RE: Hi Everyone - Can't keep up

[Guest guest]

Diane, I'm sorry you are struggling so much. I actually worked at St. for 6 years, back in the 1970's. I worked in labor & delivery; didn't know any of the other docs. Keep going; I'm thankful you hve a supportive husband.

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: Hi Everyone - Can't keep upDate: Thu, 24 Aug 2006 15:01:10 -0500

Hi,

I have not posted lately and have not replied to a few people. I apologize. It's a long story, but since I came home from the hospital three weeks ago I've been battling the sarc monster and with the University Hospital where my Rheumy is to get me back on some kind of Methotrexate (preferably injection) and also let me know what's going on with insurance for Remicade. To make a long story short, I was ready to call and fire them when I got a phone call saying they were calling in the meth by injection. FINALLY. My hubby gave me my first shot yesterday morning and so far I've not had any of the side affects that I had from the pills. I had horrible diarrhea within 10 minutes of taking the pills which lasted for 4 to 5 days. I've had none so far. I had mouth sores and other stuff also. Over 24 hours later and NO diarrhea! Yea! My regular doc is not happy with how they are treating me at UTSouthwestern Hospital. I am going to see if I can get into a group of so-called elite Rheumies at St. hospital in Dallas. My doc wants someone to take me under their wing, because she says I am too seriously ill not to have a doc monitoring me at all times. The university only has clinics on Wednesdays and never returns calls!

I've been extremely tired trying to get an Avon business off the ground this week also. I'm totally not a sales person so this is just something I'm trying since I can't really do my babysitting anymore but once a week. Wish me luck because financially we are doing horribly. This sarc monster has not only ruined me physically, but also financially. O.k., so I'm whining now. ha-ha.

I have pictures of my boys and hubby I'd love to put with the others, but can't figure out how to get them off my computer yet. Someday I'll figure it out. I love seeing everyone's pictures. I hope everyone is doing o.k. as I just don't have time to read all my email! If I've miss anything serious in the last couple weeks please send me an email personally. I don't want to miss if anyone needed prayers or anything important happened.

Love and hugs to all,

Diane in TX

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[Guest guest]

Hi

Diane,

When I had

to leave the working force due to the Sarc monster I started a Kay

business, that was almost 3 years ago, and I am still doing it, it’s

always nice to have the extra income, and I still get to me new people! Good

luck, I’ll be praying for success!

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Diane Aja

Sent: Thursday, August 24, 2006

1:01 PM

To: Neurosarcoidosis

Subject: Hi Everyone

- Can't keep up

Hi,

I have not posted lately and have not replied to a few

people. I apologize. It's a long story, but since I came home from

the hospital three weeks ago I've been battling the sarc monster and with the University Hospital where my Rheumy is to get me

back on some kind of Methotrexate (preferably injection) and also let me know

what's going on with insurance for Remicade. To make a long story short,

I was ready to call and fire them when I got a phone call saying they were

calling in the meth by injection. FINALLY. My hubby gave me my

first shot yesterday morning and so far I've not had any of the side affects

that I had from the pills. I had horrible diarrhea within 10 minutes of taking

the pills which lasted for 4 to 5 days. I've had none so far. I had

mouth sores and other stuff also. Over 24 hours later and NO diarrhea!

Yea! My regular doc is not happy with how they are treating me at UTSouthwestern Hospital. I am going to see if I

can get into a group of so-called elite Rheumies at St. hospital in Dallas. My doc

wants someone to take me under their wing, because she says I am too seriously

ill not to have a doc monitoring me at all times. The university only has

clinics on Wednesdays and never returns calls!

I've been extremely tired trying to get an Avon

business off the ground this week also. I'm totally not a sales person so

this is just something I'm trying since I can't really do my babysitting

anymore but once a week. Wish me luck because financially we are doing

horribly. This sarc monster has not only ruined me physically, but also

financially. O.k., so I'm whining now. ha-ha.

I have pictures of my boys and hubby I'd love to put with

the others, but can't figure out how to get them off my computer yet.

Someday I'll figure it out. I love seeing everyone's pictures. I

hope everyone is doing o.k. as I just don't have time to read all my

email! If I've miss anything serious in the last couple weeks please send

me an email personally. I don't want to miss if anyone needed prayers or

anything important happened.

