Finding peacefulness in spite of drugs

[Guest guest]

Hi Tracie. I really cherish your words. Your advice about breathing and calm is

so very

important. Lately it's been very hard to for me to get there. Overall I feel

more peaceful. As

crazy as it sounds, this disease has changed my perspective, made me see past

the surface

issues to what is truly important, my family. But the drugs keep getting in the

way. I fly off

the handle before I even know it. My words are negative and I don't remember

having the

thoughts first. I think I am going crazy. It's hard to think. I get confused. I

am on a fast taper

off prednisone right now because of the bad side effects it has been causing.

Could this be

making me this way?

On another note, does anyone know why my posts have those awkward breaks in the

sentences? It doesn't look like that when I type questions or replies.

-

[Guest guest]

the drugs keep getting in the way. I fly off he handle before I even know it. My words are negative and I don't remember having the thoughts first. I think I am going crazy. It's hard to think. I get confused. I am on a fast taper off prednisone right now because of the bad side effects it has been causing. Could this be

making me this way?

It is more than likely that your anger is coming from the prednisone. Whether you're going up in dosage, or down in dosage- prednisone can reak havoc on our emotions. It was the psychosis and actually getting physically abusive (along with high blood pressure, high blood sugars, and hormone hell) that it does to me that has made prednisone a "no longer available" medication for me.

Truly, be patient with yourself, you're not going nuts-- it's just that you have a horde of hormones and such trying to reestablish themself-- and your whole being is out of sync.

It will get better!

as for the breaks in your emails-- I do believe that what is happening is that you're hitting the return (enter) key at the end of your sentences-- instead of using the "wrap around text" feature. Most email programs let you set up the text with choices as to the margins, etc-- you might want to play with the different settings (it could be in the "Settings for your email" in your "computer system settings" or it could be a choice in the "settings" directly for how text will be displayed.

AOL has a section at the top that shows "settings" and I go in there,- choose "Preferences" and then can set my color, text (font) size, text type, and page size. This controls both my incoming mail, and my outgoing.

It is amazing to see how we start to prioratize when we are faced with serious illness. The trivial becomes trivial, road rage isn't as important to get upset over, and we start to appreciate the small stuff.

Keep on keeping on,

Tracie

NS co-owner/moderator

[Guest guest]

My family notices I am very moody at times. Tapering the prednisone isn't an option for me for at least 4 months after starting the cellcept since my ticker goes nuts. I've been on steroids over 2 years.tiodaat@... wrote: In a message dated 9/22/06 1:16:14 PM Pacific Daylight Time, wendy_cidp (AT) yahoo (DOT) ca writes: the drugs keep getting in the way. I fly off he handle before I even know it. My words are negative and I don't remember having the thoughts first. I think I am going crazy. It's hard to think. I get confused. I am on a fast taper off prednisone right now because of the bad side effects it has been causing. Could this be making me this way? It is more than likely that your anger is coming from the prednisone. Whether you're going up in dosage, or down in dosage- prednisone can reak havoc on our emotions. It was the psychosis and actually getting physically abusive (along with high blood pressure, high blood sugars, and hormone hell) that it does to me that has made prednisone a "no longer available" medication for me. Truly, be patient with yourself, you're not going nuts-- it's just that you have a horde of hormones and such trying to reestablish themself-- and your whole being is out of sync. It will get better! as for the breaks in your emails-- I do believe that what is happening is that you're hitting the return (enter) key at the end of your sentences-- instead of using the "wrap around text" feature. Most email

programs let you set up the text with choices as to the margins, etc-- you might want to play with the different settings (it could be in the "Settings for your email" in your "computer system settings" or it could be a choice in the "settings" directly for how text will be displayed. AOL has a section at the top that shows "settings" and I go in there,- choose "Preferences" and then can set my color, text (font) size, text type, and page size. This controls both my incoming mail, and my outgoing. It is amazing to see how we start to prioratize when we are faced with serious illness. The trivial becomes trivial, road rage isn't as important to get upset over, and we start to appreciate the small stuff. Keep on keeping on, Tracie NS co-owner/moderator

Stay in the know. Pulse on the new Yahoo.com. Check it out.

[Guest guest]

My family notices I am very moody at times. Tapering the prednisone isn't an option for me for at least 4 months after

Becky, This is a very long time to be on prednisone. I know how hard it is to get off of-- and that it's adding to your heart issues. Follow your MD's advice, and take it so slow-- 1mg at a time if that is what it will take to get off them. I do hope the Cellcept helps you. Keep us advised---- you never know when we'll have to make changes to our own program. . .

Tracie

[Guest guest]

Hi , The prednisone is more than likely your

culprit. I have been known as a quiet, peaceful, easy

going person. Since I've been on prednisone I'd slap

a grizzly bear in the nose & dare him to do something

about it if he rubbed me the wrong way. I hate it, it

is not me, but I can't going any lower on my pred

right now. I had to go back up some because of

breathing problems.

