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IS IT WRONG?

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GOD MORNING FELLOW SARCOIDOIANS,

I WOKE UP THIS MORNING FEELING DRAINED, EXPERIENCING SEIZURES/SHAKES

(WHATEVER THEY CALL IT). NOT MUCH BETTER THAN YESTERDAY, WHEN I JUST

COULDNT STAY FOCUSED AND FELT VERY EXHAUSTED...IT WAS A TASK JUST TO

WALK ACROSS THE FLOOR OR MOVE FROM ONE ROOM TO THE NEXT IN MY

APARTMENT....

I'M ANGRY RIGHT NOW AND I DONT WANT TO BE SO I'M ASKING YOU ALL FOR

YOUR OPINION....

WHY AM I ANGRY?

BECAUSE I KNOW THAT THIS DISEASE AFFECTS/EFFECTS NOT JUST MYSELF BUT

MY FAMILY AS WELL...HOWEVER IT PISSES ME OFF WHEN THEY WANT TO WALK

AROUND WITH ATTITUDE BECAUSE YOU ASK THEM TO DO SOEMTHING FOR YOU. OR

WHEN THEY HAVE SOMETHING AS MENIAL AS A COMMON COLD AND WANT TO ACT

LIKE THEY ARE AT THE END OF THEIR ROPE...LOL ESPECIALLY MY HUSBAND....

I DON'T THINK THEY REALIZE HOW FORTUNATE THEY ARE TO WAKE UP HEALTHY

EVERY MORNING AND BE ABLE TO KEEP THEIR MIND RIGHT ABOUT

THEM ...BECAUE THEY DONT SUFFER WITH THIS DISEASE...ALONG WITH

SEIZURES SHAKES WHATEVER YOU WANT TO CALL IT...

I TRY MY BEST TO KEEP AN UPBEAT ATTITUDE FOR THEM EVEN ON MY WORSE

DAYS AND THESE PAST FEW DAYS HAVE BEEN HARD TO DO SO....THEY KNOW

THAT I WILL GET UP AND PUSH MYSELF TO THE LIMIT AND TRY TO KEEP THEM

UPBEAT EVEN WHEN I DONT HAVE THE STRENGTH TO DO SO....YET I HAVE TO

WALK AROUND AND SEE LONG FACES...DEAL WITH ATTITUDES...ITS PISSING ME

OFF MORE AND MORE ON A DAILY BASIS ...

IT PISSES ME OFF WHEN SOMEONE WANTS TO ARGUE OVER MENIAL BULL,

SOMETHING SO MINUTE...(LIKE I HAVE THE ENERGY TO GET INTO A LONG

DRAWN OUT ARGUEMENT OR DEBATE OVER THE FACT THAT SOMEONE LEFT A GLASS

IN THE LIVING ROOM OR DIDN'T PUT THE GARBAGE IN THE YARD

OUTSIDE).....MY THING IS OK I'LL MAKE SURE I TALK TO THEM...BUT THE

PERSON THATS UPSET WANTS TO MAKE A MOUNTAIN OUT OF A MOE HILL ABOUT

IT....

JUST THINGS LIKE THAT ...THAT END UP HAVING ME SAY TO THEM...HOW

DARE YOU WALK AROUND HERE UPTIGHT AND UPSET OVER THIS MESS....LET IT

GO ITS NOT THAT SERIOUS.....TRY GOING THROUGH WHAT I GO THROUGH ON A

REGULAR BASIS....OR TRY HAVING ONE OF MY WORSE DAYS....THEN MAYBE YOU

HAVE A RIGHT TO COMPLAIN ....

IF IM NOT WALKING AROUND HERE COMPLAINING ABOUT NOT FEELING WELL AND

GETTING MAD AT THIS DISEASE EVERYDAY BECAUSE IM NO LONGER

MYSELF....WHAT GIVES YOU THE RIGHT TO COMPLAIN OR BE MAD ABOUT

SOMETHING SO MINUTE.....

I DONT HAVE THE PATIENCE NOR THE TOLERANCE FOR PPL THAT WANT TO WALK

AROUND WITH ATTITUDE...ESPECIALLY HEALTHY PPL...THAT WANT TO ACT LIKE

THE WORLD OWES THEM.....IT REALLY GETS MY GOAT.....

I DONT HAVE THE PATIENCE FOR ANYONE THAT WANTS TO SIT BACK AND HAVE

A PITY PARTY ...I DONT DO PITY PARTIES....

