Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 Hi , Yes this is a common problem. My experience in this is that I have them for a while and then it lets up for a while. I wish I had an item to suggest for this but I don't. Hope you get through this and that the condition let's up for you for at least a while. Best wishes, Poncho - GA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 Dear , When I was first diagnosed with chronic pancreatitis I had horrible night sweats for the first couple of months. Then for the following two years, no night sweats whatsoever. I'm post menopausal, and had stopped having that kind of a problem seven years ago (the menopausal hot flashes and night sweats). First I'll ask, are you in the age group where you may be starting menopause? I started early at 40. Then in March, when I became diabetic and started on insulin, the night sweats started up again. Every night now I have them. I, too, have to get up and change at least once or twice every night. I've discussed this with my doctor's, my GI, and my Internist, and they have done several tests to try to determine the cause, but so far cannot find any cause for it. And I don't have any SOD problems. I have any appointment with my Endo next week and plan to discuss it with him, to see if he has any ideas. I know this really isn't an answer, but at least you will know you're not the only one. With hope and prayers, Heidi Heidi H. Griffeth South Carolina SC & SE Regional Rep PAI, Intl. Note: Comments or advice are personal opinion only, and should not be substituted for professional medical consultation. > I wake up several times a night and I am SOAKED. Sometimes I change night shirts 3-4 times a night and my hair and pillow are soaked through the next morning. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2003 Report Share Posted July 9, 2003 Heidi, could you possibly be having low or high blood sugar reactions in the middle of the night? I know I sweat a lot when I am either high or low. Have you tried checking your bloodsugar when you wake up from the sweating? Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2003 Report Share Posted July 9, 2003 Dear Kimber, Naturally that was one of my first reactions, especially since I do have hypo's on occasion. But, nope, that wasn't it. I tested each time I woke up drenched in sweat for the first few weeks, it didn't matter, I could be as low as 50, normal like 100 or up to 147. Fortunately, none of the middle of the night tests were exceedingly high and 95% of the time the BG's were in the neighborhood of 100. I am having my HbA1c done tomorrow, and meet with my Endo next week, so I'll tackle this problem again with him. My GI, Internal Medicine Dr. and Internist have all drawn blanks even after tests and blood work. Perhaps the Endo will have a fresh idea. I'm anxious to see the results of the A1c since now I've got the new glucometer I can check my averages and my 7 day was 104, 14 day was 107 and 30 day was 114! Hopefully this will mean a good A1c! The night sweats have really become a problem I could live without. If it only happened once in a while it wouldn't be so bad. When hubby's home, my waking and changing clothes disturbs him. I can't change the sheets since that totally wakes him, so then I either move to the guest room or put down a folded sheet over the damp one on my side. He hates for me to sleep in the guest room, though, since he's only home three nights a week and likes to have me there. When he's on a trip, I just change clothes and then get in his unoccupied side of the bed. But it has become such a pain in the bum to do this night after night after night, and I'm finding I have to nap every day now just to catch up on my sleep. So if I seem short and grumpy on my early morning posts, you'll know what the reason is.......sleep depravation! Thanks for your imput. With hope and prayers, Heidi Heidi H. Griffeth South Carolina SC & SE Regional Rep PAI, Intl. Note: Comments or advice are personal opinion only, and should not be substituted for professional medical consultation. > could you possibly be having low or high blood sugar reactions in the middle of the night? Kimber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2003 Report Share Posted July 10, 2003 Heidi, It was a thought. I don't always have night sweats and they aren't bad enough where i have to change the sheets. I occasionally need to change, but it hasn't really hit my sheets yet. Maybe it's because I don't really sleep with many covers, so I don't get very hot from them. I usually only sleep with a light cover and a sheet (and occasionally an electric blanket in the winter) and in the summer I frequently don't even use a cover or a sheet at all. Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2003 Report Share Posted July 10, 2003 dear kimber, my dougther doesn`t have any sugar problem, but the pain in the nigth is terrible when she is with a crisis, her problem is genetic so she had a papilotomy and now she is better. Sorry my english but i speak spanish. Marìa del Pilar. _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2003 Report Share Posted July 10, 2003 Pilar. I wish I spoke more spanish (I can say hello and a few other phrases in Spanish), but I don't. My pain is usually worse at night. Mine is due to a birth defect called a pancreatic divisum. It means the ducts are divided into two instead of one duct that is y shaped. I am glad your daughter is doing better. Kimber -- Kimber Vallejo, CA hominid2@... Note: All advice given is personal opinion, not equal to that of a licensed physician or health care professional. