Re: Ann-Darla, also ? abt. collagenous colitis?

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Due to you having a child with Mito there obviously is a possibility of yourself also having Mito. Eye issues such as eye pain, focal problems, and balance/dizziness issues are all a part of many conditions, Mito included. I used to be one who really needed more sleep than normal too but for some reason for the past few years I have been surviving on very little without falling apart. For me, I assume I have Mito but don't stress over it much as I have been dealing with the "bizzare" for so many years and I guess because I thought it was MS I didn't worry so much as the type I thought I had was the relapsing/remitting; meaning I would get bad, but then always get most if not all back after each episode. And this has been the case since 1990. (I also had lots of headaches, muscle pain, exercise issues, extra need for sleep, etc. as a child/teen as well but got much worse after having a miscarriage and immediate pregnancy with my 13 yr. old and then moved when she was 5 days old! A little too much for my body I guess.) For some reason I never really let myself get bummed about my health. I always thought, "why not me" rather than the typical "why me," for some reason. I just did/do what I had/have to do to rest and recover and try to keep a positive attitude when things got/get tough. If you aren't battling very much, try to not get too worried because even if you do have Mito then at this point, and possibly for the rest of your life, you may only have a few quirks and do just fine. In most cases, the older you are when symptoms appear,the less affected you will be. Not always the case, but most of the time. I hope you get some answers concerning the other issue. I'm no help in that area. Darla: mommy to Asenath, Zipporrah, Luke, Leah, Rachael, Isaac, Tirzah, Kezia, and Marquis Re: Darla, also ? abt. collagenous colitis? Darla, You know, I've kind of avoided thinking about mito and me, but something you wrote made me think again about the possibility. As you know, Asher has mito - oxphos defect complex III and possible complex I. I have a primary immune deficiency and take gamma globulin. Other than that, I seem "fine" sort of. My thyroid is deficient and I need more sleep than the "average" person - say, 9-10 hrs. a night and sometimes a nap. I've always thought that was due to the primary immune deficiency, but something you mentioned made me wonder (as well as the fact that Asher has mito). After Asher's birth, I started to have weird trouble with my eyes. I couldn't turn my head and focus my eyes- it felt as if I'd had a drink of some type of alcohol - you know, how blurry everything gets when you turn your head. And my eyes or somewhere above my eyes would hurt for long periods of time when I kept my eyes open. I would have to close them to feel better. I saw an opthalmologist eventually, thinking maybe I needed glasses and they didn't find any problems. I just figured it was from fatigue. It has mostly stopped but from time to time it comes back...I'm pretty healthy other than those things - I'm a runner and I guess I've ruled out mito for me b/c I'm able to run long distances (now only about 6 miles - used to do marathons but that was before children) without being more tired than expected. My other question is about collagenous colitis (sp.?)? My mother has all sorts of "autoimmune problems", and has been dx with an atypical form of lupus (sounds familiar, huh?). Probably her most difficult problems is the collagenous colitis where her colon literally is making a collagen covering over the absorbent tissue and she has a hard time eating any types of food. she is on almost completely baby food or extremely bland food. she is okay with this and has been to Mayo and they are helping her, but I was curious if any one has heard of this symptom occuring with mito. I know Shoffner's doing a genetic sequencing on Asher's mito so we might have some answers in terms of the genetic connection.... I think. Any thoughts? Anne RPlease contact mito-owner with any problems or questions. Get more from the Web FREE MSN Explorer download : http://explorer.msn.com