Re: Re: Procrit Help (to from Joan)

[Guest guest]

OMG, ! I cannot believe your own PCP insinuates such!!! ... and one Lortab at nite for our type of bone pain?!? ... what a joke!!! I hope it is the 10/500 mg tabs at least!?!

I take 4 methadone tabs a day; I only take Lortab for breakthrough pain ... but I am prescribed 4 per day if necessary. and the MTX is big on helping to control the pain as well. If I skip the MTX for a week ... which I do if I need to see a dr. in the city that week, well, I have to take it as soon as I get home from my appt. ... my sarc. spec. explained that every person has his/her own time period to be without the MTX ... mine is approx. 4 days ... if I don't take it on Sunday as normally scheduled, then by Thursday, I am in trouble.

Anyway, do you have a Pain Specialist? They truly do understand pain and are really very empathetic to those with chronic pain .. that is why they have chosen this field. It is actually a "Pioneer's" field for practice right now. Every pain dr. I've dealt with at the office I go to (there are about 10 doc's and 2 nurse practitioners) are striving to get each person that comes into their office out of pain and then keep them that way. They are extremely careful regarding the narcotics though ... random urine/blood tests -- which everyone is subjected to at some point, lots of contracts ... you have to sign a contract to see a psychiatrist several times a year so they are as confident as possible you are not suicidal, sign a contract stating you will use the one pharmacy you have named on their chart, and a few others that I forget right now. If you lose your script or meds, you don't get a refill until next month. If you lose them more than once, your on your way to being released.

I take a lot of medications too ... about 10 also. I stopped taking one of them, thinking I could do without it, but I think I need to start again.

That is terrible! what happens to you from the Paxil!!! I wonder if it is the Paxil that is causing me to have these strange episodes. My father heard the kitchen sink water running for a very long time ... I was only washing a few dishes. He found me with my head in the sink! ... he woke me up ... this occurred two more times!

I have episodes where I will be wide awake; then suddenly asleep. There are times when am articulate but telling "stories" or responding to someone with a completely unrelated answer to their question. I have episodes where I completely forget what I am trying to say to someone. Sometimes I recall these and sometimes I completely forget it all until someone tells me.

I find it really, really disturbing that I no longer control my own brain. I am never left alone ... which is annoying, too ... but, I understand it is necessary. I get sad when I think about taking a drive by myself, opening the sunroof, listening to good, loud music...I really miss that.

Oh well ... I really hope you find another, more understanding PCP!!! I have a difficult time in understanding that ... I now relaize I am very lucky with my doctors ... they are all pretty much tuned in to what is happening with me ... I think they are curious as to where this will progress and what works and doesn't work as well.

Good Luck to You, Sweetie!,

Hugs and Prayers,

Joan

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Thanks Ruth, I know you're right, its not my first fight but dang I'm getting really very tired of all of this, not mentally tired I mean physically tired..My PCP isn't supportive nor does she make any bones about the fact that she's not gonna do anything for me, why am I staying? Well for just a few more days, she is pregnant, and is going on maternity leave, she has it in my chart that I'm just seeking medication, which is stupid because what I take is like B/P meds, fluid tablets, imuran, a multivitamin, Calcium, a few other over the counter meds that she's ordered. I do take one Lortab at night for bone pain, but that's it... because I'm on more than 10 medications that "SHE'S" ordered, I just want to take medications just to be taking something.. HOW STUPID!!! This is the same person that told me that if I didn't agree to take Paxil that there wasn't anything thing she could do for me. I bet she forgot that.. Well I took it for a short while, my sleep apnea doctor says that's why I'm getting up in my sleep and waking up in different locations, I even wrecked my wheelchair one night in my sleep and woke up due to the crash.

I won't give up, I have a 16 year old son that needs me right now, but I'm telling ya if it wasn't for him, I don't know..

Thanks again,

-- Re: Procrit Help

Dear ,

Getting the medications we need is so incredible frustrating. DON"T GIVE UP! KEEP FIGHTING. Even though the drug company says they won't give you the drug because you have insurance ... apply anyway as special circumstances. My insurance denied Remicade for me and I went to the drug company and got it approved for 6 months. Sorry I can help you with Medicare D as I don't have it.

It would be so wonderful if some big shot in the drug industry would realize that if they gave us the drugs we need they would be saving huge amonts of money by keeping us healthy!!! (well healthier) WHAT **** & ^%$#% & *** idiots they are!!

I understand how difficult it is to seek a new primary care doctor also. I shutter at the thought of having to explain my medical history to just one more doctor!!!....I don't like my PC Doc (not that she isn't supportive of me ..I just don't click with her) but she has wonderful nurse practioners and I only see them. If they were to move practices I'd go with them.

PLEASE don't give up....keep looking for a way to get this medication!!

ttfn

Ruth

>> Hey friends, I need to know if any of you know if any of you can tell > me what to do to get my Procrit approved through my Medicare D > prescription plan. For the first time in 5 years I finally find a > medicine that was giving me some hope as to feeling better, and what > happens Medicare snatches it right from under me. And the pain in the > arse doctor Dendy just tells me that I'll have to pay for it out of > pocket if I decided that "I want to continue the medication" I don't > really see that there is no choice.. its not a matter of me just > wanting to continue the medication, its the fact that I need the > medication. I'm ready to "KILL HER" and I promise you guys that I have > seen her my very last time!!! I'm tired of her degrading comments as > to there being nothing really wrong with me, then why am I loosing > blood, hct is staying 24, why am I taking a imuno suppressant if there > is nothing wrong with me.. yeah sure I want my immune system to be > compromised so that everytime someone sneezes I'm sick. That when a > small child comes up to hug me at church I have to make a quick check > to see if they have green drainage pouring from their nose before that > happens.. I'm bad. I really do think that this woman would rather see > me die than to confess that I am sick....>