Re: - Darla or anyone else about SLE's?

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Forgot to add (BRIEFLY this time) that avoiding viruses is the best thing you can do as well as keeping his metabolic condition under control. No magical cures I am afraid. Nothing has helped us yet as even when we do all we can to avoid these things, strokes keep happening. Also of note, MRI's don't show SLE's very often even when lasting issues remain. Of ALL Asenath's strokes that the doctors agree she has had, only one, which paralyzed her entire left side, shows up in the brain on MRI. Even though there is definite damage to the brain, it must be small enough to not show up, but not small enough to cause permanent issues. And unfortunately, when you build one upon another, after a while you develop major developmental delays. Asenath is developmental about half her age now. Hope this isn't too depressing. Every person has different issues and each heal at a different rate. Hopefully your son will heal completely and will not have any further episodes. Take care. Darla Darla or anyone else about SLE's? Hi Darla and everyone,Darla I addressed this to you because I've seen the most from you about SLEs but I'm sure there are others who have seen and dealt with these too. We think we have seen at least 2 if not 3 of these in Will lately, but aren't sure. When we've described them to the DRs they agree it is a possibility, but nobody can be sure. I just wanted to see what others have seen, and what could be done to avoid anymore. Although Will has seemed to recover physically from these episodes I don't think they are doing him any good and he definitely struggles through them. We have also seen a lot of negative changes in him lately that started right after the first episode.Thanks for any input JColorado