MY HUBBY HAS UC FOR 7 YRS JUST DIAGNOSED WITH ANKYLOSING SPONDYLITIS

[Guest guest]

Dear Mea,

Has he started the diet yet? My husband was dx'd with UC last month, has been on the diet 5 weeks, and says he has no more pain in his joints. He used to get up in the morning and hobble around until he "got loosened up" and now, he hope right out of bed! I know I've read that sugar and carbs (which turns to sugar in our bodies) contributes to inflammation which contributes to a whole host of other maladies.

Blessings,

MY HUBBY HAS UC FOR 7 YRS JUST DIAGNOSED WITH ANKYLOSING SPONDYLITIS

Posted by: "mea" jesenia_daughtry@... jesenia_daughtry

Sun Nov 29, 2009 8:52 pm (PST)

WONDERED IF ANYONE ELSE HAS SAME DIAGNOSIS WITH UC. APPARENTLY IT GOES HAND IN HAND WITH UC. JUST NEED SOME UPBUILDING COMMENTS FOR ME AS WELL AS TO SHARE WITH MY HUSBAND. THE WORLD SEEMS TO BE COLLAPSING ON TOP OF US. HIS UC IS EXTREME AND NOW THIS OTHER CONDITION IS ALSO EXTREMELY PAINFUL AND DEBILITATING. ANYONE!!! THANKS

[Guest guest]

I was diagnosed with AS this summer and given all the typical drugs. ie: mobic,

hydrocodone etc. I did get relief but was not interested in being on narcotics

long term.

I got very good results from a chiropractor. The pain was gone within three or

four visits and has been gone for months with maintenance visits. My AS is

associated with crohn's and the pain was so bad I felt like I couldn't breathe.

I had read some info claiming chiropractic was not safe with AS but my

traditional doctor at the spine institute actually recommended it. It's worth a

try..

>

> WONDERED IF ANYONE ELSE HAS SAME DIAGNOSIS WITH UC. APPARENTLY IT GOES HAND

IN HAND WITH UC. JUST NEED SOME UPBUILDING COMMENTS FOR ME AS WELL AS TO SHARE

WITH MY HUSBAND. THE WORLD SEEMS TO BE COLLAPSING ON TOP OF US. HIS UC IS

EXTREME AND NOW THIS OTHER CONDITION IS ALSO EXTREMELY PAINFUL AND DEBILITATING.

ANYONE!!! THANKS.

>

[Guest guest]

Hi-

I have had UC for 3.5 years now. I am 36. Initially I used to have terrible pain

in the back of my neck, which I thought was AS but the doc dismissed it and

asked me take Tylenol. In any event, as I weaned off Pentasa and prednisone, it

went away. So I don't know.

I am new to SCD, but a lot of people here and elsewhere swear by it. You can

help your husband try it, and it should work. What about yoga?

Good luck and take heart. We're tons of us here to help each other out.

-Andy.

[Guest guest]

At 10:51 PM 11/29/2009, you wrote:

WONDERED IF ANYONE ELSE HAS SAME

DIAGNOSIS WITH UC. APPARENTLY IT GOES HAND IN HAND WITH UC. JUST NEED

SOME UPBUILDING COMMENTS FOR ME AS WELL AS TO SHARE WITH MY HUSBAND. THE

WORLD SEEMS TO BE COLLAPSING ON TOP OF US. HIS UC IS EXTREME AND NOW THIS

OTHER CONDITION IS ALSO EXTREMELY PAINFUL AND DEBILITATING. ANYONE!!!

THANKS.

Welcome to the group. I know a little about A.S., but I do know that SCD

is just about the best thing you can do for gut issues.

Just as a suggestion -- typing in all caps is considered shouting on this

list -- and it's harder for most of us to read.

You'll find plenty of support here.

—

Marilyn

New

Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund

[Guest guest]

Hi Mea

I've had both UC and Ankylosing Spondylitis for about 12 years. (The arthritis

is a commen side effect of UC)

For more than 1/2 that time I've been able to manage on Asacol + some sort of

NSAID (currently it's Mobic)

Most of my flares have been managed my Prednisone.

