Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Hi Everyone. I told my doctor about this group and he is interested in knowing about other Sarcoid patients who are on Remicade. (I am his only Sarcoid pt on it) If anyone would like to send me a brief history of how they came to start Remicade (Please forgive me for not remembering) and how it is helping them Id LOVE to hand them over to him. NO Names are needed. Did a site every get going to post our histories? THANK YOU THANK YOU THANK YOU Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2006 Report Share Posted August 23, 2006 Did a site every get going to post our histories? Uh, actually, Ruth, that was my job. I don't know quite how to do it. I want a link that members can use to post their story, however much they want to share, and new members (or those of us who have CRS) can go & read other histories. The advantage being that people don't have to keep writing their story repeatedly, but could update as needed. Ideally, we could designate some key words to help seekers find those particular histories they need; like, those on Remicade, how we were diagnosed, doctors/medical centers specially in sarc/NS. That might not be feasible, unless members gave me/whoever permission to go through their stories & bold type or underline key phrases. I don't know how to start, really. If someone can help with that, I'll be happy to do it. I've just been copying & pasting my story as needed, but that's a bit of trouble. Any ideas? Ramblin' Rose Moderator Reply-To: Neurosarcoidosis To: Neurosarcoidosis Subject: Remicade experiencesDate: Wed, 23 Aug 2006 20:13:51 -0000 Hi Everyone. I told my doctor about this group and he is interested in knowing about other Sarcoid patients who are on Remicade. (I am his only Sarcoid pt on it) If anyone would like to send me a brief history of how they came to start Remicade (Please forgive me for not remembering) and how it is helping them Id LOVE to hand them over to him. NO Names are needed. Did a site every get going to post our histories? THANK YOU THANK YOU THANK YOU Ruth Search from any web page with powerful protection. Get the FREE Windows Live Toolbar Today! Quote Link to comment Share on other sites More sharing options...
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