Take Care.......Connie

--- wendy_cidp wendy_cidp@...> wrote:

> Hi Tracie. I really cherish your words. Your advice

> about breathing and calm is so very

> important. Lately it's been very hard to for me to

> get there. Overall I feel more peaceful. As

> crazy as it sounds, this disease has changed my

> perspective, made me see past the surface

> issues to what is truly important, my family. But

> the drugs keep getting in the way. I fly off

> the handle before I even know it. My words are

> negative and I don't remember having the

> thoughts first. I think I am going crazy. It's hard

> to think. I get confused. I am on a fast taper

> off prednisone right now because of the bad side

> effects it has been causing. Could this be

> making me this way?

> On another note, does anyone know why my posts have

> those awkward breaks in the

> sentences? It doesn't look like that when I type

> questions or replies.

> -

>

>

>

>

>

>

>

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____

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[Guest guest]

Hi and Connie,That prednisone sure can do a number on us. The things you are describing sound like pred. And decreasing too quickly can cause psychosis. I remember receiving pts in our ER that were being weaned off pred (a couple who were on high doses) that were hallucinating,etc. It saves our lives yet it can cause us much grief in so many ways. Tracie has a gift with explaining this stuff...relaxation and other things. I found a way of walking with the sarcoid instead of IT walking me. Can't explain here but am more than willing to share what I know during the religious chatroom talks or you can email me direct. The journey is not easy but I know I don't walk alone.Blessings,BeckyConnie Griffis wrote: Hi , The prednisone is more than likely your culprit. I have been known as a quiet, peaceful, easy going person. Since I've been on prednisone I'd slap a grizzly bear in the nose & dare him to do something about it if he rubbed me the wrong way. I hate it, it is not me, but I can't going any lower on my pred right now. I had to go back up some because of breathing problems. Take Care.......Connie --- wendy_cidp <wendy_cidp (AT) yahoo (DOT) ca> wrote: > Hi Tracie. I really cherish your words. Your advice > about breathing and calm is so very > important. Lately it's been very hard to for me to > get there.

Overall I feel more peaceful. As > crazy as it sounds, this disease has changed my > perspective, made me see past the surface > issues to what is truly important, my family. But > the drugs keep getting in the way. I fly off > the handle before I even know it. My words are > negative and I don't remember having the > thoughts first. I think I am going crazy. It's hard > to think. I get confused. I am on a fast taper > off prednisone right now because of the bad side > effects it has been causing. Could this be > making me this way? > On another note, does anyone know why my posts have > those awkward breaks in the > sentences? It doesn't look like that when I type > questions or replies. > - > > > > > > >

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[Guest guest]

Hi guys, I am also a quiet easy going person, but when I am on prednisone - watch out. When my husband hears that the dr has put me on it, he turns around and heads for the hills! jk He calls me "Sybil" because of my ever changing moods. Seriously, that's one of the reasons I refuse it as much as I can at the doctors. Debbie T.Co-ModeratorConnie Griffis wrote: Hi , The prednisone is more than likely yourculprit. I have been known as a quiet, peaceful, easygoing person. Since I've been on prednisone I'd slapa grizzly bear in the nose & dare him to do somethingabout it if he rubbed me the wrong way. I hate it, itis not me, but I can't going any lower on my predright now. I had to go back

up some because ofbreathing problems. Take Care.......Connie--- wendy_cidp wrote:> Hi Tracie. I really cherish your words. Your advice> about breathing and calm is so very > important. Lately it's been very hard to for me to> get there. Overall I feel more peaceful. As > crazy as it sounds, this disease has changed my> perspective, made me see past the surface > issues to what is truly important, my family. But> the drugs keep getting in the way. I fly off > the handle before I even know it. My words are> negative and I don't remember having the > thoughts first. I think I am going crazy. It's hard> to think. I get confused. I am on a fast taper > off prednisone right now because of the bad side> effects it has been causing. Could this be > making me this way? > On another note, does anyone know why my posts

have> those awkward breaks in the > sentences? It doesn't look like that when I type> questions or replies.> -> > > > > > > ____________________________________________________________________________________Low, Low, Low Rates! Check out Yahoo! Messenger's cheap PC-to-Phone call rates (http://voice.yahoo.com)~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- FAITH CHATS: WEDNESDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 12 MIDNIGHT EST. 11PM CENTRAL. 9PM PST OPEN CHATS: THURSDAY 9PM EST. 8PM CENTRAL. 6PM PST SUNDAY 4PM EST. 3PM CENTRAL. 1PM PSTCHATROOM LINK: http://www.emxpc.net/chat/index.php Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone

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[Guest guest]

