Re: Cindy & Zander

[Guest guest]

ALL of the symptoms you mentioned my kids and I deal with! Also, I was assumed to have MS for over 13 years before my daughter was found to have Mito! Now they assume my condition is actually Mito and my kids inherited it from me. Weak muscles, muscle fatigue, exercise intolerance, popping joints, ptosis (My 4 year old has this big time), and very common in Mito. Also a note to you to remember is that Mito can show up in a person at ANY time during their life. I began some symptoms as a teen and became much worse after to much stress on my body at the age of 20. My daughter Asenath showed symptoms when a toddler, by daughter Zipporrah started showing Mito symptoms almost immediately after birth, my oldest son began showing major signs two years ago and just this past January had his FIRST stroke episode I also have some kids that are from 7-13 that show "soft signs" of Mito. Mito shows up at different aged due to how bad their mitochondria is, what stresses they have, etc. Feel free to ask further questions. Re: Digest Number 2672 Hi again all, just wondering, I got some feedback from my sons physio today.She said that she thinks that what she initially thought was hypotonia andataxia, probably isnt, which is good news for us. But she thinks that he mayhave some type of muscle problem, where by his muscles have no endurance,i.e. they wear out of energy very quickly, and possibly for some reaon arentrecharging correctly soon enough, sort of like what they think I may have(myasthenia gravis) which is a neuromuscular transmition disorder, it meansthat the little transmitters that tell my muslces that they have more energyare faulty, so that when I use that energy up they arent gettign the messgethat theres more energy needed to be sent, I guess very similar in a way tomito??? ANyway they are not sure if htats what I have anyway let alone himhaving htat also, as he shouldnt as if it was congenital then I would havehad it all my life also, and he is too young for it to be like mine (lateonset), also they are still debating me also, as I am proving negative forthe tests so far, indicating that it may be something else!!! (phew) alsothere some speculation that I may have MS instead or as well as.So to get to the quesitons!!!!do any of your children also have similar muscle problems, where thiermuscles run out of energy with repitition??? he also gets one sided ptosiswhen tired and his joints "pop" when he is lifted up, his arms pop and whenchaning his nappy his hips pop also.ThanksCindy