Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 GOD MORNING FELLOW SARCOIDOIANS, I WOKE UP THIS MORNING FEELING DRAINED, EXPERIENCING SEIZURES/SHAKES (WHATEVER THEY CALL IT). NOT MUCH BETTER THAN YESTERDAY, WHEN I JUST COULDNT STAY FOCUSED AND FELT VERY EXHAUSTED...IT WAS A TASK JUST TO WALK ACROSS THE FLOOR OR MOVE FROM ONE ROOM TO THE NEXT IN MY APARTMENT.... I'M ANGRY RIGHT NOW AND I DONT WANT TO BE SO I'M ASKING YOU ALL FOR YOUR OPINION.... WHY AM I ANGRY? BECAUSE I KNOW THAT THIS DISEASE AFFECTS/EFFECTS NOT JUST MYSELF BUT MY FAMILY AS WELL...HOWEVER IT PISSES ME OFF WHEN THEY WANT TO WALK AROUND WITH ATTITUDE BECAUSE YOU ASK THEM TO DO SOEMTHING FOR YOU. OR WHEN THEY HAVE SOMETHING AS MENIAL AS A COMMON COLD AND WANT TO ACT LIKE THEY ARE AT THE END OF THEIR ROPE...LOL ESPECIALLY MY HUSBAND.... I DON'T THINK THEY REALIZE HOW FORTUNATE THEY ARE TO WAKE UP HEALTHY EVERY MORNING AND BE ABLE TO KEEP THEIR MIND RIGHT ABOUT THEM ...BECAUE THEY DONT SUFFER WITH THIS DISEASE...ALONG WITH SEIZURES SHAKES WHATEVER YOU WANT TO CALL IT... I TRY MY BEST TO KEEP AN UPBEAT ATTITUDE FOR THEM EVEN ON MY WORSE DAYS AND THESE PAST FEW DAYS HAVE BEEN HARD TO DO SO....THEY KNOW THAT I WILL GET UP AND PUSH MYSELF TO THE LIMIT AND TRY TO KEEP THEM UPBEAT EVEN WHEN I DONT HAVE THE STRENGTH TO DO SO....YET I HAVE TO WALK AROUND AND SEE LONG FACES...DEAL WITH ATTITUDES...ITS PISSING ME OFF MORE AND MORE ON A DAILY BASIS ... IT PISSES ME OFF WHEN SOMEONE WANTS TO ARGUE OVER MENIAL BULL, SOMETHING SO MINUTE...(LIKE I HAVE THE ENERGY TO GET INTO A LONG DRAWN OUT ARGUEMENT OR DEBATE OVER THE FACT THAT SOMEONE LEFT A GLASS IN THE LIVING ROOM OR DIDN'T PUT THE GARBAGE IN THE YARD OUTSIDE).....MY THING IS OK I'LL MAKE SURE I TALK TO THEM...BUT THE PERSON THATS UPSET WANTS TO MAKE A MOUNTAIN OUT OF A MOE HILL ABOUT IT.... JUST THINGS LIKE THAT ...THAT END UP HAVING ME SAY TO THEM...HOW DARE YOU WALK AROUND HERE UPTIGHT AND UPSET OVER THIS MESS....LET IT GO ITS NOT THAT SERIOUS.....TRY GOING THROUGH WHAT I GO THROUGH ON A REGULAR BASIS....OR TRY HAVING ONE OF MY WORSE DAYS....THEN MAYBE YOU HAVE A RIGHT TO COMPLAIN .... IF IM NOT WALKING AROUND HERE COMPLAINING ABOUT NOT FEELING WELL AND GETTING MAD AT THIS DISEASE EVERYDAY BECAUSE IM NO LONGER MYSELF....WHAT GIVES YOU THE RIGHT TO COMPLAIN OR BE MAD ABOUT SOMETHING SO MINUTE..... I DONT HAVE THE PATIENCE NOR THE TOLERANCE FOR PPL THAT WANT TO WALK AROUND WITH ATTITUDE...ESPECIALLY HEALTHY PPL...THAT WANT TO ACT LIKE THE WORLD OWES THEM.....IT REALLY GETS MY GOAT..... I DONT HAVE THE PATIENCE FOR ANYONE THAT WANTS TO SIT BACK AND HAVE A PITY PARTY ...I DONT DO PITY PARTIES.... I HAVE BEEN TOLD THAT I CAN BE VERY COLD WHEN IT COMES TO SOMEONE ELSE'S ISSUES....ITS TRUE ....BECAUSE UNLESS YOU HAVE A REAL REASON TO WALK AROUND FEELING SORRY FOR YOURSELF.....I DONT WANT TO HEAR IT....IF WE AS SARCOID PATIENTS ...OR CANCER PATIENTS...BLIND PPL....CAN WAKE UP EVERYDAY AND DEAL WITH A SICKNESS THAT IS TRYING TO TAKE US OUT WITH A SMILE