re: don't know what to think

[Guest guest]

I HATE TO BE NOSY, BUT WHERE DO YOU LIVE? AND WHO DO YOU SEE? I FEEL

LIKE I SHOULD BE CONNECTED TO YOU IN SOME WAY?

MY DAUGHTER KARLEE BETH{18MOS} WAS DIAGNOSED WITH MITO COMPLEX I AND

IV ON MARCH 12 OF THIS YEAR. I KNOW HOW YOU FEEL AND THESE SPECIAL

PEOPLE HERE HAVE HELPED ME SO MUCH, I DONT KNOW HOW I MAKE IT WITHOUT

READING EVERYDAY. I DONT POST MUCH, I CANT TYPE VERY WELL. MY BABY

HAS SEIZURES, SEVERE BRAIN DAMAGE, FEEDING TUBE AND LOST HER VISION

IN MARCH. SHE HAS GOTTEN ALOT WORSE IN THE PAST COUPLE OF WEEKS. SHE

CAN NO LONGER HOLD HER HEAD UP AT ALL. SHE IS STILL HAVING SEIZURES

WITH 5 MEDS ON BOARD. I FEEL SO HELPLESS. PLEASE LET ME KNOW ABOUT

YOU.

THANKS AND PRAYERS TO YOU,

DAVONNE

[Guest guest]

thank you for writting me back. I live in Florida and we go to All Childrens

Hospital in St Pete. its about an hour away there are so many specialists

that we see. We go to pediatric neurology it is affiliated with All

Childrens all of the specialists we see are with All Childrens. I will pray

for your little girl Im sorry I dont have any advice because I am so new to

all of this.One day at a time.

Adrienne

>

>Reply-To: Mito

>To: Mito

>Subject: re: don't know what to think

>Date: Thu, 03 Jun 2004 04:21:30 -0000

>

>

>I HATE TO BE NOSY, BUT WHERE DO YOU LIVE? AND WHO DO YOU SEE? I FEEL

>LIKE I SHOULD BE CONNECTED TO YOU IN SOME WAY?

>

>MY DAUGHTER KARLEE BETH{18MOS} WAS DIAGNOSED WITH MITO COMPLEX I AND

>IV ON MARCH 12 OF THIS YEAR. I KNOW HOW YOU FEEL AND THESE SPECIAL

>PEOPLE HERE HAVE HELPED ME SO MUCH, I DONT KNOW HOW I MAKE IT WITHOUT

>READING EVERYDAY. I DONT POST MUCH, I CANT TYPE VERY WELL. MY BABY

>HAS SEIZURES, SEVERE BRAIN DAMAGE, FEEDING TUBE AND LOST HER VISION

>IN MARCH. SHE HAS GOTTEN ALOT WORSE IN THE PAST COUPLE OF WEEKS. SHE

>CAN NO LONGER HOLD HER HEAD UP AT ALL. SHE IS STILL HAVING SEIZURES

>WITH 5 MEDS ON BOARD. I FEEL SO HELPLESS. PLEASE LET ME KNOW ABOUT

>YOU.

>THANKS AND PRAYERS TO YOU,

>DAVONNE

>

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