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2003 Report Share Posted July 11, 2003 Hi, I have had this problem on and off for years and no doc said to me why this happen, to be more correct they had to me various answers, different ones. One said that it's from weakness, other from hormones, other from infection so according my symptoms I developed my own answer. I can tell that this happen when I will caught a infection, heavy flu for example and when I have hormonal imbalance close to my periods. Last month I had a bout of night sweats, I woke up in middle of the night in soaking, I had to change all my clothes (incl. my underwear), really nasty.. As I also had hot flashes during the day (head, neck and chest), I think that I need to check my hormone's levels. By for now, Liane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 Dear , I sure wish I had an answer for you, because the night sweats/soreness have caused me nightly problems for over six months now. When I was first diagnosed with CP 2 1/2 years ago, they started, but only occasionally, and within a couple of months they disappeared entirely. Then immediately after my release from the hospital in March, when I first started on insulin after being diagnosed with diabetes, they started again and have never ceased. I've probably had only three dry nights in the last six months. They soak me, my pillow, both top and bottom sheet and even the blanket above, and I often have to change sleeping attire two or three times a night, because once I'm wet like that I then get cold. Let me explain that I'm post menopausal and finished the menopausal night sweats and hot flashes well over eight years ago, so we know it's not caused by that. My respective doctors have tested my hormones anyway, and they were fine. My GI/Internal medicine physician also ran some other tests, and everything has come back negative. No one seems to have an explanation for it, and truthfully, I'm about at the end of my rope. It causes me so much lack of sleep that now I end up fatigued and sore every morning when I wake up. I don't seem to have cramps like you do, this is just an all-over achiness and soreness that takes an hour or so to shake off each morning. At one time I wondered if it was my medications, but everyone says this isn't their side effects. I'm on the duragesic patch, take Percocet, Synthroid (just started that), Celexa and two handfulls of various antioxidants and vitamins. Any similarities in our meds? I'm have an appointment with my GI on Monday morning to review my ultrasound pics of my pseudocysts and I plan to bring this up with him again to see if we can find some answer. It's really gotten so persistant that it's driving me CRAZY!!!! Sorry I didn't have an answer for you, just wanted to let you know that you're not alone in your damp misery.....BTW, I don't have SOD. With hope and prayers, Heidi Heidi H. Griffeth South Carolina SC & SE Regional Rep. PAI, Intl. Note: All comments and advice are personal opinion only, and should not be substituted for professional medical consultation. > Does anyone have any input into the night sweats. Does it just go along with CP? Also, any input on the body aches would be greatly appreciated as this pretty much just started with me. (Ohio) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Grace gets night sweats from being hypoglycemic. If we do not do preventitive measures it is a guarantee that she will wake up in the morning soaking wet, and usually very shaky. I do not know if there is any link to ketosis or not, but I am sure someone else on the list will. Just wanted to let you know what causes it for our little one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Arlene, Before starting the mito cocktail my son had night sweats frequently. He also frequently went into ketosis overnight. Does anyone know if sweating is linked to ketosis? Now he only has problems when he is sick (or coming down with something) or when he has a day with too much activity. While visiting Michigan for my father-in-law's funeral the boys and their Uncle Mike got "lost" during on a hike in the woods and the hike was much longer than intended. That night Evan had a drenching night sweat, and he was talking in his sleep (as far as I know it was the first time he ever did this). We are back in Texas, and as much as I hate rain I am glad that it is not too hot this week esp. after being spoiled with the great weather in Michigan last week, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 after being spoiled with the great weather in Michigan last week, , Thanks for the good laugh! I live in Mich and we have a saying here- "If you don't like the weather, wait 5 minutes". Where were you visiting, if you don't mind me asking? e, Chelsea's mom(nonspcific mito) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2004 Report Share Posted June 14, 2004 We made an unplanned trip to the Detroit suburbs for my father-in-law's funeral. He passed away after a lengthy battle with cancer. He started chemo the week before he died, but he just wasn't strong enough to tolerate the drugs and the immunosuppression. We were very lucky that he was able to come to Texas for 's confirmation at the beginning of May. Texas has only one kind of weather in the summmer TOO HOT!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 Beth, Matt may just sweat a lot even though he is not ketotic. Max sure does. He does not have hypoG except when he is sick, but he sweats a whole lot. While the rest of us are freezing, Max will be outside in a sweatshirt and sweating away. And when he sleeps, the rest of us are covered with down comforters and quilts, but Max sleeps with only a sheet at best. Even then, he wakes up from time to time just drenched. I tell him that he is having hot flashes like me! We were in Atlanta last weekend. I wanted to call you, but we arrived later on Friday than we expected and then the wedding was Saturday in Roswell. We left on Sunday after a brunch at my brother- in-law's. (I'd rather have called you!!!) But we did fly over Peachtree City and I waved to you. Did you see me? Jodi Z Quote Link to comment Share on other sites More sharing options...
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