Love and hugs to all,

Diane in TX

[Guest guest]

Marla, I just came back from a Kay meeting. My niece is a consultant (almost a year) & she had 6 guests counting my mom, her mom, her sister, my cousin & me (plus a friend). I had some kind of reaction to the Satin skin cream that feels gritty; got itchy red bumps on my left hand & just a couple on my right. It's weird, because I rarely react to anything. The itching stopped after a few minutes, but I still have the bumps (over 2 hrs. later). One of the ladies there said she had a customer who did the same thing, only she had rubbed the cream up on her arms, so her arms & her hands reacted. No one else had any problems. I guess I'll just avoid that product. Have you ever seen that? This is part of a 3-step cleansing--you put some greasy stuffy on, then the gritty stuff, which you wash off, then put on some regular lotion. Anyway, the meeting was fun. I ordered some tinted moisturizer, eyeshadow, mascara & blush. I rarely wear makeup, but I'm going to try to get in the habit more often. Part of the problem is this heat intolerance & "hyperhidrosis" (excessive perspiration). I just end up wiping off any makeup, or ruining it when I stick my head under the kitchen faucet. But cooler weather is ahead, so I'll give it a go. I didn't mean to go on so long!

Ramblin' Rose

Moderator

Reply-To: Neurosarcoidosis To: <Neurosarcoidosis >Subject: RE: Hi Everyone - Can't keep upDate: Thu, 24 Aug 2006 18:01:45 -0700

Hi Diane,

When I had to leave the working force due to the Sarc monster I started a Kay business, that was almost 3 years ago, and I am still doing it, it’s always nice to have the extra income, and I still get to me new people! Good luck, I’ll be praying for success!

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Diane AjaSent: Thursday, August 24, 2006 1:01 PMTo: Neurosarcoidosis Subject: Hi Everyone - Can't keep up

Hi,

I have not posted lately and have not replied to a few people. I apologize. It's a long story, but since I came home from the hospital three weeks ago I've been battling the sarc monster and with the University Hospital where my Rheumy is to get me back on some kind of Methotrexate (preferably injection) and also let me know what's going on with insurance for Remicade. To make a long story short, I was ready to call and fire them when I got a phone call saying they were calling in the meth by injection. FINALLY. My hubby gave me my first shot yesterday morning and so far I've not had any of the side affects that I had from the pills. I had horrible diarrhea within 10 minutes of taking the pills which lasted for 4 to 5 days. I've had none so far. I had mouth sores and other stuff also. Over 24 hours later and NO diarrhea! Yea! My regular doc is not happy with how they are treating me at UTSouthwestern Hospital. I am going to see if I can get into a group of so-called elite Rheumies at St. hospital in Dallas. My doc wants someone to take me under their wing, because she says I am too seriously ill not to have a doc monitoring me at all times. The university only has clinics on Wednesdays and never returns calls!

I've been extremely tired trying to get an Avon business off the ground this week also. I'm totally not a sales person so this is just something I'm trying since I can't really do my babysitting anymore but once a week. Wish me luck because financially we are doing horribly. This sarc monster has not only ruined me physically, but also financially. O.k., so I'm whining now. ha-ha.

I have pictures of my boys and hubby I'd love to put with the others, but can't figure out how to get them off my computer yet. Someday I'll figure it out. I love seeing everyone's pictures. I hope everyone is doing o.k. as I just don't have time to read all my email! If I've miss anything serious in the last couple weeks please send me an email personally. I don't want to miss if anyone needed prayers or anything important happened.

