Paying it forward - SCD Resource on Twitter

[Guest guest]

Howdy all. I have been on SCD for 1 yr and four months (well I will be on the

28th of this month). The first year was very very challenging. I was symptom

free initially for a month and a half after being on SCD. I had been on

Prednisone and had tapered off. I read how some people were doing great after a

short time on SCD so I hoped I was the same so I stopped all meds...then I went

through a breakup of a long term relationship and the stressful holidays...I

fell into another flare and almost ended up in the hospital. I dropped about 30

lbs and was pretty weak...I was eating about 15 items total for months as

everything seemed to be reactive. I got an SCD counselor and we kept tweaking

and tweaking for months. The flare basically lasted till July and then tried to

show back up a couple more times - at this point I was not relying on Prednisone

and found that I could start doing diet modifications to manage the flares.

Fast forward to now, I have dropped the Asacol to a mait dose (1 400 mg 3 x a

day) and I have not been in Predinosone since July (I was on a really really

slow taper). I am back up about 25 lbs and now have to actually watch what I

eat as I believe my metabolism has gone back to that of someone my age (37), so

slower. Not to long ago Gay sent me and others in the Portland, Oregon area a

notification that a new person had come on board for SCD and to offer support if

we could. This request impacted me - I was now being seen as more of an

experienced veteran on SCD. It was assumed that I would be doing better than at

the start. All of this is true and I feel VERY THANKFUL for SCD, the request

only affirms the belief that others have that one can do much better if they use

the SCD diet. I have a lot of resources that I have utilized during the

transitional period of my life. First off, I am a big foody and I have access

to chefs that have offer tips and tricks. The new flexibility has allowed me

the freedom to experiment more in the kitchen and trying out some of the

wonderful recipes that others offer up (as well as a few of my own). I have

ulcerative colitis and stress does play a part in flares for me - I belong to a

group that helps me with my stress, I journal and am tapping into many creative

parts of myself - many of the discoveries along this path I think have been

inspirational and helpful to others as they are more general life lessons that

I share with others - who knew that have an illness like UC could also have a

silver lining - many doors have opened where I thought opportunities would have

closed down for good when things started to get really bad for me illness-wise.

I am self employed in the marketing and lead generation field - it is my job to

be resourceful - this strength gives me a lot of options and the ability to

think outside the box when it come to SCD and managing my approach to

discovering my core foods and identifying food sensitivities at various stages

(this most certainly has been a complicated, moving target). I have decided to

start sharing little thoughts on Twitter in the hopes that others will find

help, support and ideas along their SCD journey. " Tweets " as they are called

are brief and to the point (only 140 characters max) - thought I would let you

all know that I was doing this, those that might be interested. It is my

intention to follow strict SCD guidelines so I will not be voicing details

outside of Elaine's parameters. I can guarantee that I will be putting

something on their daily, but certainly on a more regular basis.

aiazeen ()

UC 6 yrs

SCD 1yr 4 months

Imipramine 30 mg in eve

Asacol 400 mg 1x per day