Guest guest Posted June 4, 2004 Report Share Posted June 4, 2004 has always had a big liver since birth actually. Dr.cohen decided to biopsy it when she had her muscle biopsy done. It showed fibrosis and some cirrhosis. she has bone marrow failure and has recieved blood transfusions since birth. They are not sure if the excess iron from these has caused the damage or if it is mainly mito and the excess iron secondary. They have done every test none to mankind on her. B12 can cause anemia and I believe primarily that is why it was done-we are still looking for an answer to her anemia. anyways it is a simple blood test and until I found that link today, I never knew why she may have an elevated b12 level. I will be talking to her hem/onc next week about it. If your met. doc has some good reasoning behind it Holly please let me know.If I get any further info I too will pass it along. I am very concerned because my undiagnosed daughter Molly (soft signs) has this high level of b12 too-liver damage??? Dawn Quote Link to comment Share on other sites More sharing options...
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