Love and hugs to all,

Diane in TX

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[Guest guest]

HI Rose,

was the satin hands the Peachy scrub? Maybe you reacted to the peach scent

they put in it, I have not ever had anyone react to the satin hands, but the

peach scent is new, and I love the new satin hands. I have a problem with

a few of the MK items so don’t use them. I do love their skin care though;

I have supper sensitive dry skin and have found a combination that works for

me. I love there Make up but can’t wear any color with red dye in

it. The neat part about selling it is I can try out all the samples before

buying anything. And it saves me big time. I’m glad you had

fun, we have a great group of women at our unit meetings, my director’s

unit made ½ a million in retail this past year, yes she drives a Pink Cadillac,

someday I will tooJ

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of Rose

Sent: Thursday, August 24, 2006

7:16 PM

To: Neurosarcoidosis

Subject: RE: Hi

Everyone - Can't keep up

Marla, I

just came back from a Kay meeting. My niece is a consultant

(almost a year) & she had 6 guests counting my mom, her mom, her sister, my

cousin & me (plus a friend). I had some kind of reaction to the Satin

skin cream that feels gritty; got itchy red bumps on my left hand & just a

couple on my right. It's weird, because I rarely react to anything.

The itching stopped after a few minutes, but I still have the bumps (over 2

hrs. later). One of the ladies there said she had a customer who did the

same thing, only she had rubbed the cream up on her arms, so her arms & her

hands reacted. No one else had any problems. I guess I'll just

avoid that product. Have you ever seen that? This is part of a

3-step cleansing--you put some greasy stuffy on, then the gritty stuff, which

you wash off, then put on some regular lotion. Anyway, the meeting was

fun. I ordered some tinted moisturizer, eyeshadow, mascara &

blush. I rarely wear makeup, but I'm going to try to get in the habit

more often. Part of the problem is this heat intolerance &

" hyperhidrosis " (excessive perspiration). I just end up

wiping off any makeup, or ruining it when I stick my head under the kitchen

faucet. But cooler weather is ahead, so I'll give it a go. I didn't

mean to go on so long!

Ramblin' Rose

Moderator

From: " Marla " <mebramer (AT) gmail (DOT) com>

Reply-To: Neurosarcoidosis

To: <Neurosarcoidosis >

Subject: RE: Hi Everyone

- Can't keep up

Date: Thu, 24 Aug 2006 18:01:45 -0700

Hi Diane,

When I had to leave the working force due to the

Sarc monster I started a Kay business, that was almost 3 years ago, and I am

still doing it, it’s always nice to have the extra income, and I still

get to me new people! Good luck, I’ll be praying for success!

Marla

From: Neurosarcoidosis

[mailto:Neurosarcoidosis ]

On Behalf Of Diane Aja

Sent: Thursday, August 24, 2006

1:01 PM

To: Neurosarcoidosis

Subject: Hi

Everyone - Can't keep up

Hi,

I have not

posted lately and have not replied to a few people. I apologize.

It's a long story, but since I came home from the hospital three weeks ago I've

been battling the sarc monster and with the University Hospital

where my Rheumy is to get me back on some kind of Methotrexate (preferably

injection) and also let me know what's going on with insurance for

Remicade. To make a long story short, I was ready to call and fire them

when I got a phone call saying they were calling in the meth by

injection. FINALLY. My hubby gave me my first shot yesterday

morning and so far I've not had any of the side affects that I had from the

pills. I had horrible diarrhea within 10 minutes of taking the pills

which lasted for 4 to 5 days. I've had none so far. I had mouth

sores and other stuff also. Over 24 hours later and NO diarrhea!

Yea! My regular doc is not happy with how they are treating me at UTSouthwestern Hospital. I am going to see if I

can get into a group of so-called elite Rheumies at St. hospital in Dallas. My doc

wants someone to take me under their wing, because she says I am too seriously

ill not to have a doc monitoring me at all times. The university only has

clinics on Wednesdays and never returns calls!

I've been

extremely tired trying to get an Avon business

off the ground this week also. I'm totally not a sales person so this is

just something I'm trying since I can't really do my babysitting anymore but

once a week. Wish me luck because financially we are doing

horribly. This sarc monster has not only ruined me physically, but also

financially. O.k., so I'm whining now. ha-ha.

I have pictures

of my boys and hubby I'd love to put with the others, but can't figure out how

to get them off my computer yet. Someday I'll figure it out. I love

seeing everyone's pictures. I hope everyone is doing o.k. as I just don't

have time to read all my email! If I've miss anything serious in the last

couple weeks please send me an email personally. I don't want to miss if

anyone needed prayers or anything important happened.

Love and

hugs to all,

Diane in

TX

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