ON OUR FACE THEN I REALLY DONT HAVE TIME FOR...TOLERANCE FOR SOMEONE THAT SHOULD BE THANKING THEIR LUCKY STARS THAT THEY ARE HEALTHY BUT INSTEAD WANT TO WHINE AND COMPLAIN.....ABOUT LOVE LIFE AND RELATIONSHIPS... IF YOU ARE IN A RELATIONSHIP THAT KEEPS YOU SAD MORE THAN HAPPY ....GET OUT OF IT.... IF YOU HATE YOUR JOB...FIND ANOTHER.....IF YOUR KIDS ARE STRESSING YOU AND DONT WANT TO GET ON THE RIGHT PATH FOR THEMSELVES....LET THEM LEARN AND MAKE THEIR OWN MISTAKES....DON'T STRESS IT GIVE IT TO GOD...HE WILL WORK IT OUT..... MY HUSBAND SAID TO ME ONE DAY. THAT I GOT NERVE GETTING MAD AT THEM (FAMILY) WHEN THEY ARE WALKING AROUND HAVING A BAD DAY...HE SAID THAT I ACT LIKE IM THE ONLY ONE ENTITLED TO HAVE A BAD DAY BECAUSE I'M SICK.....I GUESS I DO DO THAT ....LOL...I'M NOT SAYING THAT I'M ENTITLED....I'M JUST SAYING THAT I DON'T COMPLAIN ABOUT IT ON A REGULAR BASIS ...IF I DON'T GET OUT OF MY BED THEN YOU KNOW I'M HAVING A BAD DAY....IF BIG MAMA C DONT GET UP AND GET ON THE KIDS CASE ABOUT WHAT THEY ARE SUPPOSE TO DO THEN SHE IS HAVING A REAL BAD DAY.....AND THAT IS NOT OFTEN.... AM I WRONG? FOR FEELING LIKE THEY HAVE NO RIGHT TO BE ANGRY OVER MENIAL BULL ...TO WANT TO ARGUE OVER NOTHING ..... AM I WRONG? FOR FEELING LIKE THEY SHOULDN'T WHINE AND COMPLAIN WHEN THEY HAVE JUST A COMMON COLD....AND SAY TO THEM TAKE SOME MEDICINE AND MOVE ON AT LEAST IT WILL GO AWAY .. ITS JUST A COLD.... AM I WRONG? FOR SAYING POP A MIDOL AND STOP WHINING....ITS JUST CRAMPS AM I WRONG? FOR WANTING TO SHAKE THE MESS OUT OF THOSE WHO DON'T COUNT THIER BLESSINGS BUT WANT TO HAVE A PITY PARTY ABOUT SOMETHING THAT CAN BE FIXED....AND WITHOUT MEDICATIONS THAT MAKE YOU FEEL LIKE YOU'RE GOING CRAZY..... WHAT KEEPS ME FROM FALLING INTO A DEEP DEPRESSION ABOUT THIS DISEASE AND ALL THAT I GO THROUGH WITH IT ...IS THE FACT THAT THERE ARE PPL OUT THERE IN THE WORLD GOING THROUGH WORST THAT I AND THEY ARE MAKING IT ....THEY KEEP ON KEEPING ON....AND IF THEY CAN DO IT WITH A SMILE ON THEIR FACE SO CAN I..... I WATCHED THE SPIKE LEE DOCUMENTARY WHEN THE LEVEES BROKE...AND LET ME SAY WITH ALL HONESTY ...I DONT THINK THAT I WOULD'VE SURVIVED THAT....I DON'T KNOW HOW TO SWIM....PANIC WOULD'VE TAKEN OVER.....ALL THOSE PPL THAT DID MAKE IT THROUGH ARE WITHOUT THE MATERIAL THINGS THAT THEY ONCE HAD ...BUT I BET ALOT ARE JUST HAPPY TO BE ALIVE AND HEALTHY ENOUGH TO GO OUT AND ACCUMULATE THEM AGAIN..... FOR THOSE THAT WANT TO SIT BACK AND LET LIFE'S UP AND DOWN'S KEEP THEM DOWN WHEN THEY SHOULD BE COUNTING BLESSINGS....I SAY TO THEM STAY DOWN IF YA WANT....IM GOING TO RAGE AGAINST THE DYING OF THE LIGHT.....IM NOT GOING GENTLE.......CAUSE I GOT THE VICTORY....... YA HEARD...... GIVE ME SOME FEEDBACK...I JUST WANT TO KNOW IF I'M WRONG...AND IF YOU FEEL I AM....DONT HESISTATE TO TELL ME HOW YOU THINK I SHOULD HANDLE TH SITUATION... I'M NOT TOO OLD TO LEARN NEW TRICKS LOVE YOU ALL Quote Link to comment Share on other sites More sharing options...
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