New Drug Therapy - Methotrexate

[Guest guest]

Hello "Gang"

My doctors are going to be recommending a drug therapy for me tomorrow. Methotrexate is the one. I know many of you have tried this drug. Please give me your feedback I would appreciate it very much.

Sincere regards,

PS And please keep me in your prayers. I need it.

[Guest guest]

Ron,

I have

had good results with Methotrexate, I was put on Plaquanil first, then started

the Methotrexate, I take it Sunday night, and in the beginning I would be

extra tired and just not feel well in general on Monday but now I don’t

even notice it. It took about 3 months before I really noticed any

change. Then when I was feeling better the doctor had me reduce the dose

and possible go off it, but I noticed the fatigue and pain got worse, I was

able to reduce the dosage but not come off it, so I guess that proved it is

working. I will pray that it works well for you too.

God Bless,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of anewronald@...

Sent: Thursday, September 07, 2006

5:57 PM

To:

neurosarcoidosis

Subject: New

Drug Therapy - Methotrexate

Hello " Gang "

My doctors are going to be recommending a

drug therapy for me tomorrow. Methotrexate is the one. I know many

of you have tried this drug. Please give me your feedback I would

appreciate it very much.

Sincere regards,

PS And please keep me in your prayers. I

need it.

[Guest guest]

Ron,

If it is something you can do get the injectable form of

Methotrexate. I have never had any side effect from taking it this

way. If you can't give it to yourself then maybe you can go into

the drs office and git once a week. Good Luch and hope it works..

You are in my prayers...

Ruth

>

> Hello " Gang "

>

> My doctors are going to be recommending a drug therapy for me

tomorrow.

> Methotrexate is the one. I know many of you have tried this

drug. Please give

> me your feedback I would appreciate it very much.

>

> Sincere regards,

>

>

> PS And please keep me in your prayers. I need it.

>

[Guest guest]

Marla and Ruth,

Thank you for your feedback. Yes, I would prefer the injectible form.

Love ya, and keep on lovin me.

> >

> > Hello " Gang "

> >

> > My doctors are going to be recommending a drug therapy for me

> tomorrow.

> > Methotrexate is the one. I know many of you have tried this

> drug. Please give

> > me your feedback I would appreciate it very much.

> >

> > Sincere regards,

> >

> >

> > PS And please keep me in your prayers. I need it.

> >

>

[Guest guest]

Ron,

I take 6

tiny little pills every Sunday night, my liver functions have been normal for

the past 3 years of being on it, and like I said other then being tired I never

got really sick, I had some of the lower GI problems but even that got better

with time. Just in case your doctor wants to start with pills, thought I’d

share this.

Love ya,

Marla

From: Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of J. Blanchett

Sent: Thursday, September 07, 2006

9:40 PM

To: Neurosarcoidosis

Subject: Re:

New Drug Therapy - Methotrexate

Marla and Ruth,

Thank you for your feedback. Yes, I would prefer the injectible form.

Love ya, and keep on lovin me.

> >

> > Hello " Gang "

> >

> > My doctors are going to be recommending a drug therapy for me

> tomorrow.

> > Methotrexate is the one. I know many of you have tried this

> drug. Please give

> > me your feedback I would appreciate it very much.

> >

> > Sincere regards,

> >

> >

> > PS And please keep me in your prayers. I need it.

> >

>

[Guest guest]

Good day and prayers/love to everyone:

For the past three years I also have been on Methotrexate, a weekly

three pill regimen, in addition to the prednisone, Avonex, and the

plethora of other meds I take.

The methotrexate has never given me a problem, but maybe because the

dosage is so low. My GI tract gives me problems occasionally, sometimes

I have the urge to go, (poop/deficate) but cannot feel it coming out,

so in essence I do not know when I am done, if that makes sense...

Personally, I have just come to the conclusion that I am going to be

stuck with this and my auto-immune system is shot. I hate it, but I am

glad to be alive and will function for as long as I can.

Love and prayers,

Madonna

[Guest guest]

Madonna,

I find every day a blessing, if I can get

out of bed and get going I am thankful, everything else just falls into place.

Blessings,

Marl a

From:

Neurosarcoidosis [mailto:Neurosarcoidosis ] On Behalf Of madonna4ncd

Sent: Sunday, September 10, 2006

12:14 PM

To:

Neurosarcoidosis

Subject: Re:

New Drug Therapy - Methotrexate

Good day and prayers/love to everyone:

For the past three years I also have been on Methotrexate, a weekly

three pill regimen, in addition to the prednisone, Avonex, and the

plethora of other meds I take.

The methotrexate has never given me a problem, but maybe because the

dosage is so low. My GI tract gives me problems occasionally, sometimes

I have the urge to go, (poop/deficate) but cannot feel it coming out,

so in essence I do not know when I am done, if that makes sense...

Personally, I have just come to the conclusion that I am going to be

stuck with this and my auto-immune system is shot. I hate it, but I am

glad to be alive and will function for as long as I can.

Love and prayers,

Madonna