Re: Procrit Help (to from Joan)

[Guest guest]

Joan sweetie, thank you... its been a circus dealing with these

doctors.. its sad medicine has gotten to this point, and they won't

listen to their patients. I've had bad myoclonic jerks (total body)

I've been to the ER at least 3-4 times having them, do you think

she's come down to see me? No they don't actually hurt, but they

are uncomfortable, you can't hold anything in your hands, or you

drop them, its almost like having touretts syndrome.. jerking all

over the place. No one seems concerned.. How in the world can this

be? She screwed over all of my meds, my neuro meds, my sleep apnea

doctor has just about had a fit because of the med changes without

her input.

As for the pain secialist, Dr Dendy had already written him a note

saying there wasn't anything wrong with me, so the first words out

of his mouth is " We have to find something wrong with you before we

can give you medicine " I told him about the sarcoidosis and he did

say that he did see several sarcoid patients..but made no indication

if sarcoid was the indication for pain or not.. So, he did do a CT

scan of my back and found multiple problems, one is a bulging disc,

2 pinched nerves..spurs etc.. Right now he's focusing in on the

disc.. but hey I have bone pain in my legs as well as my back..

anyway.. thank you for your and to all of the rest of you thank you

for your support..

Much Love,

> >

> > Hey friends, I need to know if any of you know if any of you

can tell

> > me what to do to get my Procrit approved through my Medicare D

> > prescription plan. For the first time in 5 years I finally find

a

> > medicine that was giving me some hope as to feeling better, and

what

> > happens Medicare snatches it right from under me. And the pain

in the

> > arse doctor Dendy just tells me that I'll have to pay for it

out of

> > pocket if I decided that " I want to continue the medication " I

don't

> > really see that there is no choice.. its not a matter of me

just

> > wanting to continue the medication, its the fact that I need

the

> > medication. I'm ready to " KILL HER " and I promise you guys that

I have

> > seen her my very last time!!! I'm tired of her degrading

comments as

> > to there being nothing really wrong with me, then why am I

loosing

> > blood, hct is staying 24, why am I taking a imuno suppressant

if there

> > is nothing wrong with me.. yeah sure I want my immune system to

be

> > compromised so that everytime someone sneezes I'm sick. That

when a

> > small child comes up to hug me at church I have to make a quick

check

> > to see if they have green drainage pouring from their nose

before that

> > happens.. I'm bad. I really do think that this woman would

rather see

> > me die than to confess that I am sick....

> >

>