Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 ......I asked him if they check out my sarcoids in the blood test and he said that there is no way to check out the sarcoids in the blood...is that true...I thought there was a blood test that could be run to check out some level of blood cells related to sarcoid......... there is no specific test for sarcoidosis. Many of the MD's will run an ACE test-- angiotension converting enzymes that can show that we have inflammation in our bloodstream-- but it is not specific to sarcoidosis. The other blood tests: CRP- C-reactive protein is also a signifier of systemic inflammation, along with ESR e..sedimentation rate--and are helpful in finding arthritis-- but again--we still don't have anything specific to sarcoidosis. One of the newest tests that they are checking is TNF-a and TNF-b factors. This is Tumor Necrosing Factors A & B. We seem to have too many of one of these (B I believe) and that is why they are beginning to use the BRM's (Biological Response Modifiers) re: Enbrel, Humira and Remicade. TNF is a blood protein that normally cleans up white blood cells when they've done their jobs, but with us, they don't get cleaned out, they form granulomas- and the TNF-a & b glean on, and the granuloma gets bigger and bigger--kindof. You might want to go to SARCOIDOSISSHARMA and read his article. He has links at his site to many other articles also-- and research the different tests. He has given us a wonderful list of "what to request" for us to share with our MD's. Hope this helps, Tracie NS Co-owner/moderator Quote Link to comment Share on other sites More sharing options...
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