Becky, I don't have a way to go on the chats, but thank you so much for the email. I am trying to wean off the pred even though I know i am more than likely going to pay a horrible price. I can tell from the granulomas i see, and the problems I am having with my heart & breathing that the boys are trying to climb out of the trenches the pred keeps them in. It's just I can't stand being so different than who I really am. It's bad enough that I look the way I do without the other roller coaster. Wish me luck, it's gonna be like (oh pickle relish) I can't remember what the game is where you go under the bamboo pole lower & lower. Anyway you know what I mean I hope, how low can I go. I know no one risk celcept because of my heart, I don't know what else to do. Connie Mac Tosh

wrote: Hi and Connie,That prednisone sure can do a number on us. The things you are describing sound like pred. And decreasing too quickly can cause psychosis. I remember receiving pts in our ER that were being weaned off pred (a couple who were on high doses) that were hallucinating,etc. It saves our lives yet it can cause us much grief in so many ways. Tracie has a gift with explaining this stuff...relaxation and other things. I found a way of walking with the sarcoid instead of IT

walking me. Can't explain here but am more than willing to share what I know during the religious chatroom talks or you can email me direct. The journey is not easy but I know I don't walk alone.Blessings,BeckyConnie Griffis <conaugusta (AT) yahoo (DOT) com> wrote: Hi , The prednisone is more than likely yourculprit. I have been known as a quiet, peaceful, easygoing person. Since I've been on prednisone I'd slapa grizzly bear in the nose & dare him to do somethingabout it if he rubbed me the wrong way. I hate it, itis not me, but I can't going any lower on my predright now. I had to go back up some because ofbreathing problems. Take Care.......Connie--- wendy_cidp <wendy_cidp (AT) yahoo (DOT) ca> wrote:> Hi

Tracie. I really cherish your words. Your advice> about breathing and calm is so very > important. Lately it's been very hard to for me to> get there. Overall I feel more peaceful. As > crazy as it sounds, this disease has changed my> perspective, made me see past the surface > issues to what is truly important, my family. But> the drugs keep getting in the way. I fly off > the handle before I even know it. My words are> negative and I don't remember having the > thoughts first. I think I am going crazy. It's hard> to think. I get confused. I am on a fast taper > off prednisone right now because of the bad side> effects it has been causing. Could this be > making me this way? > On another note, does anyone know why my posts have> those awkward breaks in the > sentences? It doesn't look like that when I type> questions or replies.>

-> > > > > > > __________________________________________________________Low, Low, Low Rates! Check out Yahoo! Messenger's cheap PC-to-Phone call rates (http://voice.yahoo.com) Access over 1 million songs - Yahoo! Music Unlimited Try it today. __________________________________________________

[Guest guest]

Connie,With my cardiac sarcoid the times they have tried to wean me down on the pred my heart would go crazy (a-fib, etc). I was put on the cellcept so that hopefully I can decrease the pred in about 4 months (very gradual basis since I've been on it 2 1/2 yrs). I don't like looking like a puffer fish either (bloated from the steroids) but I want to live and be with my family. I wish for you the best.Blessings,BeckyConnie Griffis wrote: Becky, I don't have a

way to go on the chats, but thank you so much for the email. I am trying to wean off the pred even though I know i am more than likely going to pay a horrible price. I can tell from the granulomas i see, and the problems I am having with my heart & breathing that the boys are trying to climb out of the trenches the pred keeps them in. It's just I can't stand being so different than who I really am. It's bad enough that I look the way I do without the other roller coaster. Wish me luck, it's gonna be like (oh pickle relish) I can't remember what the game is where you go under the bamboo pole lower & lower. Anyway you know what I mean I hope, how low can I go. I know no one risk celcept because of my heart, I don't know what else to do. Connie Mac Tosh <macandtosh626 (AT) yahoo (DOT) com> wrote: Hi and Connie,That prednisone sure can do a number on us. The things you are describing sound like pred. And decreasing too quickly can cause psychosis. I remember receiving pts in our ER that were being weaned off pred (a couple who were on high doses) that were hallucinating,etc. It saves our lives yet it can cause us much grief in so many ways. Tracie has a gift with explaining this stuff...relaxation and other things. I found a way of walking with the sarcoid instead of IT walking me. Can't explain here but am more than willing to share what I know during the religious chatroom talks or you can email me direct. The journey is not easy but I know I don't walk alone.Blessings,BeckyConnie Griffis <conaugusta (AT) yahoo (DOT) com> wrote: Hi , The prednisone is more than likely yourculprit. I have been known as a quiet, peaceful, easygoing person. Since I've been on prednisone I'd slapa grizzly bear in the nose & dare him to do somethingabout it if he rubbed me the wrong way. I hate it, itis not me, but I can't going any lower on my predright now. I had to go back up some because ofbreathing problems. Take Care.......Connie--- wendy_cidp <wendy_cidp (AT) yahoo (DOT) ca> wrote:> Hi Tracie. I really cherish your words. Your advice> about breathing and calm is so very > important. Lately it's been very hard to for me to> get there. Overall I feel more peaceful. As > crazy as it sounds, this disease has changed my> perspective, made me see past the surface > issues to what is truly important, my family. But>

the drugs keep getting in the way. I fly off > the handle before I even know it. My words are> negative and I don't remember having the > thoughts first. I think I am going crazy. It's hard> to think. I get confused. I am on a fast taper > off prednisone right now because of the bad side> effects it has been causing. Could this be > making me this way? > On another note, does anyone know why my posts have> those awkward breaks in the > sentences? It doesn't look like that when I type> questions or replies.> -> > > > > > > __________________________________________________________Low, Low, Low Rates! Check out Yahoo! Messenger's cheap PC-to-Phone call rates (http://voice.yahoo.com) Access over 1 million songs - Yahoo! Music Unlimited Try it today. __________________________________________________