Guest guest Posted June 6, 2004 Report Share Posted June 6, 2004 Cindy you are not alone! I know of one mito family who installed and industrial-flush toilet b/c of it and we had to have ours roto-rooted a few times b/c of it. This is a motility issue which is also an autonomic issue. Carnitor is thought to help here if you aren't on that yet...make sure and ask for Carnitor by name. L-Carnitine is not a RX but Carnitor is something only a pharmacist can make for you so you need to have an RX for it. Stool softeners are not going to help unless your child does become constipated, but I hear ya. I don't think there is a whole lot that can be done b/c its autonomic which is an issue with the brain and thus far, we don't have meds for that. Give the carnitor a try or increase it if you are already on it. Nope, you aren't alone...I remember looking the toilet and laughing and thinking about all my friends with 'normal' lives and how much laughter I get to have at the craziest things! deb...mom to three great adopted kids... (07.04.96-05.26.03) with Mitochondrial Disease, Gaige age 5 with High Functioning Autism & dysfluency and Bliss age 3 with very very mild Cerebral Palsy.http://www.heartliftersgallery.com/http://www.lifeofloveproject.org/ Quote Link to comment Share on other sites More sharing options...
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