I HAVE BEEN TOLD THAT I CAN BE VERY COLD WHEN IT COMES TO SOMEONE

ELSE'S ISSUES....ITS TRUE ....BECAUSE UNLESS YOU HAVE A REAL REASON

TO WALK AROUND FEELING SORRY FOR YOURSELF.....I DONT WANT TO HEAR

IT....IF WE AS SARCOID PATIENTS ...OR CANCER PATIENTS...BLIND

PPL....CAN WAKE UP EVERYDAY AND DEAL WITH A SICKNESS THAT IS TRYING

TO TAKE US OUT WITH A SMILE ON OUR FACE THEN I REALLY DONT HAVE TIME

FOR...TOLERANCE FOR SOMEONE THAT SHOULD BE THANKING THEIR LUCKY STARS

THAT THEY ARE HEALTHY BUT INSTEAD WANT TO WHINE AND

COMPLAIN.....ABOUT LOVE LIFE AND RELATIONSHIPS... IF YOU ARE IN A

RELATIONSHIP THAT KEEPS YOU SAD MORE THAN HAPPY ....GET OUT OF IT....

IF YOU HATE YOUR JOB...FIND ANOTHER.....IF YOUR KIDS ARE STRESSING

YOU AND DONT WANT TO GET ON THE RIGHT PATH FOR THEMSELVES....LET THEM

LEARN AND MAKE THEIR OWN MISTAKES....DON'T STRESS IT GIVE IT TO

GOD...HE WILL WORK IT OUT.....

MY HUSBAND SAID TO ME ONE DAY.

THAT I GOT NERVE GETTING MAD AT THEM (FAMILY) WHEN THEY ARE WALKING

AROUND HAVING A BAD DAY...HE SAID THAT I ACT LIKE IM THE ONLY ONE

ENTITLED TO HAVE A BAD DAY BECAUSE I'M SICK.....I GUESS I DO DO

THAT ....LOL...I'M NOT SAYING THAT I'M ENTITLED....I'M JUST SAYING

THAT I DON'T COMPLAIN ABOUT IT ON A REGULAR BASIS ...IF I DON'T GET

OUT OF MY BED THEN YOU KNOW I'M HAVING A BAD DAY....IF BIG MAMA C

DONT GET UP AND GET ON THE KIDS CASE ABOUT WHAT THEY ARE SUPPOSE TO

DO THEN SHE IS HAVING A REAL BAD DAY.....AND THAT IS NOT OFTEN....

AM I WRONG? FOR FEELING LIKE THEY HAVE NO RIGHT TO BE ANGRY OVER

MENIAL BULL ...TO WANT TO ARGUE OVER NOTHING .....

AM I WRONG? FOR FEELING LIKE THEY SHOULDN'T WHINE AND COMPLAIN WHEN

THEY HAVE JUST A COMMON COLD....AND SAY TO THEM TAKE SOME MEDICINE

AND MOVE ON AT LEAST IT WILL GO AWAY .. ITS JUST A COLD....

AM I WRONG? FOR SAYING POP A MIDOL AND STOP WHINING....ITS JUST CRAMPS

AM I WRONG? FOR WANTING TO SHAKE THE MESS OUT OF THOSE WHO DON'T

COUNT THIER BLESSINGS BUT WANT TO HAVE A PITY PARTY ABOUT SOMETHING

THAT CAN BE FIXED....AND WITHOUT MEDICATIONS THAT MAKE YOU FEEL LIKE

YOU'RE GOING CRAZY.....

WHAT KEEPS ME FROM FALLING INTO A DEEP DEPRESSION ABOUT THIS DISEASE

AND ALL THAT I GO THROUGH WITH IT ...IS THE FACT THAT THERE ARE PPL

OUT THERE IN THE WORLD GOING THROUGH WORST THAT I AND THEY ARE MAKING

IT ....THEY KEEP ON KEEPING ON....AND IF THEY CAN DO IT WITH A SMILE

ON THEIR FACE SO CAN I.....

I WATCHED THE SPIKE LEE DOCUMENTARY WHEN THE LEVEES BROKE...AND LET

ME SAY WITH ALL HONESTY ...I DONT THINK THAT I WOULD'VE SURVIVED

THAT....I DON'T KNOW HOW TO SWIM....PANIC WOULD'VE TAKEN OVER.....ALL

THOSE PPL THAT DID MAKE IT THROUGH ARE WITHOUT THE MATERIAL THINGS

THAT THEY ONCE HAD ...BUT I BET ALOT ARE JUST HAPPY TO BE ALIVE AND

HEALTHY ENOUGH TO GO OUT AND ACCUMULATE THEM AGAIN.....

FOR THOSE THAT WANT TO SIT BACK AND LET LIFE'S UP AND DOWN'S KEEP

THEM DOWN WHEN THEY SHOULD BE COUNTING BLESSINGS....I SAY TO THEM

STAY DOWN IF YA WANT....IM GOING TO RAGE AGAINST THE DYING OF THE

LIGHT.....IM NOT GOING GENTLE.......CAUSE I GOT THE VICTORY.......

YA HEARD......

GIVE ME SOME FEEDBACK...I JUST WANT TO KNOW IF I'M WRONG...AND IF YOU

FEEL I AM....DONT HESISTATE TO TELL ME HOW YOU THINK I SHOULD HANDLE

TH SITUATION...

I'M NOT TOO OLD TO LEARN NEW TRICKS

LOVE YOU ALL

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