Autistic trait??? Coming off down right rude!!!!

[Guest guest]

Hi!!! I was wondering??? Joey has always had tactile inaggration

issues. Screams when getting a hair, hates a bath, hates to play in

the sand, has to have a wipe while he is eating, hates to be cuddled,

hates change and so on. His therapist has worked with him on this.

We have even trien the brushing method.

Before he was finally dx. with Mito, we got a dx. from another dr of

Aspergers Syndrome. We did see alot of traits, not too sure what to

think about them.

We are having a MAJOR problem with Joey not being friendly, coming

off very rude. Not just a shy thing, just down right not wanting to

talk to any one other than dad, mom and brothers. Children or adults.

We have noticed that he is even more distance to us. Hates to sit on

our lap, yet loves to be with us. But would love to rather just play

by himself, than with other children.

He is getting ready to enter Kindergarden and we are very worried

Has anyone seen this in their kids? I there anything to do for it?

I know it is just his personality, yet others feels he is just being

rude.

Any help would be great!!!!

Tamara(mommy of Joey age 5, unspecific Mito)

[Guest guest]

Tamara,

too has sensory issues. Sometimes she likes her hair

brushed. She will stand for ten minutes after her bath so I can blow

dry her hair but the next morning screams bloody murder because she

doesn't want me to brush it. She hates getting her hands dirty

unless she is eating pizza. We have worked on it with er OT. Using

shaving cream on the table and letting her play with it and spread

it all over. She is fine around people-she goes to the docs office

and loves the attention. If we go to new doc it is a problem.

Somewhere she is not familiar with. If we go out she is fine until

it is time to leave. She will pitch the biggest fit and we will have

to pick her up and get her in the car. People look at you like you

are abusing her or she is just a spoiled brat. It is hard to know

that we can do something fun, but it may always end with her

screaming.I haven't had to deal with a school situation d/t to her

immune and white cell issues she will never go to school. I don't

think she would do well. She doesn't transition well like other kids.

She has poor verbal skills and it would be very difficult to

understand her if she needed or wanted something. Do you have OT? It

really has helped alot for . She too has PDD-NOS. My hardest

thing is other's not understanding her disease. It is just like

mito. They can't see it so they don't get it. I would try school and

set up a good IEP with all of his needs involved. The worst that

could happen is you decide to home school. At least you can say you

tried it and it didn't work for him. You should be able to get

services out of the home at that point through the school system (I

would think).

Good luck, Dawn

[Guest guest]

Hi dawn: we found that adding zinc and magnesium supplements greatly reduced sensory issues- especially hands. They also help with bowel regulation.

Cindy-GA

Re: Autistic trait??? Coming off down right rude!!!!

Tamara, too has sensory issues. Sometimes she likes her hair brushed. She will stand for ten minutes after her bath so I can blow dry her hair but the next morning screams bloody murder because she doesn't want me to brush it. She hates getting her hands dirty unless she is eating pizza. We have worked on it with er OT. Using shaving cream on the table and letting her play with it and spread it all over. She is fine around people-she goes to the docs office and loves the attention. If we go to new doc it is a problem. Somewhere she is not familiar with. If we go out she is fine until it is time to leave. She will pitch the biggest fit and we will have to pick her up and get her in the car. People look at you like you are abusing her or she is just a spoiled brat. It is hard to know that we can do something fun, but it may always end with her screaming.I haven't had to deal with a school situation d/t to her immune and white cell issues she will never go to school. I don't think she would do well. She doesn't transition well like other kids.She has poor verbal skills and it would be very difficult to understand her if she needed or wanted something. Do you have OT? It really has helped alot for . She too has PDD-NOS. My hardest thing is other's not understanding her disease. It is just like mito. They can't see it so they don't get it. I would try school and set up a good IEP with all of his needs involved. The worst that could happen is you decide to home school. At least you can say you tried it and it didn't work for him. You should be able to get services out of the home at that point through the school system (I would think). Good luck, Dawn