can guarantee that I will be putting something on

> > > their daily, but certainly on a more regular basis.

> > >

> > > aiazeen ()

> > > UC 6 yrs

> > > SCD 1yr 4 months

> > > Imipramine 30 mg in eve

> > > Asacol 400 mg 1x per day

> > >

> > >

> > >

> >

>