For the most part I've found that when I keep the UC in check, the Arthritis was

in check too (but I needed the meds)

Last November I took an antibiotic and wound up in the hospital with a severe

flare that's not totally under control yet.

I found SCD in early July (I'm now 5 months in). While my D isn't totally under

control yet, I do see improvements.

I see even more improvement in the arthritis. I now take the Mobic ~2 times a

week - instead of every day. When I wake up my joints don't feel stiff and

locked and my back and neck have a full range of motion.

You don't mention how long your husband has been on SCD, but I truly think that

the diet will help both conditions.

Hope that insight helps and that your husband feels better soon!

--Merissa

>

> WONDERED IF ANYONE ELSE HAS SAME DIAGNOSIS WITH UC. APPARENTLY IT GOES HAND

IN HAND WITH UC. JUST NEED SOME UPBUILDING COMMENTS FOR ME AS WELL AS TO SHARE

WITH MY HUSBAND. THE WORLD SEEMS TO BE COLLAPSING ON TOP OF US. HIS UC IS

EXTREME AND NOW THIS OTHER CONDITION IS ALSO EXTREMELY PAINFUL AND DEBILITATING.

ANYONE!!! THANKS.

>

[Guest guest]

HI,

THANKS SO MUCH FOR WRITING BACK. HE IS NOT THE ONLY ONE WITH THIS PROBLEM. LIKE HE THINKS. HE WAS ON THE DIET FOR ABOUT 3 WEEKS AND FELT REAL WEAK AND "WORSE OFF" . HUNGRY ACCORDING TO HIM. HE GAVE UP ON THE DIET. HE HATED THE HOME MADE YOGHURT AND FOUND IT TO HARD TO CONTINUE. NOW HE IS GOING TO GO ON REMICADE WHICH THE ARTHRITIS DOCTOR RECOMMENDED AND ALSO THE GI DOCTOR. I REALLY WISH HE WOULD JUST GO ON THIS DIET BUT HE HAS JUST CONVINCED HIMSELF TO GOING ON REMICADE. IT BREAKS MY HEART BUT WHAT ELSE CAN I DO I DON'T KNOW.

Subject: Re: MY HUBBY HAS UC FOR 7 YRS JUST DIAGNOSED WITH ANKYLOSING SPONDYLITISTo: BTVC-SCD Date: Monday, November 30, 2009, 9:45 AM

Hi MeaI've had both UC and Ankylosing Spondylitis for about 12 years. (The arthritis is a commen side effect of UC)For more than 1/2 that time I've been able to manage on Asacol + some sort of NSAID (currently it's Mobic)Most of my flares have been managed my Prednisone.For the most part I've found that when I keep the UC in check, the Arthritis was in check too (but I needed the meds)Last November I took an antibiotic and wound up in the hospital with a severe flare that's not totally under control yet.I found SCD in early July (I'm now 5 months in). While my D isn't totally under control yet, I do see improvements.I see even more improvement in the arthritis. I now take the Mobic ~2 times a week - instead of every day. When I wake up my joints don't feel stiff and locked and my back and neck have a full range of motion.You don't mention how long your husband has been on SCD, but I truly think that the diet will help

both conditions.Hope that insight helps and that your husband feels better soon!--Merissa>> WONDERED IF ANYONE ELSE HAS SAME DIAGNOSIS WITH UC. APPARENTLY IT GOES HAND IN HAND WITH UC. JUST NEED SOME UPBUILDING COMMENTS FOR ME AS WELL AS TO SHARE WITH MY HUSBAND. THE WORLD SEEMS TO BE COLLAPSING ON TOP OF US. HIS UC IS EXTREME AND NOW THIS OTHER CONDITION IS ALSO EXTREMELY PAINFUL AND DEBILITATING. ANYONE!!! THANKS.>