Guest guest Posted June 2, 2004 Report Share Posted June 2, 2004 I am a little late posting regarding this subject awhile back, but I was curious about my daughter, Lily's biopsy results that we were waiting for. So, I called to find out if hers were done fresh or frozen and not only did they tell me it was fresh, but I got the results back too! I thought that it was posted that there is only 3 places that do fresh, but I didn't think OHSU was included. They do fresh at Doernbecker children's hospital at the Oregon Health and Sciences University in Portland, Oregon. I've only been there a few times, so I don't know the reputation there, but it seems good. Anyway, her results all came back negative. But I believe they still think it's mito related due to her MRI results, so I guess we'll find out what comes next at her appointment on 6/21. Any recommendations or suggestions on what I should be doing next? I don't know if I should be pushing for any other meds besides Carnitor, but I feel that if something could be given to her to help, I want to give it to her! Thanks for all your help. I haven't posted much cuz I haven't felt of much help to anyone here, but hopefully someday I'll know as much as everyone else!! Still just trying to digest everything! Thanks again. Amy mother of Lily, 21 months, was suspected of Leigh's... but now???!!! And Austin, 4, seems healthy, just overly active! Quote Link to comment Share on other sites More sharing options...
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